Sharing Mayo Clinic

Stories from patients, family, friends and Mayo Clinic staff

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Cynthia (Cindy) Weiss

6 hours ago by Cynthia (Cindy) Weiss · View  

Critical Care Team Gives Young Mom Second Chance in Fight Against Cancer

Mayo Clinic cancer patient Hollis Younger enjoying timel with family. Three years had passed since Hollis Youngner, 34, had been diagnosed and treated for HER2+ breast cancer. So in late 2014, when the mother of one was "just feeling yucky, tired, nauseous," she says cancer wasn't even on her mind. "I was secretly excited, thinking of ways to tell everyone I was pregnant," she says.

Unfortunately, a chest X-ray, prompted by a complaint of being short of breath, set in motion a series of events that ultimately resulted in a diagnosis of stage 4 metastatic breast cancer, a 45-minute CPR session, and questions about whether the young mom would even survive.  [...]

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Aug 15, 2014 by iggeez · View  

Mystery Solved – Diagnosis Moves Patient from Frustration to Peace of Mind and a Plan

Karen Gibson at Mayo Clinic with her husband. I want to share my story to possibly help another person and to hopefully help others who are still facing their own health unknowns.

I struggled for years with extreme fatigue, major skin problems, muscle weakness, escalating eye issues, and a host of other unexplained symptoms. I moved to Georgia with more and more symptoms. I developed relationships with new doctors and developed new symptoms – seizures and heart-related syncope. I went to see a neurologist, who began to run tests. In the meantime, I had regular quarterly blood panels by my regular physician, who upon reporting to me by phone noted no irregularities. I was told time and time again to stop chasing a diagnosis. My family continued to watch my decline.

After running numerous tests, my neurologist could only ascertain that I may have had some mini-strokes. My neurologist referred me to a major university hospital. After two visits, and being practically laughed out of the place, I began to have serious doubts about my symptoms and began to believe the many specialists and psychologists who told me it was emotional response.  [...]

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iggeez (@iggeez1416) responded Nov 7, 2014 · View

Hi Lola, I am so sorry it took me so long to answer your post. I have been in and out of the hospital many times over the past 3 months and I am getting ready for surgery. I know it is so completely frustrating when you want your body to move and it doesn't want to. A member of my family has Fibromyalgia and it is a very debilitating disease. I hope the therapy [...]

Dan s

Dan s (@dspel) responded 1 day ago · View

Hi There, My name is Dan Spelich I came across this post in desperation trying to do research for my sister who has been ill for over 10 yrs. now. She is 36 years old and has been through IT.. From removing a tumor in her brain to back surgery, partial hysterectomy, lithotripsy kidney stones, sinus surgeries multiple pills, etc etc etc....I feel soo bad for her, why she must endure all of this. Things [...]

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Hoyt Finnamore

4 days ago by Hoyt Finnamore · View  

Mother Gives Daughter the Gift of Life … Twice

Addie Sylvester's personality has blossomed since her transplant. At 27 weeks into her pregnancy with twins, Amber Sylvester went to Mayo Clinic with her husband, Mike, for an ultrasound test and received news that no parent wants to hear. One of the babies was in trouble. She had enlarged kidneys, no amniotic fluid around her body, and fluid in her abdomen. She would likely not survive until birth. Even if she did survive, doctors said she would likely not live long enough to receive a transplant.

Amber remembers that appointment clearly. “The tech asked me if my water broke,” she says. “When I saw the concern on her face, I knew that something was not right. All I can remember is crying hysterically.”  [...]

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Hoyt Finnamore

Wed, Aug 26 at 5:12pm CDT by Hoyt Finnamore · View  

Experimental Nerve Graft Puts Former Green Beret Back on his Feet

Kevin Flike with his daughter, Lilah. Others might have panicked, but former U.S. Special Forces Engineer Kevin Flike kept his wits about him when he was shot in the abdomen during a firefight in Afghanistan four years ago. Through the worst pain of his life, the Green Beret pushed forward. He radioed his injury to teammates and began assessing the wound, which appeared mortal to his unit’s medic.

“I wanted to remain calm because I knew if I wasn’t, it was going to make the situation worse,” says Kevin, who, at 27, was one of the senior members in his unit. As it was, the situation was bad. The bullet tore through his lower abdomen, breaking his hip, damaging his colon, and ripping apart his left femoral nerve.  [...]

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Elizabeth Rice

Oct 19, 2011 by Elizabeth Rice · View  

Mayo Clinic Patient Creates Documentary to Educate Others on Frontotemporal Dementia

Susan Grant and Cindy Dilks from "Planning for Hope" and Val Lowe, M.D., Mayo Clinic Department of Radiology, examine Susan's PET Scans.

In Frontotemporal Dementia (FTD), areas of your brain (the frontal lobe and temporal lobe) shrink, causing progressive speech, language, personality and behavior problems, as well as a decline in your thinking and reasoning skills (cognitive skills). It is often misdiagnosed as a psychiatric problem or as Alzheimer's disease, but FTD tends to occur at a younger age than does Alzheimer's disease, typically between the ages of 40 and 70.


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Missyanderson (@missyanderson) responded Sun, Aug 16 at 4:21pm CDT · View

How does the care giver (wife) know when its time to go to nursing home for patient to live.

perfectingpink likes this

perfectingpink (@perfectingpink) responded Fri, Aug 21 at 10:34pm CDT · View

This is a very good question and one I do not have a great answer for. I suppose the time for a nursing home comes when it is either unsafe for the patient to remain at home or when the stress of taking care of the patient becomes detrimental to your health. I imagine it is hard to make such a decision and I hope you have a support network that can help you make [...]

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Susana Shephard

Aug 26, 2011 by Susana Shephard · View  

Living With Myelofibrosis (Part 3 of a 4 part-series)

Patricia Wagnerby Patricia Wagner

Thanks for sticking with me! In this entry, I’ll be talking about what is involved in being your own advocate. I believe that for myself, I would not be alive to write to you now had I not realized that I am in charge – not the professionals whose help I seek.

Initially, I looked for information at my local library. Everything I found on the subject was brief and grim. Eventually, I found a small online support group. We were all in the same boat: we didn’t have knowledge of our disease, how to treat it, or who could help us. In comparing our situations we began to pull together some of the answers. As the support group grew, we even developed an internal list of the doctors we trusted. [...]

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Dennis Bertwell

Dennis Bertwell (@pbertwell) responded Thu, Aug 20 at 2:27am CDT · View

I have just been diagnosed with ME and would like a support group. I was very happy to find this article!

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Margaret Shepard

Dec 13, 2012 by Margaret Shepard · View  

Research forges path to effective treatment for sclerosing mesenteritis

Carol Bolton outside Mayo Clinic in Rochester, Minn.

Carol Bolton enjoys a breath of fresh air between appointments outside Mayo Clinic in Rochester, Minn.

With more than three decades of experience as a nurse and nurse manager, Carol Bolton of Exeter, Calif., was acquainted with most medical conditions. But in 2004 when she began experiencing abdominal pain along with episodes of diarrhea or constipation, she was baffled by what it could be. Most likely, she thought, it was related to grief over the abrupt death of her husband of 35 years.

But when the pain persisted and grew worse, she saw a gastroenterologist, who ordered a computed tomography (CT) scan. Carol was shocked to learn that a mass (about the size of a quarter) had been found in her mesentery. The mesentery, a membrane that anchors the small intestine to the back of the abdominal wall, is comprised of delicate folds or leaves filled with blood vessels and nerves. [...]

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Tiffanyann (@tiffanyann6886) responded Tue, Aug 18 at 11:29am CDT · View

I have been diagnosed with Sclerosing Mesenteries back in June 2014. I have down 3 separate rounds of prednisone to keep the symptoms under control. Every time I have come off the medications the symptoms only come back and if not are worse. I am currently experiencing abdominal pain, nausea, loss of appetite, as well as bouts of constipation and diarrhea. I do not feel like I am getting better and this has been a [...]

Mary E

Mary E (@marezdotes) responded Tue, Aug 18 at 11:46am CDT · View

Tiffanyann,I'm not sure what part of Ohio you are in, but we have a private Facebook page that has other people on it that also have sclerosing mesenteritis, or mesenteric panniculitis.  We share information on our disease symptoms, what medications have worked, and which doctors have seen and treated this rare disorder.  If you are interested in joining this group, please let me know and I will connect you to one of the organizers of [...]

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Sun, Aug 16 at 8:26pm CDT by DLynn · View  

How effective is Glucocil? Glucocil is suppose to seriously control pre diabetes and diabetes.

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