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Melissa Shultz, a freelance writer living in Plano, Texas, wrote an article for Newsweek online about her son Nick’s mysterious illness and his diagnosis and treatment at Mayo Clinic.
Fatigue set in a day after Nick’s dizziness started. Swollen glands followed close behind. Our general practitioner ordered blood work, including studies for mononucleosis and Lyme disease. When everything came back negative, we tried steroids for Nick’s swollen glands and a round of antibiotics in case he had a bacterial infection. When the dizziness and fatigue persisted we wondered aloud if the culprit might have been the flu shot he received eight days prior. It was presumed he had viral labyrinthitis (an inner-ear disorder) that would pass in a week or two.
When it didn’t, and his tonsils grew exponentially, we tried a different antibiotic. All the while, he was perched in a makeshift bed on our first floor—an overstuffed chair and aging ottoman with a twin sheet stretched to its limit. Suffering from extreme vertigo, Nick was unable to walk up the stairs to his bedroom. He could not lift his head without looking as if he were drowningand mostly slept the days away. School became someplace his friends went.
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By April, I was losing hope when a teacher of Nick’s who had been coming to our home to work with him, reminded me of the Mayo Clinic. I knew it was a place where doctors are paid with a salary, not per patient, and where the concept of teamwork is embraced. I made a number of calls, wrote up my own report detailing his illness, coordinated with several doctors’ offices to have all his records forwarded, and within a month, we were on our way from our home in Texas to Minnesota….
Read the full story of Nick’s experience at Mayo Clinic here.
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Thank you from the bottom of my heart for the up to date information. I love your blog and have accessed relevant, current info on Melissa T. Shultz and about the HBO series on ALS. (My dad died from it several years ago. I don’t get tested for fear of no cure and the knowledge of impending death could destroy my zest for life. Please God they will find a cure though too late for my daddy.) I have a pitch with Melissa on Friday and because of you have been able to find the first information in a two hour search that unlocked the flow of more info than I could ever have dreamed of. Thanks.
My wife is afflicted with something that sounds exactly like what Melissa Schultz’s son had. The similarity of symptoms is uncanny. Can you forward this note to her. It would be very helpful to us if we knew where to go and what to do. Over the last 5 months we have been to 12 different doctors with none of them coming up with a valid diagnosis.
Thanks
Don