Sharing Mayo Clinic

Stories from patients, family, friends and Mayo Clinic staff

Archive for August 31st, 2012

August 31st, 2012

Any Parent’s Worst Nightmare

By Makala Arce MakalaJohnson

A picture of baby Madison

When my husband and I found out we were going to have a baby, we were so excited. Little did we know of the journey baby Madison would take us on, and little did we know of the personal tragedy that would ensue following such a typically joyful time. Madison was a patient at St. Mary’s Hospital and Mayo Clinic intermittently during her life. We were so impressed by all the caring staff we encountered there. They all took such great care of our daughter and treated her like their own child. We could not have asked for better care.

Read the rest of this entry »

View full entry · Comment on this

Tags: ammonia level, Baby, carbamyl phosphate synthetase, CPS, dialysis, liver, Madison, Neurology & Neurosurgery, NICU, PICU, St. Marys Hospital, urea cycle defect disorder

Contact Us · Privacy Policy