Investigating Mysterious Symptoms and Naming the Culprit


My name is Cindy W. I was recently seen by Dr. Randall Edson in the Mayo Clinic Infectious Disease Department. I can’t say enough good things about Dr. Edson! He spent 2 hours with me listening to all the details of how I had been sick for the past year. He is kind and affirming. I have never had a doctor in my lifetime ever listen to me in that way.

He is warm and caring. When he made his diagnosis he looked up information on the computer and showed me in great detail what he believed had happened to me, how it happened and what the treatment needed to be.

I also saw two dermatologists that day and they were equally kind and affirming.

At the end of the day, Dr. Edson telephoned me to see if I had any more questions, how I was doing and again had kind words for me. Doctors don’t just call to see if you have questions or concerns – this was beyond my imagination that he would call me just to make sure I was ok.

Over the past nine months I had seen about eight different doctors for this problem, including other infectious disease specialists, and none of those doctors had a correct diagnosis for me. Some doubted that there was anything at all wrong with me. Dr. Edson told me what was wrong and immediately there was an explanation for all my symptoms.

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By makalajohnson | Posted in Infectious Diseases | Tagged , , , , , , | Comments (1)

Christmas Miracle: Woman sings opera with new teeth and jaw


After this opera singer noticed something on her chin and asked her dentist to take an x-ray, they found an ossifying fibroma that had taken over all of her lower jaw. Susan Taborn needed to have her entire lower jaw and most of her bottom teeth removed. Mayo Clinic doctors and surgeons used her fibula to construct a new jaw. Susan now received a new set of bottom teeth, just in time for Christmas! Watch her inspiring story below:

Listen to her singing here:

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By makalajohnson | Posted in Uncategorized | Tagged , , , , , , , , , , | Comments (11)

Mayo Graduate Student – Trip to Ecuador


Amy Saleh, M.D. went to Ecuador as part of the Mayo International Heath Program within the Mayo School of Graduate Medical Education. She recounts this surgical trip experience, where they focused on children with cleft lip and cleft palate.

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By makalajohnson | Posted in Education, International | Tagged , , , , , , , , , , | Leave a comment

Mayo International Health Program Testimony – Experience in Kenya


Mira Keddis, M.D. was originally from Egypt, went to Texas for her medical school training, and came to Mayo Clinic for her residency training. Then, the Mayo International Health Program (MIHP) offered her the opportunity to travel abroad as part of her education. In the below video, she relays lessons learned from her trip to Kenya.

      

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By makalajohnson | Posted in Education, International | Tagged , , , , , , , , , , , , , | Leave a comment

Mayo Graduate Student – Trip to West Africa


Jason O’Grady, M.D. went to West Africa as part of the Mayo International Heath Program within the Mayo School of Graduate Medical Education. He recounts his experience in this video.

 

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By makalajohnson | Posted in International | Tagged , , , , , , , , , , , | Leave a comment

Before and After Fibromuscular Dysplasia (FMD) Diagnosis


Kari Ulrich, a patient with Fibromuscular Dysplasia (FMD), shares her story of struggles before and after being diagnosed with FMD in 2007.

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By makalajohnson | Posted in Cardiology & Cardiac Surgery | Tagged , , , , , | Comments (1)

Three Strikes … But Not Out


Personal Background

My name is Alfred “Bart” Howe and I am a very lucky guy. I was born 1938 in a small oilfield town in Oklahoma. Mary and I married in 1965 and have two married sons, a grandson and a granddaughter. Mary and I raised our family in Boulder, Colorado and have lived here for over 40 years. I like to think that my family has been, and is, the primary focus of my life. Prior to Amyloidosis, my personal hobbies included gardening, scuba diving, bicycling, downhill skiing, cross country skiing, hiking and climbing the 14,000 foot peaks of Colorado.

2001 – Multiple Myeloma 

In Dec, 2001, Dr. Fleagle, of the Rocky Mountain Cancer Center (RMCC) diagnosed me with Multiple Myeloma, Phase 1. I was 63, and was in absolute shock. I got a speeding ticket on the way home. No one in our family had ever had cancer and I was, I thought, very healthy. I immediately started monthly IVs of Aredia, a biophosphonate, to strengthen my bones. I continued to work full time and continued all outdoor activities.

2003 – Amyloidosis

In Aug, 2003, I had extreme fatigue after climbing one of the harder 14,000 foot peaks in Colorado. I passed it off to getting a late start and being caught in a severe storm. In Oct, 2003, I went to Nepal for a long planned trek. During this trip I began to have extreme fatigue and had to stop the trek even though I was only at 11,000 feet. After returning to Colorado I continued to feel worse and immediately visited my oncologist, Dr Fleagle at RMCC. After much testing, a GI tract biopsy diagnosed Primary Amyloidosis (AL) in Dec, 2003.

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By makalajohnson | Posted in Cancer | Tagged , , , , , , , , | Comments (2)

Cancer Patient Experiences Football as Healing


Below is an except from a blogpost written by Karon Hanson on the Healing As A Sacred Path blog.

“[He] received more rounds of chemo earlier this Fall, and when it was found the cancer was still progressing, he enrolled in a clinical trial at the Mayo Clinic, testing a promising immunotherapy drug, hoping that it will boost his own immune system to knock down the cancer. [He] hasn’t felt great many days, but he still has gone to work, he still has gone to almost every practice and all the games. He could forget about the illness, the knot in the pit of his stomach, the dread of this disease, and just enjoy the moment and enjoy sharing the experience with his son and his family and friends, all of whom have gone to every game we possibly could.”

To read the rest of this inspiring story, click here.

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By makalajohnson | Posted in Cancer | Tagged , , | Leave a comment

Liver Transplant + Bariatric Surgery = the New Marshall


Marshall Curtis was diagnosed in 2009 with end stage liver failure and cirrhosis secondary to Alpha1 Antitrypsin deficiency. Obesity and encephalopathy were additional challenges confronting the Mayo team. He was recommended for a new study program combining a transplant and bariatric surgery to improve his chances for a transplant and long term survival. Listen to Marshall and his wife, Julie, tell how close he got to death and how this experience has changed their lives. This is an absolutely remarkable story!

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By makalajohnson | Posted in Gastroenterology, Transplant | Tagged , , , , , , , | Comments (1)

Couple grateful for longtime care at Mayo Clinic


                                                                                                                                                   Karl and Eileen Rauschert of Bushnell, Ill., have been coming to Mayo Clinic in Florida for 23 years. Their experiences have been anything but routine.

A visit in 2009 is a perfect example. Just as Mrs. Rauschert was about to undergo a colonoscopy, her husband, who was along for moral support, experienced a racing heartbeat.

“I mentioned it to a person at the front desk,” recalls Mr. Rauschert. “About three seconds later, I was in cardiology, and they were taking care of me.”

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By stacytheobald | Posted in Uncategorized | Leave a comment