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2 hours ago by @SharingMayoClinic · View  

Mayo Physician Is One of the First Proton Beam Patients in Arizona

Dr. Leslie Milde was one of the first proton beam therapy patients in Arizona. People often don't hear the phrase, "You are the most important person in my life today," especially from those other than family. However, Leslie Milde, M.D., has heard it often — from her patients. She is well aware of the significance of her role in the operating room, and the apprehension felt by patients about to undergo surgery.

Now the tables are turned, and as one of the first five patients undergoing proton beam therapy at the newly opened Mayo Clinic Building in Phoenix, Dr. Milde, former chair of Mayo's Department of Anesthesiology in Arizona, is relying on key people in her own life — the team of specialists treating her spinal meningioma, a condition where tumors arise from the membranes that surround the brain and spinal cord. [...]

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2 days ago by @SharingMayoClinic · View  

Limb Lengthening and Regeneration Clinic Offers Hope for Amarachi

Amarachi talks about her experience with Blount's disease. Just six months ago, every step for Amarachi Austin-Okoh was filled with pain. The 11-year-old from Nigeria had enough trouble walking. Things like running, playing tag or playing basketball seemed like a dream. But now they're things she can look forward to, thanks to a life-changing trip to Mayo Clinic.

Amarachi has a condition called Blount's disease. Her mother, Modesther Austin-Okoh, says the family discovered the condition with Amarachi was just two years old.

Todd Milbrandt, M.D., an orthopedic surgeon at Mayo Clinic Children's Center, describes Blount's disease as "a failure of the growth plate to grow on the inside of the knee, specifically, the top part of the tibia." In Amarachi's case, her disease progressed to the point where she had severely bowed legs.

"We wish we could have seen her walk and be like other children," her mother says. "We were always crying for her."  [...]

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Mon, May 23 at 8:07am CDT by @SharingMayoClinic · View  

Celebrating 40 Twice as Nice After Recovery From Surprising Stroke

Sherry Pinkstaff, Ph.D., enjoys time with family after a stroke.It was the Sunday after Thanksgiving, and despite having house guests, Sherry Pinkstaff, Ph.D., awoke at 6 a.m., just as she did every day, and began planning her morning run.

Sherry, then 39, ran daily. Exercise was important to her. After all, she’d made it her career. She was a professor of physical therapy at the University of North Florida in Jacksonville and a research collaborator at Mayo Clinic's Florida campus. She spends her days teaching students and patients about the power of exercise and its impact on cardiovascular health.

Climbing out of bed on this morning, though, she recalls feeling “off.” Although she initially shrugged off that feeling, she would quickly realize this was the first of several signs something more serious was in play.  [...]

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rcsofttech responded Mon, May 23 at 11:57pm CDT · View

thanks for sharing and making me aware. rc software technologies

Edited: 05/23/2016 @ 11:59pm

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Sat, May 21 at 11:25am CDT by @SharingMayoClinic · View  

Discerning Physician Turns to Mayo Clinic for Cancer Care

Dr. James Biles turned to Mayo Clinic after his cancer diagnosis.  Jim Biles, M.D., understands cancer treatment. A urologist who specializes in cancer surgery, he has spent his career focused on helping people receive the cancer care they need. So at age 72, when Dr. Biles received his own diagnosis of an aggressive type of cancer, he knew how critical it would be to get treatment from someone with experience and expertise.

"When I found out I had a bone tumor, I started hunting around to see who could do the surgery. It turned out that there are very few people in the world I would trust with it," he says. "Not many do it, and even fewer have the experience that Dr. Sim does. He is the kingpin."

Dr. Sim is Franklin Sim, M.D., an orthopedic surgeon at Mayo Clinic's Rochester, Minnesota, campus. After a consultation with Dr. Sim, Jim decided to go through with a complex surgery at Mayo to treat his cancer.

"Being a doctor, I was pretty picky about all the details being well managed," he says. "It was exceptional. I really couldn't have had a better experience."  [...]

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Thu, May 19 at 10:20pm CDT by @SharingMayoClinic · View  

Teacher Smelling the Roses Again Thanks to Minimally Invasive Heart Procedures

LucyLorden805For years, Lucy Lorden suffered from an irregular heartbeat and shortness of breath. But one April morning in 2014, the Ormond Beach, Florida, elementary school teacher was barely able to walk from the parking lot to her classroom.

Thinking she had pneumonia, Lucy, then 56, went to see her primary care doctor. “The doctor told me to go to the emergency room right away,” she recalls. “My heart was beating at 192 beats per minute.”

At the local hospital, doctors diagnosed Lucy with atrial fibrillation, a condition in which the upper heart chambers, the atria, beat irregularly.

Lucy visited a local cardiologist, who prescribed several medications to regulate her rapid heartbeat and her thyroid levels. He advised follow-up every three months and once she turned 60, blood thinners to prevent a stroke. Unfortunately, just a few months shy of her 57th birthday, she would need more than simple follow-up. [...]

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Mon, May 16 at 1:33pm CDT by @SharingMayoClinic · View  

Florida Chef Finds Expertise to Manage Rare Disease, Get His Life Back

Chef Stefan is back on his feet with help from Mayo Clinic.When 67-year-old Stefan Gyorkos of St. Augustine, Florida, noticed swelling in his feet several years ago, he didn't think much of it. After all, as chef at a local golf and country club, he is on his feet for hours at a time.

That seemingly innocent ailment, however, would eventually lead to a series of tests and ultimately a diagnosis of a rare disease known as amyloidosis for which he required a bone marrow transplant at Mayo Clinic's Florida campus.

Amyloidosis occurs when a substance called amyloid builds up in the organs. Amyloid is an abnormal protein that is usually produced in the bone marrow and can be deposited in any tissue or organ in the body. Severe amyloidosis can lead to life-threatening organ failure. While there's no cure for the disease, the symptoms often can be managed, reducing the production of amyloid protein.  [...]

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Fri, May 13 at 3:12pm CDT by @LeeAase · View  

Memories of Marlow Cowan

Marlow and Fran Cowan play the piano at Mayo Clinic. Marlow Cowan, whose playful piano duet in our Mayo Clinic atrium with his wife, Frances, became a YouTube sensation and led to national and international TV appearances, has passed away at age 97.

I got the news early yesterday in an email from the Cowans’ daughter, DeDe Shour:
One of the last questions a week ago my Dad asked me was, "Do you think there will be a piano in heaven I can play?" (Of course our Dad could never pass up a piano without playing it). I told him I was certain there was something similar to a piano but much more glorious and that I was sure he would be joining with the angels playing it for the Lord.

So if you happen to hear some rag-time music floating through the air, smile....cause it's just our dad playing the piano as he brings joy to those who have gone before him.
Mr. Cowan certainly brought joy to millions while he was here. So with DeDe’s permission, I want to share some memories of Marlow and also let you remember (or see for the first time) for yourself.  [...]

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Jun 1, 2009 by @csmmayo · View  

"Music is oxygen for the soul"

When Mayo Clinic lung transplant patient Larry Rawdon heard the Ritz Chamber Players perform on the Florida campus, he was captivated. As a retired cellist who played on Broadway in shows such as Cats, he has a deep appreciation for the power of music and what it can do to lift a person’s spirits.

Cellist Larry Rowdan, a transplant patient at Mayo Clinic's Florida campus, perform's with Jacksonville's Ritz Chamber Players.

Cellist Larry Rowdan, a transplant patient at Mayo Clinic's Florida campus, performs with Jacksonville's Ritz Chamber Players.

“Music is oxygen for the soul,” says Rawdon. “It has a way of transporting the listener to a better place. For the period of time one is listening to a musical performance, the listener seemingly doesn’t have a care in the world. What better place than a clinic setting to offer this?”

Rawdon has often relied on music to take away the cares in his world over the years. In late 2005 he had a life-saving, single-lung transplant to treat idiopathic pulmonary fibrosis, a terminal disease of unknown cause. Two years later, he needed another transplant due to chronic rejection. In February 2008, he had a double-lung transplant at Mayo Clinic’s Florida campus.

Larry Rowdan.

Larry Rowdan.

During Rawdon’s time at Mayo, staff who knew he was a professional cellist often asked if he would play at the clinic some day. He said he would and hoped it might be with the Ritz Chamber Players. Through his music connections, Rawdon met Terrance Patterson, director of the Ritz Chamber Players, who invited him to perform at their next Mayo Clinic concert.

So on May 27, Rawdon joined two violinists, two violists and another cellist in Mayo Clinic’s Kinne Auditorium in a performance of Johannes Brahms’ String Sextet in B Flat Major, Op. 18. The music brought a standing ovation from the audience, many of whom were patients, staff and physicians of Mayo Clinic’s Transplant Center. For Rawdon, the performance was much more than beautiful music – it was an affirmation of survival and a celebration of life that brought visible emotional element to Mayo’s Humanities in Medicine program.

The Ritz Chamber Players regularly appear at Mayo’s monthly concerts, which are made possible by benefactor donations. Based in Jacksonville, the group is the nation’s first chamber music ensemble comprised solely of accomplished African-American musicians.

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owen responded Fri, May 13 at 11:14am CDT · View

This is an outstanding program and I would like to bring a similar program to my city of Ottawa Canada. I too play the harmonica. Would you please pass on my e-mail to Mr. Rawdon so I might connect with him to establish this venture in Canada?

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Tue, May 10 at 2:37pm CDT by @SharingMayoClinic · View  

Love and Determination Help Brennan Get Back on His Feet in Time to Walk Down the Aisle

BrennanFarley805Before October 2015, Brennan Farley had never broken a bone in his body. That changed dramatically when a horrific vehicle accident landed the 30-year-old farm worker in Mayo Clinic Hospital, Saint Marys Campus, for two months.

Due to Brennan's extensive injuries, doctors were concerned he might not be able to walk again. But with the help of a supportive care team and the love and encouragement of his fiancée, Kayla, Brennan progressed enough in his recovery to go home in December 2015. And to walk down the aisle at the end of his wedding ceremony a month later, with a little help and with his new bride by his side.

"The people at Saint Marys really cared about me," Brennan says. "They want their work to be great, and it shows. It really shows." And he would certainly need their best efforts.  [...]

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Mon, May 9 at 9:14pm CDT by @SharingMayoClinic · View  

Simulation and Reality Meet to Find Ideal Surgical Approach for Florida Patient

Chad Thompson and Dr. John Casler discuss the results of recent surgery.

For six months, Chad Thompson slept sitting up to ease debilitating headaches caused by a tumor growing on a nerve in his head. Now, after a successful surgery at Mayo Clinic’s Florida campus in March, the 40-year-old Jacksonville resident is having conversations with friends and co-workers that he never expected.

“People keep asking, ‘When are you going to have that surgery,’” says Chad, a married father of three children and an executive at an aerospace company. “They’re shocked when I say, ‘I already had it,’ and I’m not sure they believe me.”

The reason for this response is that he has no visible scars from the operation, which his surgeon, John Casler, M.D., performed with help from the Anatomage “virtual dissection” machine in the J. Wayne and Delores Barr Weaver Simulation Center.  [...]

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Wed, Apr 13 at 1:13pm CDT by @SharingMayoClinic · View  

New Surgery for Scoliosis Keeps Teen Agile and Active


Camden Christopherson (second from left) with Stephen Cassivi, M.D., A. Noelle Larson, M.D., and Teresa Christopherson.

Camden Christopherson is an athlete: volleyball, basketball, softball, cross-country. She does them all. So when doctors told her, at age 13, that she had to wear a brace for 22 hours a day to combat scoliosis, and surgery to fuse her spine was likely in her future, Camden was devastated.

These treatments could help correct the severe spinal curve that had developed quickly during a growth spurt, her doctors said. But Camden didn't want to give up her flexibility and freedom of movement. And her mother, Teresa Christopherson, wasn't ready to accept that a brace and fusion surgery were her daughter's only choices.

"I wanted a second opinion," Teresa says. "I wasn't going to go forward based on one recommendation, so we went to Mayo."

At Mayo Clinic's campus in Rochester, Minnesota, mother and daughter met A. Noelle Larson, M.D., an orthopedic surgeon, who discussed another possibility with them: anterior vertebral body tethering, or VBT, a new surgery for scoliosis that doesn't involve fusing vertebrae together. It was just the answer they needed.  [...]

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lorin responded Sat, Apr 30 at 4:03pm CDT · View

Is this a possible for someone 50 of age?

Edited: 04/30/2016 @ 4:13pm

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barb sorensen

Jun 30, 2009 by @barb sorensen · View  

Mayo's Peregrine Falcons

I look forward to spring on the Mayo Clinic downtown campus in Rochester. The grass finally turns green after wintering under the snow, the flowers make their appearance and add an amazing burst of color to the campus, and the peregrine falcons return to their home atop of the Guggenheim Building. I enjoy watching the little fledglings turn from snowy white balls of fluff into adult falcons. This year, there are three fledglings to watch.


Thanks to a “falcon cam” that is fed live to the Mayo television system, visitors and staff are able to watch the falcons go about their daily life. A television with the channel set to the falcon cam can be found in the subway of the Mayo Building, next to the patient cafeteria. On occasion, I pass the TV on my way to and from meetings.

When I pass by early in the morning, the fledglings are frequently sitting at the edge of the nest looking for their mom to bring breakfast. Some mornings when I walk by mom has already finished her hunting expedition and is feeding her family.

As the days go by, the birds have less white fluff on their bodies and more of the look of an adult peregrine falcon. As I walked by the other morning (mid-June), I realized they are nearly full-grown. It won’t be long before they head out on their own and the nest will again be empty…until next spring.

On a side note: each year, Mayo asks people to submit names for the new falcons. This year, the names were announced on the day the baby birds were banded. The names are: Thunderbolt, Aeroslick and Taraja.

Barb Sorensen is a consultant in the Department of Public Affairs in Rochester.

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spothors responded Fri, Apr 22 at 4:14pm CDT · View


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Fri, Apr 22 at 9:13am CDT by @SharingMayoClinic · View  

Following Her Father's Last Words, Vivian Finds New Life Because of Mayo Clinic

VivianTsai805Vivian Tsai remembers the last words her father said to her: "See a doctor." He recognized her symptoms.

For years, puzzling symptoms and a troubling medical condition had stalked their family. Growing up in Taiwan, Vivian was athletic and seemed to be healthy. However, she began to lose strength in her early 30s and went to the doctor with her father, Paul. Vivian was told she had a heart condition. "But no one really explained the problem to me," she says.

At first, Vivian was able to dismiss the symptoms. She even competed in a triathlon at age 40. But as she watched another member of her family struggle with symptoms she recognized in herself, her own condition became harder to ignore.

Over time, Vivian's symptoms had taken hold of her life, affecting her daily activities. She was not able to talk for more than 30 seconds without losing breath. While eating dinner, Vivian would often have to lie down for half an hour before returning to her meal because she would become so tired and lightheaded. Vivian's fear of having arrhythmia attacks also hindered her social life.

"I was afraid to go out on my own even to take a simple walk in the park," she says. "I didn't dare do that by myself."  [...]

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Aug 15, 2014 by @iggeez1416 · View  

Mystery Solved – Diagnosis Moves Patient from Frustration to Peace of Mind and a Plan

Karen Gibson at Mayo Clinic with her husband. I want to share my story to possibly help another person and to hopefully help others who are still facing their own health unknowns.

I struggled for years with extreme fatigue, major skin problems, muscle weakness, escalating eye issues, and a host of other unexplained symptoms. I moved to Georgia with more and more symptoms. I developed relationships with new doctors and developed new symptoms – seizures and heart-related syncope. I went to see a neurologist, who began to run tests. In the meantime, I had regular quarterly blood panels by my regular physician, who upon reporting to me by phone noted no irregularities. I was told time and time again to stop chasing a diagnosis. My family continued to watch my decline.

After running numerous tests, my neurologist could only ascertain that I may have had some mini-strokes. My neurologist referred me to a major university hospital. After two visits, and being practically laughed out of the place, I began to have serious doubts about my symptoms and began to believe the many specialists and psychologists who told me it was emotional response.  [...]

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livalot responded Wed, Apr 6 at 4:58am CDT · View

Hi, I have been diagnosed with MG and RA. I had my thymus gland removed that had a benign tumor on it. I am now getting infusions. I also am in Georgia and have thought if things don't get better with my next infusion of getting referred to the Mayo Clinic. I go on Medicare in a few months and am not sure how that works. Did you go to Florida or Minnesota for help? [...]

Edited: 04/06/2016 @ 5:00am


cherishjames responded Mon, Apr 18 at 6:28am CDT · View

I was skeptical on purchasing that spell cause there are lots of scammed spell caster in the net. I took a bit on it. And thank God it did what it promised!It helped me heal the massive rift between me and my partner and finally convince him to give our relationship another chance. Thanks to that spell.?I want to recommend him to all of you that are having problems with your marriage and relationship please [...]

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Aug 5, 2015 by @HoytFinnamore · View  

Turning off the Tremors -- Deep Brain Stimulation Helps Patient Enjoy Little Things Again

Mary Daugherty is now able to enjoy the little things like flying a kite after a deep brain stimulation procedure to stop her tremor. Mary Daugherty just wanted to sit still. For nearly four decades, the 73-year-old experienced tremors in her hands, arms and head. In 2014, she decided to do something about it.

Mary’s journey began when she was in her mid-30s and started to notice a slight trembling in her upper extremities. “I thought I just got excited or nervous, scared or tired,” she says. “When others started remarking on my tremors, I decided to seek a medical explanation.”  [...]

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dsbrownowl responded Wed, Feb 24 at 7:28pm CDT · View

I am dealing with a trifecta, ET, RLS and Bipolar disorder. Even as I write this post I struggle with the mouse and key pad. My Dr. prescribed Propanol to help with side effects of my phyc. meds. Which can be violent. My great grandmother had tremors as she grew older (80 or 90) my onset was in my early twentys . I was sent to a neurologist, he said hold out your arms, then [...]

Edited: 02/24/2016 @ 7:30pm


taterbug responded Thu, Apr 14 at 5:34pm CDT · View

I was a police officer when my tremor became so bad I couldn't hide it any longer. It took a while and several meds before the tried and true primidone at a very high dose worked. Lots of headaches and dizziness in the beginning but now my body is accustomed to it and there are no side effects, except the obvious ... I don't shake anymore! When I retired, I decided to stop taking primidone [...]

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Dec 24, 2012 by @Margaret_Marie · View  

Relief for pain caused by Chiari type I malformation

Sean Murphy on the ski slopes

After surgery for a Chiari malformation, Sean Murphy is back to skiing and his other normal pastimes.

When Sean Murphy's chronic headaches set in, they first bothered him after physical exertion, then after a stressful day at work.

Within months, the headaches were constant, always localized in the back of his head. The pain became debilitating.

Murphy consulted his family doctor and was referred to a neurologist. His hometown physicians were stumped.

Murphy was referred to Mayo Clinic, where he was diagnosed with Chiari malformation type I, a rare condition in which the brain tissue at the back of the head protrudes into the spinal canal. The disorder causes a variety of neurological symptoms, but is treatable.

Mayo Clinic physicians initially sought to relieve Murphy's symptoms with medication, but as his health continued to worsen they decided surgery was his best option. [...]

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Gerriann responded Apr 9, 2015 · View

My son is 37---his story is almost identical to Sean's, but, unfortunately, though he had surgery 2 years ago at the Chiari Care Center in Denver, he still suffers debilitating headaches. He has been having 30-50 botox injections in his skull every 90 days for some relief. The last treatment does not seem to be working. Does Mayo have any further advice? Our son works as a construction superintendent/ has 4 children & a wonderful [...]


angelbrown2472 responded Tue, Apr 12 at 9:05am CDT · View

What was the mm measurement of your protrusion?

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Tue, Apr 12 at 7:58am CDT by @dolor63 · View  

Have chronic cluster headaches. 47 years. Any info on this exhsusting pain would be helpfull. Tried evrtything. Live in connecticut.

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Apr 20, 2010 by @csmmayo · View  

ESCP (Edie's Spinal Cord Problem)

I don't even know how to begin to tell this story, but I know I have to write down what has happened in my life over the past few years. It has been a roller coaster ride with new situations and events like never before.

Edie and Noble

Edie and Noble

In April 2005, while camping with my husband Noble and our dog Sam and cat JoJo at Lincoln Rock State Park, I had a weird vertigo experience which passed quickly but then some slight dizziness reoccurred off and on for about a year. After seeing several doctors I was diagnosed with an inner ear virus which they said would go away and it did.


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JILLY79 responded Aug 25, 2014 · View

What a great story... I'm so glad you had your true answer.I need to schedule an appointment at mayo clinic, as they are simply the best!! Peace to you and your hubby..


ron123 responded Mon, Apr 11 at 3:09pm CDT · View

This is a wonderful story about how God works. His mysterious ways. My son called last week to tell me he has been diagnosed with MS. After freaking out I logged onto this site to learn more. I'll be here quite often I'm sure. After a long series of tests and more tests they have him on Betaseron injections every other day. This will be a long process and I'm so glad I found this [...]

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Sun, Apr 10 at 8:18am CDT by @SharingMayoClinic · View  

Heart Transplant Opens Door to Leading a Full Life

TaraBrigham2-805For 33-year-old Tara Brigham of Jacksonville, Florida, living with a heart condition since birth wasn't something that was going to get in the way of living an active normal life. In fact, she says the heart transplant she received six years ago as a result of her condition has made her life even more fulfilling.

A Minnesota native, Tara was diagnosed with enlargement of the heart during a routine checkup when she was 1 year old. While she had not had any symptoms of a heart problem since birth, the enlargement was significant enough that her physician at Mayo Clinic's Rochester campus suggested that a biopsy of her heart should be done right away. She was diagnosed with hypertrophic cardiomyopathy, a disease in which the heart muscle becomes abnormally thick. The thickened heart muscle can make it harder for the heart to pump blood throughout the body to vital organs.

Tara's heart was monitored closely by her doctors at Mayo Clinic and later a hypertrophic cardiomyopathy specialist at the University of Minnesota. Since Tara was an active, healthy child otherwise, and what was known about her condition in children was limited, she was not put on medication, but doctors advised that she avoid strenuous activities.  [...]

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Nov 21, 2014 by @HoytFinnamore · View  

Learning a New Way to Live, With Pain

Carl White enjoys time with his family now that he's learned to manage his chronic pain. Look at Carl White today and you see a busy, content family man. A husband and father of two, Carl recently completed his bachelor's degree and now is pursuing a master's in social work. When he's not in school or studying, you'll likely find him either at his job as a health unit coordinator at Mayo Clinic Hopsital, Saint Marys Campus, in Rochester, Minnesota, or spending time with his family.

At first glance, Carl may seem like any typical, hardworking dad. Rewind a few years, though, and you'll understand just how far Carl has come and the enormous struggles he has had to overcome.

Back in 2009, Carl was consumed with chronic pain — the result of two serious accidents. He attempted to cope by taking steady doses of strong pain medication, along with a significant amount of alcohol. But it provided little relief.

"I was in constant pain. I couldn't think. I couldn't function. My family was falling apart. I didn't know what to do," Carl says. "Time seemed to go so slowly while waiting for a magic bullet, a new medical breakthrough that would take all the pain away. I believed that all I needed was to have the right surgery or find the right pill, and I would be cured."

 "I was in constant pain. I couldn't think. I couldn't function. My family was falling apart. I didn't know what to do."

Unfortunately, that didn't happen. Angry and discouraged after several years of dealing with the pain, he was not receptive when a doctor at Mayo Clinic referred him to Mayo's Pain Rehabilitation Center.  [...]

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graphikat responded Thu, Apr 7 at 10:48pm CDT · View

I'd like to know what these pain rehab programs cost.


SMHNadmin responded Sat, Apr 9 at 1:35pm CDT · View

Perhaps this link will be helpful:

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