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14 hours ago by @SharingMayoClinic · View  

Stimulating Activities After Back Surgery

Ronald Reimer, M,D., implanted a spinal cord stimulator in Paul Hesson’s back to help alleviate his pain.When he was 38, Paul Hesson was diagnosed with degenerative disc disease. Because of his chronic back pain, he was given medical disability from his job as a runway electrician at Cecil Field, which was just outside of Jacksonville, Florida.

“Back then, they said I had the back of a 75-year-old man,” says Paul, who is now 75.

As Paul got older, however, his pain increased and he had severe joint stiffness. He went to see several neurosurgeons in the Jacksonville area and received differing opinions with respect to surgery. Ultimately, he decided to use medications to manage his pain.

By 2014, the pain worsened to the point that it limited his day-to-day activities.

“The pain was like a fist that you squeeze and can’t let go of, and it started radiating down my legs,” recalls Paul. “I used to be able to golf and walk five miles a week. I used to go to the gym, and I couldn’t do that anymore.”

Paul didn’t want to take medication for the rest of his life. After another MRI, Paul was told that although the disease had progressed, a back fusion would not be the best option.

Instead, his doctor recommended that Paul look into having a spinal cord stimulator to manage the chronic pain. The device, which would be surgically implanted in his back, would deliver electrical pulses to help alleviate pain.

In early 2016, Paul met with Ronald Reimer, M.D., a neurosurgeon at Mayo Clinic’s campus in Jacksonville.

Mayo Clinic was one of the first medical centers in the world approved to implant a new MRI-compatible spinal cord stimulator device and Dr. Reimer felt Paul was a viable candidate.

“Dr. Reimer explained the procedure to me and told me this was the best option to reduce my pain,” says Paul, adding that Dr. Reimer was “very personable and friendly.”

On March 24, 2016, after a weeklong trial, Paul had the device implanted. He was the first person in north Florida and among the first 25 in the world to receive the new stimulator.

“Previously, many patients with chronic pain were precluded from having a spinal cord stimulator implanted if they needed MRIs to follow certain chronic conditions. One of the unique things about this device is that it’s the only full-body MRI compatible spinal cord stimulator without limitation,” says Dr. Reimer.

“This was critical for Paul since he could require subsequent MRIs to monitor new problems developing in his spine or any other health conditions that could arise,” he adds.

During the 60 to 90-minute surgery, two small incisions are made. The first is to accomplish minimal bone removal in the lower thoracic spine. This facilitates passage of the stimulator paddle in the epidural space. The second incision is made in the upper buttock and a small battery is placed to power and program the stimulator.

“Whenever Paul feels pain, he can utilize one of the various preset programs to eliminate pain and lead a fully active life,” says Dr. Reimer.

The device can also be reprogramed to alleviate pain in other areas of the body, including osteoarthritis of the hips or knees, for instance.

Within a few days of the procedure, Paul felt noticeably better.

“I can walk three miles a week now and go to the gym. My quality of life is better and I’m not dependent on pain medication,” says Paul. “You can’t go to a better hospital in Jacksonville than Mayo Clinic. You’re not rushed in or rushed out. They want to make sure you get the best care.”


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Nov 6, 2013 by @mayoclinic · View  

Life after C. difficile

Dianne Shea thought that the fevers, chills, vomiting, nausea and endless bouts of diarrhea from C. diff would take away her independence. But after a fecal transplant, she says, "My life began again."  

Diane Shea with her fan clubWritten by Dianne Shea

I've been a paraplegic and a Mayo Clinic patient for more than 10 years. My legs decided to stop working over a period of just a few short months due to a spinal tumor. So I didn't think I was a stranger to adversity. Then I met a nasty little bug they call C. difficile. The name is not ironic. At first I thought I had a very violent form of the flu with fevers, chills, vomiting, nausea and (the worst by far) countless, endless bouts of diarrhea.

My days were filled with nothing more than being assisted to the bathroom, cleaning up, getting back into bed, then starting all over again, weaker than before. I required around-the-clock care. I couldn't get dressed, could hardly eat anything, didn't have enough energy to do the smallest of tasks, and couldn't have any fun. Most importantly, I couldn't get through physical therapies for my legs.


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Bobbowden1 responded 1 day ago · View

I contracted c-diff 12 days after returning from Cleveland Clinic for mytral valve repair. I called my surgeons nurse who immediately diagnosed the symptoms as c-diff and advised I visit my local GP here in Aspen. My GP confirmed c-diff was present and started me on one round of antibiotics with no improvement. I was switched to a second, $2000/ten day course of a new antibiotic to no avail. By this time I was in [...]

Edited: 10/24/2016 @ 12:12am


sarahsnana53 responded 1 day ago · View

I know the cure.! I suffered from extreme C diff for a number of years.Night sweats, fever, fatigue, the loss of appetite and of course thediarrhea. I had all the antibiotics, diets, and home remedies that were outthere. I have the same story as you only I am a paraplegic and with eachepisode would have to spend weeks, which turned into months in Care unitsand hospitals. My life belonged to c-diff. Then my doctor at [...]

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Jun 6, 2014 by @susanashephard · View  

Coping with a Rare Disorder: Cronkhite-Canada Syndrome

2014-06-27David Hirschy of Prescott, Arizona, has worn many hats — from record producer to chef to silversmith. In fact, his love of food made him think something was wrong a few years ago when he lost his sense of taste. He began to have other symptoms, too, which led him to Mayo Clinic in Arizona where he was diagnosed with the extremely rare Cronkhite-Canada syndrome — so rare that there have been less than 500 cases reported in the past 50 years.

In the following video, David and his Mayo physicians, Lucinda Harris, M.D., gastroenterologist, and Giovanni De Petris, M.D., pathologist, share his story.




Ron Parkin responded 1 day ago · View

Like Mr. Hershey I was diagnosed with Cronkhite Canada Syndrome in July of this year. I am 59 years old and up until November of last year was very active and lead a very active lifestyle. I lost my ability to taste food in November of 2015 and along with that my appetite for food. Very quickly I started to loose weight. In November I weighed 240 lbs currently I weight 170 lbs. After persuading [...]

Edited: 10/23/2016 @ 3:38pm

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Tue, Sep 27 at 10:46am CDT by @SharingMayoClinic · View  

After Sinus Surgery at Age 82, Charles Metzler Is Breathing Easy


If you go looking for Charles Metzler, you’ll often find him out on the acreage he owns in the Rocky Mountain foothills near Casper, Wyoming. The 82-year-old spends his days tending his well-manicured lawn, caring for his troop of animals — ducks, rabbits, a pot-bellied pig named Mimi, and a miniature donkey named Haley — and working on projects to spruce up the property. He even acquired timbers from an old railway station that was being torn down and built a covered bridge over a stream on his land.

“I think I might have one of the only covered bridges in Wyoming,” says Charles. “Projects like that are fun. I like to stay busy, and I like to be active.”

For years, though, Charles’ activities were hampered by breathing problems. Chronic sinus trouble made breathing through his nose very difficult. He knew surgery might correct the problem, but he hesitated to go through with it.

“I’ve had problems with my nose ever since my high school days. I saw quite a few doctors, and they all informed me that I probably should have my nose operated on, so I would feel better,” Charles says. “My problem was that I was always scared of having the operation. Then I met Dr. [Erin] O’Brien. It was just the manner in which she explained the surgery to me — what would occur and the benefits I’d derive from it. Her manner relaxed me. After that, I wanted to have that operation.”  [...]

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kwh56 responded 2 days ago · View

I had the same thing done several years ago by Dr Kern. Im pretty sure he is retired by now, But what a difference the surgery made!!

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5 days ago by @SharingMayoClinic · View  

Living Donor to Kidney Recipient: 'I Feel Like the Winner in All This'

katiandnancy805The email from a parent at her school in May 2013 took Nancy Shaver, an elementary school principal, by surprise. It was from Kati Walker, mother of two, who was on a mission: to donate one of her kidneys to Nancy, who greatly needed one.

Kati's message announced, "I'm going to be tested to be a kidney donor." Nancy, in her characteristic unassuming manner, replied, "Oh, how nice for someone!" Kati quickly replied, "No, it's for you, silly!"

Kati, two decades younger than Nancy, knew Nancy only as the principal at her children’s school. Nancy knew Kati as a parent and active volunteer. But that email exchange launched a journey to a life-saving kidney transplant for Nancy and a bond between the two women that they attest will last a lifetime.  [...]

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5 days ago by @SharingMayoClinic · View  

Unique Treatment Option Cures Cushing Syndrome for Jessie Brown

Jessie Brown learned her mysterious symptoms were caused by Cushing syndrome. Retired elementary school teacher Jessie Brown takes time to enjoy the pleasures of daily life. She goes for long walks with her dogs, King Solomon and Baby Ruth. She spends time with her children and grandchildren who live near the farm where she and her husband, Tom, make their home in rural Marshall, Arkansas. She plans the holiday meals she’ll be making for her family, who are particularly looking forward to her much-loved turkey dressing at Thanksgiving.

This year, these ordinary enjoyments are especially meaningful, because for the last two years, Jessie couldn’t do any of them. Confined to bed much of that time with a constellation of mysterious symptoms that left her immobile and in pain, Jessie wasn’t sure she would ever be able to reclaim the busy, happy life she loved.

“My face was swollen; my legs were swollen. I kept falling down. My hair and nails were breaking off,” she says. “I had a lot of bad symptoms. I knew something was wrong. I went to doctor after doctor, but they all had a different opinion.”

After almost a year and a half, Jessie was diagnosed with Cushing syndrome. [...]

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Mon, Oct 17 at 4:46pm CDT by @SharingMayoClinic · View  

Diagnosis and Treatment of Chiari Malformation Spurs Nikki Prins to Reach Out to Others

Nikki Prins enjoying time outdoors.Oct. 23, 2015, is a date that Nikole Prins will always remember. It’s the day she finally learned the reason for the bizarre symptoms she had been dealing with for more than half her life. Nikki precisely recalls the time she heard the news. It was 1:24 in the afternoon when her doctor called with the results of an MRI she had the previous day.

“I was diagnosed with Chiari malformation,” says Nikki, who lives in Owatonna, Minnesota, and received care at Mayo Clinic Health System in Owatonna. “No one wants to be told at 21 that you have a brain malformation. I cried a lot.”

For years, Nikki had experienced a range of symptoms that included lightheadedness, fainting and extremities that tingled when she stood up, as well as migraines that got worse while she was standing. As a preteen, she was told she was having syncope episodes when she got lightheaded. Later, physicians made the diagnosis of postural orthostatic tachycardia syndrome. But neither diagnosis nor any treatment had an effect on her symptoms. [...]

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Feb 19, 2015 by @HoytFinnamore · View  

Breaking Away From Pain With the Help of 'The Scrambler'

KarenSafranek1000Participating in a clinical trial gave Karen Safranek a solution to her decade-long struggle with peripheral neuropathy 

Karen Safranek didn't take a worry-free step for 10 years. Severe peripheral neuropathy — a side effect of breast cancer treatment she received in 2002 — left her with constant burning, tingling, numbness and pain in both her feet.

Over time, Karen tried dozens of treatments to rid herself of the discomfort. Nothing worked. So in 2012 when she found out about a clinical research trial available at Mayo Clinic for people who had peripheral neuropathy after chemotherapy, she was interested, but not optimistic.

"I tried so many things. Anything a doctor recommended or heard about, or anything I heard about, I'd give it a try if I could," Karen says. "But years past, and the pain didn't get any better. By 2011, life was not good. I was analyzing my house to figure out where we could put a wheelchair ramp. At that time, I thought it wouldn't be much longer before I couldn't walk anymore."  [...]

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rosea responded Sun, Oct 16 at 2:02pm CDT · View

Hi Christa; Does scrambler work on hands and arms also. My pain is in legs and arms and feet and hands


rosea responded Sun, Oct 16 at 2:03pm CDT · View

Also is it covered by insurance

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Thu, Oct 13 at 11:50am CDT by @SharingMayoClinic · View  

After Motorcycle Crash, Surgical-Assistant-Turned-Patient Sees Hospital With New Eyes

After a serious motorcycle crash, Shari Callagahan gained a heightened appreciation for the comprehensive, compassionate health care provided by her employer, Mayo Clinic Health System in Eau Claire.As a first surgical assistant for 23 years with Mayo Clinic Health System, Shari Callaghan was trained to provide the utmost in care to her patients. But the 55-year-old resident of Chippewa Falls, Wisconsin, says she didn’t fully grasp the quality of care Mayo patients receive until she became one herself.

For 31 years, Shari had been an accident-free motorcycle rider. In September 2015, she was involved in a devastating crash. Shari may never fully know what happened that day — the traumatic brain injury she sustained despite wearing a helmet wiped away her memories. But she does recall an ever-present sense of support throughout the time she spent in the hospital at Mayo Clinic Health System in Eau Claire, Wisconsin.

“I have been on the other side and am thankful,” Shari says. [...]

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Sat, Oct 15 at 10:06am CDT by @SharingMayoClinic · View  

“Excited About the Future Because I Have A Future” — Finding an Answer Through Gene Sequencing

Brentney Simon receiving her associate's degree. For 22 years, South Carolina native Brentney Simon and her family thought she was living with a fatal mitochondrial disease.

From the time she was born, Brentney has faced a host of medical concerns. At first, her doctors didn’t think she would walk or talk. Brentney proved them wrong. But over the years, she struggled with respiratory difficulties and heart problems. She contracted pneumonia several times and required multiple hospitalizations. Her physicians found a severe curve in her spine.

Through it all, Brentney never stopped fighting, living her life as fully as possible, even though participating in activities that most children and teens take for granted was a struggle. Despite her challenges, Brentney kept up with her schooling and enrolled in college, determined to get a higher education and realize her goals for a career.

Recently, Brentney’s health took a turn for the worse, and it was suggested her organs were failing. She refused to give up. Instead, Brentney came to Mayo Clinic’s Florida campus and through and Mayo Clinic Center for Individualized Medicine, underwent whole-exome sequencing in search of a better explanation for her health problems.  [...]

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Tue, Oct 11 at 1:51pm CDT by @SharingMayoClinic · View  

Teen Finds a Positive Way Forward After a Brain Cancer Diagnosis

Diagnosed with a stage-four brain tumor, 13-year-old Connor Johnson is taking his treatment at Mayo Clinic in stride and looking forward to a future of helping others.

When he was born 13 years ago, Connor Johnson was a "miracle baby,’ according to his parents. Kathleen and Curtiss Johnson had struggled for years to become and stay pregnant. They had given up hope, when they discovered they were nearly four months along.

The miracle of Connor’s life took on new poignancy in the fall of 2015, when the young teen was diagnosed with an aggressive form of childhood brain cancer. Despite the seriousness of the tumor, an intensive treatment regimen at Mayo Clinic’s Rochester campus involving brain surgery and proton beam therapy, provided Connor and his family the promise of a brighter future.  [...]

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Jun 1, 2009 by @csmmayo · View  

"Music is oxygen for the soul"

When Mayo Clinic lung transplant patient Larry Rawdon heard the Ritz Chamber Players perform on the Florida campus, he was captivated. As a retired cellist who played on Broadway in shows such as Cats, he has a deep appreciation for the power of music and what it can do to lift a person’s spirits.

Cellist Larry Rowdan, a transplant patient at Mayo Clinic's Florida campus, perform's with Jacksonville's Ritz Chamber Players.

Cellist Larry Rowdan, a transplant patient at Mayo Clinic's Florida campus, performs with Jacksonville's Ritz Chamber Players.

“Music is oxygen for the soul,” says Rawdon. “It has a way of transporting the listener to a better place. For the period of time one is listening to a musical performance, the listener seemingly doesn’t have a care in the world. What better place than a clinic setting to offer this?”

Rawdon has often relied on music to take away the cares in his world over the years. In late 2005 he had a life-saving, single-lung transplant to treat idiopathic pulmonary fibrosis, a terminal disease of unknown cause. Two years later, he needed another transplant due to chronic rejection. In February 2008, he had a double-lung transplant at Mayo Clinic’s Florida campus.

Larry Rowdan.

Larry Rowdan.

During Rawdon’s time at Mayo, staff who knew he was a professional cellist often asked if he would play at the clinic some day. He said he would and hoped it might be with the Ritz Chamber Players. Through his music connections, Rawdon met Terrance Patterson, director of the Ritz Chamber Players, who invited him to perform at their next Mayo Clinic concert.

So on May 27, Rawdon joined two violinists, two violists and another cellist in Mayo Clinic’s Kinne Auditorium in a performance of Johannes Brahms’ String Sextet in B Flat Major, Op. 18. The music brought a standing ovation from the audience, many of whom were patients, staff and physicians of Mayo Clinic’s Transplant Center. For Rawdon, the performance was much more than beautiful music – it was an affirmation of survival and a celebration of life that brought visible emotional element to Mayo’s Humanities in Medicine program.

The Ritz Chamber Players regularly appear at Mayo’s monthly concerts, which are made possible by benefactor donations. Based in Jacksonville, the group is the nation’s first chamber music ensemble comprised solely of accomplished African-American musicians.

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owen responded Fri, May 13 at 11:14am CDT · View

This is an outstanding program and I would like to bring a similar program to my city of Ottawa Canada. I too play the harmonica. Would you please pass on my e-mail to Mr. Rawdon so I might connect with him to establish this venture in Canada?


Larry responded Tue, Oct 11 at 10:29am CDT · View

Hello, Owen. I am Larry Rawdon and I apologize for just now seeing your request at this late date. You are invited to write me at [email protected] . Please write Harmonica in the subject box of your email so that I don't automatically delete since I am not familiar with your email address. I will look forward to establishing an email dialogue with you about the harmonica program you might even have started by now? [...]

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Sat, Sep 24 at 8:29am CDT by @SharingMayoClinic · View  

Liver Transplant Allows Young Father to Be There for His Family

Thanks to a living-donor liver transplant at Mayo Clinic, Bryan Duncan overcame a life-threatening liver disease and has been able to return to life with his young family.

Bryan Duncan didn’t think twice about the lab tests he had as part of a routine medical checkup in the fall of 2014. A 29-year-old father of two small children, Bryan led a busy life, didn’t have any health problems, and felt fine.

When the test results came back, though, they showed enzyme levels in Bryan’s liver were higher than normal. This unexpected finding kicked off more than two years of extensive medical care. It brought Bryan from his hometown of Mountain View, Arkansas, to Mayo Clinic's Rochester campus, where he was diagnosed with a rare liver disease, and where he eventually received a life-saving living-donor liver transplant.

“The way my disease works, if I had waited for a deceased donor, I probably would have been too sick for a transplant,” Bryan says. “Being able to have a living-donor transplant opened up the opportunity for me to get the second chance I needed.” [...]

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Kavi responded Thu, Sep 29 at 3:39pm CDT · View

Dear Dr. Rosso I have had my Gamma- glutamyl tranferase and Alkaline phosphatase high since 2011, and it has been increasing constantly. I did many tests to find the cause of this values once we couldn't find it , the doctor told me to do a liver Biopsy, in 2015 and it said there is a high chance of being a sclerosing cholangitis. This disease doesn't have cure when it gets to complicated the only [...]

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Thu, Sep 29 at 7:20am CDT by @SharingMayoClinic · View  

A Male Mammogram Brings Relief, Life and Marketing Lessons

martyweintraug805aBy Marty Weintraub

Editor’s Note: Marty Weintraub, an entrepreneur, author, speaker and musician, came to Mayo Clinic in 2015 for a mammogram after noticing a lump on his chest. He wrote a compelling account of the experience on his blog, and gave us permission to repost his story. 

From a San Francisco truffle shop to an upscale St. Paul grocery store, I’ve been writing to share inspiration at the intersection of life experiences and my chosen profession, marketing. So it is with a keen eye, open heart and tuned ear I travel the world day-by-day, camera in hand.

Who would have thought we would unearth profound lessons of empathy, immediately transferable to life and career, following an unexpected health issue and resulting treks to the Mayo Clinic. The experience I am about to share will have an indelible impact on me as a man and a marketer.

Mayo Clinic is a shining city of healing and light. Each year more than a million precious human spirits find their way to Mayo for care. Patients flock from all 50 American states and 140+ countries, driven on a highly personal mission of body, soul and heart. The 6,600 staff physicians, scientists, residents and fellows across multiple campuses see most diagnoses over time.

Mayo helps to soothe nervous visitors with its international-class artistic aesthetic. Patients and care givers experience everything from Warhols to the carved mother-of-pearl box and book donated by King Hussein and Queen Noor of Jordan. Suspended from the Gonda Building great room ceiling looms a staggeringly beautiful, Chihuly glass installation. Beauty engulfs the visitor, easing fears and concerns – if even for a few minutes. [...]

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Sat, Sep 17 at 1:09pm CDT by @SharingMayoClinic · View  

Brothers Bond Over Kidney Disease, Transplant

The Berry Brother share more than blood after a kidney transplant. Scott Berry is one of five children. But he and his youngest sibling, David, share a very unique bond — a kidney, to be exact. On April 12, 2016, David gave his older brother a second chance at life by donating one of his kidneys to Scott for a transplant.  [...]

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Sat, Sep 17 at 12:36pm CDT by @SharingMayoClinic · View  

Artist Back at the Drawing Board After A Stroke

bobgessner805Shirley and Bob Gessner have weathered some tough times during their 56 years of marriage. But nothing could have prepared Shirley for the night of April 10, 2015, when she awoke at 3:30 a.m. to a thud — the sound of her husband falling out of bed.

“I asked him what was the matter, but Bob couldn’t talk. He couldn’t move, and I couldn’t get him up,” says Shirley about her husband, a former advertising executive and designer of the Pittsburgh Pirates and Pittsburgh Penguins logos. “I called 911 right away.”

The ambulance took Bob, 82, to the hospital closest to his home in St. Augustine, Florida, where doctors confirmed he was having a stroke.  [...]

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Sat, Sep 10 at 1:32pm CDT by @SharingMayoClinic · View  

Persevering Through Brain Cancer, Travis McGinnis Remains Upbeat and Optimistic

Travis McGinnis rings bell after cancer treatment. Travis McGinnis was just 30 years old when an insidious cancer was discovered in his brain. It had been growing there for some time, he says — his physicians estimated between five and 10 years. Had the stage-three oligoastrocytoma not been detected when it was, Travis would have likely lost his life. As it happened, thanks to care and treatment provided by neurologists and neurosurgeons at Mayo Clinic’s Rochester campus, the only solid thing the father of three lost to the cancer was a fist-sized piece of his brain.

While having cancer was something he never wanted, Travis says the experience gave him insights and gifts he would not have otherwise realized: deep appreciation for his family and friends, gratitude for the present, and faith in strangers who generously supported him.

“Sometimes I’ll sit and think about everything I’ve been through, and it moves me to tears,” Travis says. “I’m alive and better for it. I wish I never would’ve had to go through it, but at least it wasn’t for nothing.” [...]

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Fri, Sep 9 at 2:28pm CDT by @SharingMayoClinic · View  

Why I Walk: Alexandra Abreu-Figueroa

Alexandra Abreu Figueroa (right), pictured with her mother Lyana Figueroa-Soto, is inspired by the First Coast Heart Walk to improve her fitness and tackle a family struggle with weight.

Editor’s note: In this article, Alexandra Abreu-Figueroa, an intern in Public Affairs at Mayo Clinic's Florida campus, shares her story and discusses why she participates in the First Coast Heart Walk, an annual event sponsored by Mayo Clinic.

Growing up, I was always overweight. During my teenage years, in particular, I struggled — losing and gaining weight over and over again. I tried different diets, pills and exercises while battling bullying, depression and societal standards that said I should try to fix my body.

As an adult, I made the decision to have a gastric lap band inserted to help control my weight, but it still didn’t change my mindset.

Obesity is not out of the ordinary in my family nor in my culture. Most of my family members have had challenges with obesity at one point in their lives. And, according to the U.S. Centers for Disease Control, 42.5 percent of Latinos are overweight or obese. [...]

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Aug 10, 2014 by @iggeez1416 · View  

After three long years of unexplained symptoms and unresolved blood serology, my nuerologist suggested Mayo Clinic. It all began with a fender bender on my way home from work one sunny day. I was in stop and go traffic and could see my house from the stop light. Next thing I was aware of was paramedics pulling me out of my car and rushing me to the hospital. I had passed out. Upon follow up visits to numerous specialists, I was initially diagnosed with nuerocardiogenic syncope. I continued to have syncopal episodes and develop other symptoms with severe skin rashes, seizures and debilitating migraines. So much so that I had to retire from my job and stop driving. I went to specialists after specialists and even a very well respected highly regarded hospital. I was told time and time again to stop chasing a diagnosis. My family continued to watch my decline and my quality of life all but disappear. My blood panels continued to have flags and I was continually told I was showing false positives. What? I thought. Over and over again? It didn't make sense to me. I went to the only specialist that really believed I had a problem but couldn't figure out what was going on. I sat in front of him and cried like a baby begging him to tell me what to do next. He suggested Mayo Clinic. After consulting with my family and the referral from my nuerologist, I made my first journey from Georgia armed with a years worth of blood panel results, MRIs and MRAs, psych analysis (they kept telling me it was all in my head). The minute I walked through the door, I felt a sense of peace and confidence. It is difficult to describe but I will try. From my very first day, I experienced the organization and empathy of staff members. When I saw the Doctors, they were on time and engaged. They truly listened paid attention, asked questions and did everything they needed to do without rushing me out the door wondering what just happened. When I went to the next appointment an hour later, the doctor already had the bloodwork I had done that morning and had spoken to the doctor I had just seen. It was amazing. In two days, I had a diagnosis and course of treatment including my next set of appointments for other possible diagnosis. When you get diagnosed with multiple diseases or conditions like I was which is myasthenia gravis and lupus, it isn't a good feeling,but it is a relief that now I can begin treatments and educate myself on diet and live as healthy a life as I possibly can. I am forever grateful to Mayo Clinic and they truly are a team. While it isn't an easy life, I can now make it a quality life. Before Mayo Clinic I was having difficulty just getting out of bed and now, I get out of bed do chores, go out to eat, and do things I used to take for granted. The Mayo Clinic Team is the best there is.


Tgoss responded Thu, Sep 8 at 5:27pm CDT · View

I am looking for some good advice or how I can get my husband to the mayo clinic he has been throwing up for a year and half every morning and I have watched him deteriate slowly now he's vomiting blood and they still know nothing we have had test done the G.I. doctor is puzzled my husband is very young and went from working everyday to working one day a week to none we [...]

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Sep 11, 2014 by @pscotti · View  

Mayo Clinic Clinical Trial Helps Physician Take On Multiple Myeloma

Dr. Mike Mass undergoes treatment for multiple myeloma at Mayo Clinic in Florida.

When 69-year-old allergist and rheumatologist Mike Mass. M.D., was diagnosed with multiple myeloma in August 2013, he quickly realized that being the patient and trusting the advice of a fellow physician with expertise in a disease outside of his realm of expertise would be a challenge.

“I’ve always advocated open communications with my patients about their treatment options, as it’s important for the physician and patient to be on the same page,” says Dr. Mass. “Although I’m not a cancer expert, I know enough about the disease to ask lots of questions of my own oncologist on the best treatment options available. It was hard balancing the need to express my opinions without impeding my physician’s own expert medical judgment.”

Dr. Mass was in private practice in the Jacksonville, Florida, area for more than 30 years before going part-time and joining an allergy group practice in 2008. That’s where he worked until his diagnosis in 2013, when he finally decided to retire from practicing medicine. He had known he was at a greater risk for contracting multiple myeloma for many years because of a condition called monoclonal gammopathy of undetermined significance , or MGUS, which he was diagnosed with decades ago. MGUS is a condition in which an abnormal protein (M protein) is found in the blood. That increases the risk of developing multiple myeloma at some point in the patient’s life. Dr. Mass had no symptoms but found out several years ago after some blood work that his M protein levels were at the point where he now had “smoldering myeloma,” an early phase of this cancer condition. [...]

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hilda123 responded Sat, Sep 3 at 10:50am CDT · View

i'm 75 yrs.old was diagnosed with multiple myeloma jan 2014, been on velcade and dexamathasone for year and a half, than on revlamid and dexamathasone for almost a year,because my protein has.nt gone down and hemoglobin is low, both chemo is not working, so now i am being treated since august with kypolis and dexamathasone i would like to hear from other patient being treated with kypolis and how they are doing

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