Sharing Mayo Clinic

Stories from patients, family, friends and Mayo Clinic staff

April 24th, 2017

Mayo Clinic Mentors Build Confidence in Young Technovation Participants

By SharingMayoClinic SharingMayoClinic

Mayo Clinic tech professionals guide teams of girls as they work to solve real-world problems using innovative technology.

From left to right are Julia-Rose Anderson and Maren Mader — both of Center for Innovation — and Zulbiye Jorgensen, Center for Connected Care.

When Zulbiye Jorgensen, a project manager in Mayo Clinic's Center for Connected Care, began mentoring a team of Byron, Minnesota, high school girls in 2016 as part of the international Technovation Challenge, she asked the girls what careers they were considering.

"Every single one of them said they wanted to do something in medical," she says. "It's a no-brainer with Mayo Clinic right there."

But the girls' sights were set on different employment options by the end of the program. The challenge invites teams of middle and high school girls to identify a community need, develop a mobile app to meet that need, devise a business plan to launch the project, and create a video pitch. It had the intended effect of opening the students' eyes to opportunities in tech careers.

"One of the four decided she was going to be doing something in design, and the other girls said, 'Wait a minute, I could actually have my own business and develop a product, and make an impact in the community,'" Jorgensen says. The team she mentored, which included her daughter, Maia Jorgensen, calls itself Volunteerium.

Opening minds

Brenna Hartman, one of Volunteerium's members and a junior in high school, says she had always been determined to follow her parents' path and become a physician. But after participating in the Technovation Challenge, during which she and her teammates created an app that connects volunteers seeking opportunities with organizations that need help, Hartman is considering other possibilities.

"I've been thinking about careers where I could tie in both health care and this type of computer engineering to become a biomedical engineer," says Hartman, who knew nothing about computer science prior to Technovation.


"We're trying to catch girls in middle school and high school, while they are still receptive, to show them they're good at this." — Virginia McCright


Opening the girls' minds to their potential in computer and technology-based fields is the aim of the challenge, which was established in 2010 and gives teams the chance to compete to win a $10,000 award to fund their product. This year, 16 Mayo Clinic staff members are mentoring Rochester-area teams through the challenge, which runs through the end of July and requires a time commitment of more than 50 hours.

"We're trying to catch girls in middle school and high school, while they are still receptive, to show them they're good at this," says Virginia McCright, who works in Mayo Clinic's Department of Information Technology. She helped bring the program to Mayo Clinic three years ago. "Computer science is a good career, and there are so many girls walking away from it."

Changing perceptions

Across the country, more women than men earn bachelor's degrees, but the number who pursue degrees in computer science is still comparatively low. Just 16 percent attained computer science degrees in 2015, according to federal data.

"In school in my first programming class, I was the only girl, and that was in 2003," says Technovation mentor Maren Mader, who works in Mayo Clinic's Center for Innovation as an analyst/programmer. "When I first started my career, it really felt that being young and female meant you had to prove yourself a little more. It took a lot of confidence to stand up for myself, which I didn't have at first."

According to Technovation, 26 percent of its participants who go to college major in computer science, which is 65 times higher than the national rate of freshmen college women majoring in computer science. Working alongside teams of girls, mentors help change perceptions that computer science lacks creativity or is better suited for boys.


"I think it comes down to showing the girls that they can have some empowerment and some control in the world." — Julia-Rose Anderson


"There has never been a point where women were not capable, but there's a question of desire and motivation and confidence," Mader says. "I almost didn't go into this field, because I didn't think it would be very rewarding. I thought it was just going to be data entry, which isn't something I have a passion for. I didn't realize how much creativity, how much problem-solving, and how many puzzles there were. I think Technovation is trying to show people that."

The program helps girls understand that if they can't solve a problem, it's OK to try again or try something completely different, says Mader, who mentored a team of high school and middle school students in 2016.

Technovation emphasizes that the girls come up with ideas for their projects, which spurs their creativity, says Technovation mentor Julia-Rose Anderson of Mayo's Center for Innovation. "The girls own their projects, and it's really about helping them figure out how to find the solution themselves rather than showing them the answer or doing it for them."

Sometimes surprising, always gratifying

For the mentors, it's not always easy to let the girls solve their own problems.

"The toughest part for me was to not tell them what they needed to do, but to guide them to the solution," says Jorgensen. "And a lot of times, it wasn't the way I would have done it, so that was surprising."

Witnessing this growth in the girls, say the mentors, is one of the highlights of their involvement in Technovation.

"The thing that has continued to stick out and has hooked me on the program is to see their confidence grow and the reaction on their faces when they put their first piece of code together and activate it on their mobile device," says Anderson, who has been involved with Technovation for three years. "I think it comes down to showing the girls that they can have some empowerment and some control in the world."


"It's a lot of hard work, and you have to be dedicated, but the payoff is amazing." — Brenna Hartman


That sense of purpose has inspired the members of Jorgensen's team to take their product, which, like their team name, is called Volunteerium, beyond the scope of the challenge and begin marketing it in the community. Although the Volunteerium app is not available commercially yet, team members hope to secure investors and begin offering the product sometime in 2017.

"The girls had never even played with the idea that they could build an app," says Jorgensen. "But they not only came up with an idea, they had to touch technology to build something and had to get out into the community to sell that idea and take the criticism."

Jorgensen says these are experiences that no classroom setting can duplicate yet are vital to success in the real world.

"It's a lot of hard work, and you have to be dedicated, but the payoff is amazing," Hartman says. "It has prepared me to graduate high school and go on to college, and to really push myself to better the community and hopefully extend our app to better the world."


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Tags: Center for Innovation

April 21st, 2017

Patience and Persistence Propel Patient Through Double-Lung Transplant

By SharingMayoClinic SharingMayoClinic

A rare genetic disorder, Hermansky-Pudlak syndrome, triggered a rapid decline in Steve Shank's lung health. Expert care at Mayo Clinic that eventually led to a double-lung transplant put him on the road to recovery.

Steve Shank knows what it's like to face an uphill climb. Despite being legally blind and affected by albinism, he has been an avid bicyclist for years, competing in 100-mile rides on the rolling hills of Iowa. The arduous contests challenged Steve physically and mentally, giving the Iowa City native an ability to endure difficult situations.

Beginning in 2015, that endurance was put to the test — one that tried every ounce of strength Steve had. In the fall of that year, he discovered his lungs were failing due to the same mutated gene that caused his blindness and albinism. His only chance of survival was a double-lung transplant. [...]

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Tags: Dr Hiroshi Sekiguchi, Hermansky-Pudlak syndrome, Lung Transplant Program, Pulmonary and Critical Care Medicine

April 18th, 2017

Hyperbaric Oxygen Therapy Helps Heal a Veteran's Wounds

By SharingMayoClinic SharingMayoClinic

Fritz Kruger was helped by hyperbaric oxygen therapy. Fritz Kruger of Hayward, Wisconsin, wondered how breathing pure oxygen while enclosed in a pressurized tube could heal his body. Fritz, 56, suffered from side effects of radiation therapy for prostate cancer when he was referred for hyperbaric oxygen therapy in fall 2016.

A U.S. Air Force veteran who served from 1986 to 1995, including in Operations Desert Shield and Desert Storm, Fritz was treated for cancer at the Minneapolis Veterans Affairs Health Care System. He had his prostate removed in 2012, followed by radiation treatments. As of August 2016, Fritz was showing no signs of cancer, but the radiation had taken a toll on his body.

"I had blood in my urine," says Fritz, who also was feeling other painful effects. "There was so much scar tissue that they couldn't find the opening from my kidneys into my bladder."

Fritz's VA doctor recommended hyperbaric oxygen therapy. A search of hyperbaric facilities within reach of Fritz's home led him to Mayo Clinic Health System in Eau Claire, Wisconsin. [...]

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Tags: Cystitis, Dr James Banich, Hyperbaric Oxygen Therapy, Mayo Clinic Health System, wound care

April 13th, 2017

Keen Expertise Helps Infant Survive Rare, Life-Threatening Brain Tumor

By SharingMayoClinic SharingMayoClinic

Quick diagnosis and expert surgery to remove a brain tumor preserve a baby girl's life and put her on the path to a bright future.

To the delight of everyone who knows 3-year-old Rayna Speary, her head is perfectly round and smooth and average size.

Given that the youngster was diagnosed and treated for an extremely rare brain tumor that caused her head to balloon in size as a 4-month-old, and that she underwent a dramatic surgery at Mayo Clinic to remove a substantial growth that occupied nearly half of her brain space, a perfect aesthetic of her head was not guaranteed. In fact, much about Rayna's development — including her very survival — wasn't assured. [...]

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Tags: Child and Adolescent Neurology, Dr David Daniels, Family Medicine, Neurology and Neurosurgery

April 11th, 2017

Cancer Care Inspires Kim DeBolt to Join the Mayo Clinic Team

By SharingMayoClinic SharingMayoClinic

For more than a decade, leukemia has been part of Kim DeBolt's life. Although the diagnosis brought with it dozens of chemotherapy sessions and two stem cell transplants, her care at Mayo Clinic also put her on the path to a fulfilling career.

It was a quiet, rainy morning in 2002 at the Gift of Life Transplant House in Rochester, Minnesota. Kim DeBolt was staying at the hospitality house while recovering from a stem cell transplant at Mayo Clinic to treat acute myelogenous leukemia. Family members were often with her at the house, but Kim was alone that day, and she felt blue. Gazing out her window, she saw on the sidewalk a smartly dressed woman, briefcase in hand, holding an umbrella, heading downtown.

"As I watched her walk by, I thought, 'I want to do that, too. I want to have a normal day, get up in the morning and walk to work. And I want to work for Mayo Clinic,'" Kim says. "I never forgot that moment. I kept it in the back of my mind for a long time." [...]

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Tags: acute myelogenous leukemia, Dr Mark Litzow, Mayo Clinic Cancer Center, Stem Cell Transplant

April 7th, 2017

After a Liver Transplant, Financial Adviser Turns to Helping Others

By SharingMayoClinic SharingMayoClinic

Severe liver disease led to a life-saving transplant for Terrance McMahon. Now he's using that experience to help others through the transplant process.

Owning a successful financial planning firm for 20 years taught Terrance McMahon to plan for the future and for the unexpected. On May 26, 2016, all those years of planning became critical for Terrance.

That day, heart palpitations sent him to a local hospital in Manchester, New Hampshire, where he lived. Although he thought he was having a heart attack, he admits later that he hadn't felt well for the previous six months.

"My eyes were bloodshot," Terrance says. "I was jaundiced, and I had bruises."

Blood tests at the emergency room indicated Terrance had severely deteriorated liver function.

"The doctor said I could die that night," Terrance says. "I went from being on top of the world to being told, 'You might not make it.'"

[...]

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Tags: Dr Andrew Keaveny, Dr C Burcin Taner, Liver Transplant Program, Mayo Clinic's Florida campus

April 6th, 2017

Disc Replacement Keeps Darrell Deutz Behind the Lens

By SharingMayoClinic SharingMayoClinic

With severe neck pain limiting his career as a photographer, Darrell Deutz knew he needed a long-term solution. He found it at Mayo Clinic, where minimally invasive spine surgery fixed the problem and allowed him to get back to business.

As a talented wedding photographer, the pain of cervical stenosis with a herniated disc left Darrell Deutz, age 59, searching for solutions.

"I've photographed over a thousand weddings in my life," says Darrell, who owns his own studio based in Fargo, North Dakota. "A lot of photographers don't like the pressure. There is no second chance, so you have to be confident. You can't make any mistakes. I like the challenge."

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Tags: Dr Mohamad Bydon, Dr Rodolfo Savica, Neurology and Neurosurgery

April 5th, 2017

3D Printing Paves the Way for Precision Surgeries

By SharingMayoClinic SharingMayoClinic

Using advanced 3D models to prepare for complex surgeries helps Mayo Clinic surgeons precisely tailor treatment to individual patients and their unique needs.

The surgical teams assembled to operate on Mayo Clinic's most complex patients lately have begun to consist of more than living, breathing members. The new recruits are usually small enough to hold in your hand, and they don't say a word. But the information conveyed by these 3D anatomical printed models is helping surgeons plan and navigate the trickiest of procedures.

In late 2016, Mayo Clinic thoracic surgeon Mark Allen, M.D. was part of a surgical team that used a 3D printed model to help them prepare to remove a rare, intrusive pancoast tumor. The tumor had grown in the chest of a patient, between his ribs and among the vessels just above his lungs.

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Tags: 3D printing, Dr Jane Matsumoto, Dr Basel Sharaf, Dr Jonathan Morris, Dr Mark Allen, Dr Uldis Bite, Plastic and Reconstructive Surgery, Radiology

March 31st, 2017

Friend's Generosity and Successful Transplant Give Maikki Nekton a New Way of Looking at the World

By SharingMayoClinic SharingMayoClinic

Diagnosed with cancer of the bile ducts, Maikki Nekton needed a liver transplant. When her friend, Jenifer DeMattia, stepped up to be the donor, it changed both their lives.

Maikki Nekton was 32 years old when she had a life-saving liver transplant, thanks to her good friend, Jenifer DeMattia, who donated a portion of her own liver to Maikki.

Prior to the transplant, Maikki worked as a clinical social worker in the Maryland school system and for nonprofit organizations. Jenifer was her co-worker, and they became fast friends. Long-distance running was a shared passion, with the two women participating in 10K races and half-marathons whenever possible.

In April 2014, while training, Maikki began experiencing pain in her right hip. It was diagnosed as a stress fracture, which doctors said was rare for someone so young. [...]

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Tags: cholangiocarcinoma, Dr Charles Rosen, Liver Transplant Program, Living donor transplant, Primary Sclerosing Cholangitis

March 30th, 2017

Minimally Invasive Polyp Removal Helps Prevent Colon Cancer

By SharingMayoClinic SharingMayoClinic

Faced with the prospect of having part of her colon removed to prevent cancer, Rosa Isern turned to Mayo Clinic. Doctors there offered a better alternative. They used a minimally invasive procedure to remove the precancerous polyp without surgery, significantly reducing Rosa's cancer risk.

For years, Rosa Isern has thoroughly enjoyed her job with the Army and Air Force Exchange Service, where soldiers, airmen and their families purchase goods and services. Her work has taken her around the world on several tours overseas, including stints in Iraq, Afghanistan, Greenland and Djibouti.

In 2015, however, Rosa's future became uncertain when she learned she had a large colon polyp that was at risk to become cancerous. Doctors thought they might need to remove part of her colon. But thanks to a minimally invasive procedure available at Mayo Clinic's Florida campus, Rosa was able to have the threatening polyp successfully removed without surgery. That allowed her to get back to doing the work she loves. [...]

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Tags: colon cancer, Dr Michael Wallace, Endoscopic mucosal resection, Mayo Clinic Cancer Center, Mayo Clinic's Florida campus, MayoClinicFL

March 27th, 2017

Thanks to Mayo Clinic, Nashville 'BBQ King' is Able to Enjoy His Own Brisket and Secret Sauce

By SharingMayoClinic SharingMayoClinic

Treatment for tonsillar cancer left Jack Cawthon unable to swallow properly. But using a self-care technique he learned at Mayo Clinic, Jack is now back to relishing the foods he loves.

Jack Cawthon unabashedly brags about the secret sauce that is a hallmark of his renowned barbeque restaurant in Nashville, Tennesse, Jack's Bar-B-Que, where tourists and locals line up for Texas brisket and Tennessee pork shoulder.

The iconic sauce remains a family secret and a vital part of the landmark restaurant located on the honkytonk strip on lower Broadway in downtown Nashville. These days, however, the Barbeque King is a fan of a whole different kind of secret sauce.

[...]

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Tags: Dr David Fleischer, Gastroenterology and Hepatology, Lori Goette, Robert Spratley, Tonsillar cancer

March 24th, 2017

Racing Ahead to a New Career After a Brain Injury

By SharingMayoClinic SharingMayoClinic

Under the watchful eye of Mayo Clinic’s neurocritical care team, Mike Short successfully recovered from a brain injury and, as a result, he’s charting a new course for his future.

Just four months after being in a coma, Mike Short was crawling through tunnels, jumping over fiery logs, and scaling walls as part of a 5K race known as a "rugged maniac." The Georgia native owes his ability to participate in the race to the neurocritical care team at Mayo Clinic that helped him recover from a brain injury he suffered shortly after his 50th birthday.

Diagnosed with a seizure disorder in childhood, Mike had had only a handful of grand mal seizures in his life. But on April 9, 2016, while visiting a friend in Blackshear, Georgia, he had another. It was his first in 10 years. The seizure caused Mike to fall and hit his head. He was transported to a local hospital where he had another seizure.

“I aspirated everything into my lungs and passed out due to lack of oxygen,” Mike recalls being told.

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Tags: Dr Michael Pizzi, Dr W David Freeman, Epilepsy, Neurocritical Care, Neurology and Neurosurgery, MayoClinicFL, Mike Short

March 23rd, 2017

Dylan Walling Survives Crash and Exceeds Expectations in Recovery

By SharingMayoClinic SharingMayoClinic

Severe injuries from a motorcycle crash left Dylan Walling fighting for his life. But a care team at Mayo Clinic Health System in Eau Claire, Wisconsin, put the 21-year-old on the road to recovery.

As much as she’d like to forget Sept. 15, 2016, it's a day Julie George will never be able to erase from her memory. That day, the Eau Claire, Wisconsin, woman’s 21-year-old son, Dylan Walling, was riding his motorcycle on a highway en route to his grandmother’s house when the unthinkable occurred.

A slow-moving manure spreader had caused a traffic backup. Dylan passed three cars and then collided with the farm vehicle as it began to turn left into a field. Although he was wearing a helmet, it wasn’t enough to protect him. The right side of Dylan’s body took the impact, leaving him seriously injured. His liver split in two. He had a kidney laceration, a head injury, a broken femur and forearm, an ankle injury and a collapsed lung. His foot was broken, his heel pad torn, and his toes were broken so badly they were almost severed.

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Tags: Dr David Ciresi, Dr James Banich, emergency medicine, Mayo Clinic Health System in Eau Claire, Plastic and Reconstructive Surgery

March 17th, 2017

Hearing Loss Spurs Doctor to Pay it Forward

By SharingMayoClinic SharingMayoClinic

Inspired by physicians who cared for her as a young child with hearing loss, Dr. Greta Stamper used that experience as a springboard to a career as an audiologist and a teacher for others following the same path.

Today, Greta Stamper, Au.D., Ph.D., is a doctor of audiology in the Department of Otorhinolaryngology at Mayo Clinic’s Florida campus. But her connection to Mayo Clinic dates all the way back to her childhood.

Growing up in Iowa, Dr. Stamper was introduced to Mayo at age 10, when her parents took her to see Michael Schultz, Au.D., an audiologist in the Mayo Clinic Health System. Diagnosed with a bilateral sensorineural hearing loss at age 8, she had made many visits to hearing health care professionals before she met Dr. Schultz. But he was different.

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Tags: audiology, Dr Greta Stamper, hearing loss, Mayo Clinic School of Health Sciences, otorhinolaryngology

March 15th, 2017

Keen Eye and Quick Action Save Rochester Mom From Life-Threatening Infection

By SharingMayoClinic SharingMayoClinic

When Heather Spaniol contracted the severe skin infection necrotizing fasciitis, an immediate and expert response was required to save her life. Since then, a blend of traditional and complementary therapies has bolstered her recovery.

When Heather Spaniol woke up from the first of many surgeries to rid her body of a life-threatening infection that was decimating her tissues, the gratitude she felt toward the Mayo Clinic surgeons who’d saved her life was so strong, she didn’t even register how much trauma her body had sustained.

“I think I was in shock. I was like, ‘You’re all so great! I just appreciate everything you’re doing. It’s fine,’” says Heather, a mother of two from Rochester, Minnesota. It was June 2014, and she'd lost a major nerve and most of her right shoulder muscle, in addition to epidermal tissue on the back and front of her right side, to necrotizing fasciitis.

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Tags: Cupping, Dr Daniel Price, Dr Mark Enzler, Hyperbaric oxygen chamber, Infectious Disease, Nectrotizing fasciitis, otolaryngology

March 13th, 2017

Heart Transplant Puts an Active Athlete Back in Action

By SharingMayoClinic SharingMayoClinic

Living with a chronic heart condition, Kraig Gresham knew he would eventually need surgery to replace a heart valve. He didn’t anticipate a heart transplant. But his care team at Mayo Clinic helped him through it, and today he’s back in the swing of an active life.

Kraig Gresham was 47 years old when he received his heart transplant, but his journey to that life-changing surgery began years earlier. Kraig was born with aortic stenosis — a birth defect that causes heart valves to narrow and obstruct blood flow. As a child he had heart problems as a result of his condition. Despite that, Kraig was able to lead an active lifestyle, participating in sports like soccer and racquetball from the time he was young.

As an adult, Kraig knew he would eventually need a valve replacement due to his chronic heart condition. But when he began having bronchitis-like symptoms in his 40s, he was referred to Mayo Clinic with a more immediate problem: he was experiencing heart failure.

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Tags: heart transplant, Left Ventricular Assist Device, Mayo Clinic Transplant Center, organ donation, ventricular assist device

March 7th, 2017

Teamwork Gives Maureen Connell an Accurate Diagnosis and Much-Needed Relief From Hydrocephalus

By SharingMayoClinic SharingMayoClinic

After enduring months of unexplained symptoms that left her unable to walk, Maureen Connell found the answer to her puzzling medical condition at Mayo Clinic.

Barry Connell couldn’t be happier to have his wife of 53 years, Maureen, back.

Though the couple spent 16 years traveling cross-country after Barry retired as president of a manufacturing company in Connecticut, nothing prepared them for the difficult journey they would embark on when Maureen’s health began to decline rapidly in 2015.

For the first five months of that year, The Villages, Florida, resident noticed his normally lively wife wasn’t as alert as she used to be. She was also much slower to respond to situations. Then, on Mother’s Day, Maureen collapsed in the bathroom of the restaurant where their family was celebrating.

That incident led to months of debilitating symptoms for Maureen, along with a series of ineffective treatments. No one could explain what was happening to her. In desperation, the Connells turned to Mayo Clinic, where they were able to finally find the source of Maureen’s problem — hydrocephalus, a buildup of fluid in the brain.

“After struggling with this for three months, we got a preliminary diagnosis less than 24 hours after arriving at Mayo,” Barry says.  [...]

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Tags: Dr Betty Kim, hydrocephalus, neurosurgery, Transverse myelitis

March 2nd, 2017

Daughter's Persistence Leads to Discovery of a Life-Threatening Aortic Aneurysm

By SharingMayoClinic SharingMayoClinic

When Morgan Burke persuaded her father, Tony, to see a cardiologist at Mayo Clinic, she never imagined it would lead to heart surgery that would save his life.

Morgan Burke spent years urging her father, Tony Burke, to make a doctor's appointment. When Tony was 12 years old, he had open-heart surgery at Mayo Clinic to repair aortic stenosis. But as an adult, the 48-year-old avoided most medical care.

"I'm just that type. I don't go to the doctor ever — unless I'm dead," says the farmer from Plainview, Minnesota.

[...]

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Tags: Aortic Aneurysm, Cardiovascular Diseases, Dr Alberto Pochettino, Dr Heidi Connolly, Dr Joseph Maalouf

March 1st, 2017

After Years of Pain, a Clear Diagnosis Restores a Teen’s Life

By SharingMayoClinic SharingMayoClinic

Sanan Malkadjian came to Mayo Clinic after suffering for years from mysterious bouts of severe stomach pain. Her care team at Mayo was able to arrive at the right diagnosis and get her the treatment she needed.

— Written by Sanan Malkadjian

I was only 14 at the time. I would be ashamed of myself because of how often my stomach hurt. It came to a point where no one would believe the excruciating pain I was facing. This was pain unlike no other.

My doctors here in Michigan would blame one another. They told me it was my menstrual cycle, or I was stressing out too much, or even that I had too many bladder infections. Every single time, I was misdiagnosed.

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Tags: Clinical Genomics, Dr Magnus Halland, Familial Mediterranean Fever, gastroenterology

February 27th, 2017

Battling an Autoimmune Disorder Changes James Boddie’s Retirement Plans

By SharingMayoClinic SharingMayoClinic

A multidisciplinary team of experts at Mayo Clinic has come up with a unique way to treat sarcoidosis, an autoimmune disease that affects the heart. For James Boddie, that innovative approach has made a world of difference.

In April 2005, nine months after retiring from his job as assistant superintendent of Osseo School District in Maple Grove, Minnesota, James Boddie had a heart attack while riding his bike in Florida. When he arrived by helicopter at a local hospital in Bonita Springs, he was told he had 100 percent blockage in his arteries.

James had no history of heart disease — at least none that he knew of.

“They did a catheterization and implanted two stents, which saved my life,” he says. [...]

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Tags: Cardiovascular Diseases, Dr Leslie Cooper, sarcoidosis

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