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Carla Huelsmann was diagnosed with epilepsy when she was 2 years old. Throughout her childhood and early adult years, she experienced mainly petit mal seizures. She continued through life, adjusting to her disease as needed. Once Huelsmann welcomed her daughter, the hormone levels in her body changed, making controlling her seizures much more difficult.
Huelsmann decided it was time to visit Mayo Clinic. Neurologists were able to pinpoint the seizures to one area of her brain, and it was likely that surgery could correct the problem. Since the day a Mayo Clinic surgeon removed scar tissue from the left temporal lobe of her brain, Huelsmann has been seizure-free.
“The years since surgery have been the best for me,” she says. “I feel like a new person. The freedom from having seizures has allowed me to live my life to the fullest.”
For an additional interview with Carla Huelsmann on the “Conversation with Lee Presser” cable television show, please visit: http://www.youtube.com/watch?v=iHdgKL-0vWA.
A great testimony Carla. My 10 year old son had a very similar situation with seizures. We went through some very difficult times trying to find resolutions in Boston. Through some networking we found about the Mayo Clinic in MN. We were at our end of the rope in Boston, so we made the trip out there for testing, then returned a few months later for my son’s brain surgery. All I can say is that to us, from day 1, from the doorman to the surgeon, the Mayo Clinic was like heaven on earth. It’s been a year this month that my son had surgery and he remains seizure free. Thank you for sharing your story.
Thanks for sharing this comment. If you are interested in elaborating for a separate blogpost, please submit the text to socialmediacenter@mayo.edu and indicate “Sharing Mayo Clinic” in the subject line. Thanks again!
My 17 year old son had his first sizure at age 3. He also has CP. His seizures were controlled up until Middle School, then woresening in High School. We finally went to the Mayo Clinic in Rochester this past spring. With surgery to follow in August. So far so good. He hasn’t come off the meds yet – but we are hopeful. The experiece was wonderful at the Mayo Clinic. I would reccomend this place to anyone. I am in Tennessee.
Thanks for sharing this story! If you are interested in elaborating for a separate blogpost, please submit the text to socialmediacenter@mayo.edu and indicate “Sharing Mayo Clinic” in the subject line. We would then be in contact with you. Thanks again!
My daughter started having seizures at one year old & they continue throughout her childhood & young adult at 22 years old she had left temporal lobe surgery & has been seizure free for 3 years in November.
Her surgery was a IU Hospital in Indianapolis the doctors & surgeon were awesome. Now she is driving, a volunteer for the epilepsy foundation of Indiana, Angels for Epilepsy & leads a local epilepsy support group. Thanking God for using her to help others.
I’ve had petit mal epilepsy since I was 13. I’m now almost 26. I take 300 mg of Topamax a day and have been seizure free about 3 years. Would love to get more information about this. It really would s
I have a sister living in Uganda. She’s 29 years old, and she has had seizures since she was like 12 years old. I am looking for a way for her to get medical treatment, but I can’t so far, I haven’t found anything. Does anyone know a place I can go to get her medical attention? I would love to bring her to the US, and to the Mayo Clinic, but I am not sure I can afford it. Does anyone know any possible solution (for example a clinic or hospital in Uganda or somewhere in Africa — would prefer because of cost) to this? I am a U.S. citizen, but still don’t have the financials to cover for such an operation. Any advice? I really need help in this as her condition is worsening. The last time she had a seizure, it was so bad that she had to receive special treatment for her space because of all the injuries from the seizure.
Thanks,
Isma