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Living with Sclerosing Mesenteritis presents a multitude of symptoms that can be very troubling. But as we learn about the disease, we also learn that we have choices that we can make that will help us tremendously as we continue to live life, and live it abundantly.
I hope that in my presentation you will learn – as I have – that even though we face challenges from day to day, there is a great deal of “Life to be Lived” and enjoyed!
Currently my life is very full and complete living with Sclerosing Mesenteritis, and I want yours to be too!
I am very grateful to the Mayo Clinic for their part in my wonderful success story.
It is my sincerest hope, that this too, will be your gift!
CarolB
Hi I have just found this article about Sclerosing Mesenteritis.
My Sister who is 72yrs old suffers from this dreadful disease she lives in southern Ireland and has got very little information about this condition it is believed she is the only person in Ireland with this she is very frightened.Would you please be able to put her in touch with someone else who has this dreadful diaease
many thanks
Geraldine
I have just been diagnoised with Sclerosing Mesenteritis, still not sure exactly what this is but am learning. My doctor was not familiar with this and this is his first case. I have been started on steroid treatment and if there is no results in 2 weeks, I have decided to contact the Mayo clinic for a second opinion. This is scary since I have 4 children and a very active life with them.
I was diagnosed with Sclerosing Mesenteritis in 2005. I was examined by several Doctors in my area but none knew what to treat me with. I went to Mayo Clinic in Jacksonville, Florida. I must say how kind and caring all the Doctors were who saw me. (It is very frightening to have a rare condition that no one knows how to treat.) I was treated with steroids for about six months and also another medicine called colchicine. I am still on colchicine. My primary care Docotor checks my mass once a year with a CT scan. It is staying the same. I do still have a minor amount of pain but I can live with it. My life is good. I would love to hear from others with this condition, though I know there are not many of us around.
Claudine, please visit our patient to patient community. You may be able to connect with others there that have this condition. http://connect.mayoclinic.org/
Hi,
I have been having CT Scans-MRI-numerous test to find out what is a mass found in my small intestines since July of this year 2011.I was diagnosed as having carcinoid tumors which we thought it was cancer.I was so very scared.When they tried to do a biopsy on the 3 tumors I had,it would not let the needle through to get it,so surgery was decided on to remove the mass to have it biopsied.Sclerosing mesenteritis is what I have.I am recovering right now from my surgery which I had done at MD Anderson Cancer Hospital in Houston,Texas with Dr.Paul Mansfield.
Please feel free to contact me for further information if I can help anyone.
Dear Dianna, thank you for sharing your story with us and offering to be a resource for other people who might need some additional help. Hopefully, your recovery is going well and you are feeling better and stronger each day. You may want to take a look at Mayo Clinic’s online health community which connects people with others diagnosed with similar problems and/or provides health information for many different types of health issues. Thanks again.