Sharing Mayo Clinic

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Oct 19, 2015 by @HoytFinnamore · View  

Sidelined No More - Scrambler Therapy Puts Tess Wilson Back in Action

Tess Wilson is enjoying life again after scrambler therapy helped her chronic pain. Each year after their big Thanksgiving meal, Tess Wilson's family has a tradition of playing games in a gym to burn off some calories. For much of her high school and college years, Tess spent that afternoon sitting on the sidelines watching the rest of her family run around. Severe, chronic pain made it impossible for her to join in the fun.

Thanksgiving Day 2014 was different. On that day, Tess was in the thick of the action. She played capture-the-flag, hide-and-go-seek, soccer and tag.

"I was incredibly sore the next day, but not in a chronic pain way," she says. "I just used muscles that I had forgotten were there."

The change came as a result of Tess' participation in a a clinical research trial at Mayo Clinic that studied the effects of a new treatment for chronic nerve pain, called scrambler therapy. After two weeks of the therapy, Tess found relief from the constant pain that had been plaguing her for five years.  [...]

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Dlvsbrs responded Fri, Jul 8 at 7:28pm CST · View

Does this help with small fiber neuropathy as found in erythromelalgia? Could it help Erythromelalgia patients?

Hyroller likes this

texashummingbird responded 4 days ago · View

Is a patient a candidate for scrambler therapy if they have a St Jude's SCS implant? our 43 year old son, former college athlete, has developed CRPS after TKR three years ago, and is progressively getting worse month by month .. Thank you

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Wed, Nov 23 at 5:20pm CST by @SharingMayoClinic · View  

Body Builder Regains Energy After Surgery for Myasthenia Gravis

Robert Clark with his busy family. Six years ago, Robert Clark thought he was having a stroke. His left eye drooped shut, and he began to have difficulty swallowing. A competitive body builder used to working out six times a week, Robert rarely got sick. So when a local physician dismissed his symptoms, he sought out a friend who worked at Mayo Clinic.

His friend recommended he see Paul Brazis, M.D., a physician who specializes in neuro-ophthalmology. After examining Robert, Dr. Brazis suspected myasthenia gravis, a rare autoimmune disorder characterized by weakness and fatigue of the skeletal muscles as a result of an enlarged thymus. The thymus, an H-shaped gland situated in the upper chest that produces T-cells to fight disease, is supposed to shrink after birth, when bone marrow takes over this function.

Following a series of tests, the diagnosis of myasthenia gravis was confirmed. Robert then faced difficult decisions about managing his disease while living life as he wanted.   [...]

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Mon, Oct 31 at 2:33pm CST by @SharingMayoClinic · View  

A Mother’s Frightening Fight Against Autoimmune Encephalitis

Mayo Clinic’s accurate diagnosis and comprehensive treatment of severe autoimmune encephalitis saved Gloria Pena’s life and put her on the path to a full recovery.

It started with ear pain in the spring of 2014. Within a few weeks, Gloria Pena’s earache escalated into confusion and sensory loss.

“I thought it was a bad cold with an earache,” Gloria recalls. “But one day I picked up my son from school and didn’t remember the way home.”

From there, Gloria’s condition spiraled downward. Eventually, the 36-year-old mother of two ended up in an intensive care unit in a coma, diagnosed with autoimmune encephalitis, a serious condition in which Gloria’s immune system was attacking her brain.

Determined to find help for his wife, Gloria’s husband, Emmanuel, brought her to Mayo Clinic’s Florida campus. Although it took time, her Mayo Clinic care team was able to save Gloria and put her on the path to recovery.  [...]

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quero123 responded Wed, Nov 23 at 12:25am CST · View

How to do for get assistence inthis mayoclinicwe havesome in chicago let me know pls my wafehave simptoms of ensefhalitis for herpes help pls thanks

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Tue, Nov 22 at 9:15am CST by @SharingMayoClinic · View  

Sharing Part of His Liver, Brother-in-Law Offers Something Greater: A Future

A unique treatment approach that included a living-donor liver transplant has allowed Isaac Jackson to put cancer behind him and once again focus on his family, career and friends. Isaac Jackson was living a peaceful life, with a large, loving family, a successful law practice, and lifelong friends, when in early 2014, his life changed dramatically.

In January, Isaac began feeling sick whenever he ate. A visit to his primary care doctor in his hometown of Eugene, Oregon, led to an initial diagnosis of gallstones. But when an MRI of Isaac’s abdomen showed that the entire right side of his liver was no longer working and his bile ducts were almost completely blocked, his physician promptly connected him with specialists in Seattle.

“We were scared but thought that I was suffering from some sort of bile duct disease. We were hopeful,” Isaac recalls. “Unfortunately, our worst fears came true, and it put our family to the test. How would we respond? Would we stay hopeful? Would we be grateful for what we had?” [...]

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Mon, Nov 21 at 9:09pm CST by @SharingMayoClinic · View  

Complex Diagnosis Reshapes a College Student’s Future

Plagued by debilitating symptoms, Reilly Steidle turned to Mayo Clinic. A comprehensive evaluation revealed a range of challenging but manageable issues, and gave Reilly a new outlook.When Reilly Steidle came to Mayo Clinic in the summer of 2013 at the age of 20, she brought with her two rolling suitcases full of medical paperwork and a hope that the physicians could make sense of the recurring headaches, chronic fatigue and widespread pain she’d been dealing with for two years.

Reilly had been a healthy college student majoring in business at Northern Illinois University in the fall of 2011. But by the end of the school year, the Plainfield, Illinois, resident had dropped out, debilitated by her mysterious symptoms. Reilly spent the summer of 2012 visiting doctors.

When no one could decipher her symptoms, she decided to try another approach. Reilly went to a chiropractor, who asked to see her MRI images. After looking at them, the chiropractor urged Reilly to get an enzyme-linked immunosorbent assay test, confirmed by a Western blot test, to check for Lyme disease. Reilly did so, and on her 19th birthday, she received the news that the test results were positive.


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Jan 15, 2013 by @MakalaJohnson · View  

Unraveling the Mystery of Semicircular Canal Dehiscence Syndrome

Imagine listening in real time to the thump, thump of your own heartbeat, the rush of your blood pulsing through your veins, and even the slightest twitch of your eyes - all in surround sound.  Those are but a few of the symptoms that Wendy Tapper was experiencing when she arrived at the Mayo Clinic in May of 2012.

The Journey to Mayo

Wendy TapperOutgoing and energetic Wendy, of Kansas City, Mo., enjoyed a career as a producer and publicist.  Bringing people and ideas together was second nature to Wendy and aided in her determination to find the answers in her own health care.

For three years prior to coming to Mayo Clinic in spring 2012, Wendy went from doctor to doctor and endured batteries of tests, scans, appointments and misdiagnoses.  Her rare condition ultimately revealed by Mayo physicians was masked in part by two distinct illnesses - breast cancer and a stroke. 

While those illnesses and the treatments Wendy was receiving are life-altering, they were compounded with the escalation of an underlying third and separate issue.  It was the escalation of her symptoms of dizziness, hearing loss and a drastically diminishing quality of life that brought Wendy to Mayo Clinic. [...]

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dserro responded Mon, Nov 21 at 5:51pm CST · View

Hi there, I am new to this site and I am very curious about your situation. I had transmastoid surgery at Mayo Phoenix this year for a cholesteatoma in my ear.....but they discovered I have SCCD when doing scans for the other issue. I think the first surgery did some more damage, because I did not have symptoms before but I do have some now. Overall, I have not been happy with Mayo and if [...]


Scrappinkathy responded Mon, Nov 21 at 6:14pm CST · View

I went to Mayo and ended up seeing someone who doesn't do that surgery. Really irritated me that I told them exactly what my diagnosis was and I wanted to see someone very familiar with it. Instead they give me a novice. I'm back at square one. Very frustrating. I'm done with mayo in Rochester.

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Fri, Nov 18 at 4:46pm CST by @SharingMayoClinic · View  

Relieving Side Effects of Breast Cancer Treatment With Microsurgery


Angenette Monroe with her surgeon, Antonio Forte, M.D.

In May 2013, at age 47, Angenette Monroe was diagnosed with invasive cancer in her left breast. After six months of chemotherapy, she had a mastectomy as part of her treatment plan.

The former gastroenterology technologist had participated in many medical procedures and was well aware of the challenges people can face after surgery. But as an active woman who exercised and was always on the go, Angenette never expected her treatment would prevent her from enjoying life.

But it did. Side effects after surgery kept Angenette from activities with her husband, including running and traveling, as well as visits with her three children and her grandchild.

She also dealt with lymphedema for more than a year. Then Angenette turned to physicians at Mayo Clinic’s Florida campus for help. They were able to offer her a unique surgical approach, called lymphovenous bypass, that eased her symptoms.

She had picked the right place to seek help.  [...]

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Mon, Nov 14 at 4:47pm CST by @SharingMayoClinic · View  

“Never Stop Fighting. Never Give Up” Becomes Mantra on Long Road to Better Health

After years of kidney problems and a series of kidney transplants, Stacy Neumayer has finally achieved her goal of living the life she’s always wanted.

Photograph courtesy of Penni Pier.

Stacy Neumayer was a teenager when she received her first kidney transplant. Her health problems began when she was 4 years old. Over time, Stacy developed a condition called glomerulonerphritis, which causes inflammation in the tiny pockets of the kidneys that help remove excess fluid, electrolytes and waste from the bloodstream.

The illness affected Stacy’s kidney function, and she was put on dialysis until a donor kidney became available.

“Eventually my body and my kidneys started shutting down, so I went on dialysis until I had my first transplant,” Stacy says. “Unfortunately, my body rejected the donor organ before I even left the hospital, so it was back to dialysis.” [...]

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Mon, Oct 17 at 4:46pm CST by @SharingMayoClinic · View  

Diagnosis and Treatment of Chiari Malformation Spurs Nikki Prins to Reach Out to Others

Nikki Prins enjoying time outdoors.Oct. 23, 2015, is a date that Nikole Prins will always remember. It’s the day she finally learned the reason for the bizarre symptoms she had been dealing with for more than half her life. Nikki precisely recalls the time she heard the news. It was 1:24 in the afternoon when her doctor called with the results of an MRI she had the previous day.

“I was diagnosed with Chiari malformation,” says Nikki, who lives in Owatonna, Minnesota, and received care at Mayo Clinic Health System in Owatonna. “No one wants to be told at 21 that you have a brain malformation. I cried a lot.”

For years, Nikki had experienced a range of symptoms that included lightheadedness, fainting and extremities that tingled when she stood up, as well as migraines that got worse while she was standing. As a preteen, she was told she was having syncope episodes when she got lightheaded. Later, physicians made the diagnosis of postural orthostatic tachycardia syndrome. But neither diagnosis nor any treatment had an effect on her symptoms. [...]

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dboen responded Sat, Nov 12 at 11:57pm CST · View

I was recently diagnosed with arnold chiari malformation. I was told i need surgery fairly soon. I am very nervous and scared. Can anyone please tell me about their experience with the surgery and recovery process.


Nikole Prins responded Mon, Nov 14 at 7:06am CST · View

Hi! I was out of work for about 3 weeks after my third surgery, but all together had been out for 3 months because of all the emergent cases. I would take about 6-8 weeks for recovery. I got tired even standing waiting for food at the microwave. You will have a lot of things that make you very tired, quickly. I still do and I am 8 months post operation of my last surgery. [...]

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May 2, 2014 by @cindyweiss · View  

#StrokeMonth: TIAs - The Warnings Most Ignore

Lorena Rivera with two of her three children.

Lorena Rivera (center), stroke survivor, with two of her three children.

Many people experience a warning prior to a stroke. But often it goes unnoticed, especially when you’re young and otherwise healthy, like Lorena Rivera, 44.

A nurse educator at Mayo Clinic's Florida campus, Rivera was the picture of good health. She didn’t drink or smoke, had good blood pressure, and ate a healthful diet. She was also physically active. So when the mom of three experienced headaches and numbing in one arm, she wasn’t too concerned. However, when she temporarily lost vision while doing errands one day, she became more frightened.

Rivera, it turns out, had been experiencing a TIA – a transient ischemic attack – which produces similar symptoms as a stroke but usually lasts only a few minutes and causes no permanent damage. Often called a mini stroke, a TIA is a warning. About 1 in 3 people who have a transient ischemic attack eventually has a stroke, with about half occurring within a year after the first episode.  [...]

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mgalle81 responded Thu, Jan 21 at 2:56pm CST · View

I had a stroke/ TIA back in September 2015. I was riding home from out of town and got about 30 miles outside of San Angelo TX and the whole side of my left face wrapping around my throat area went dumb for just a second then I got real hot and then freezing. I was trying to tell my sister I wanted a blanket and I knew what I wanted to say but I [...]


deb responded Sat, Nov 12 at 12:46pm CST · View

i had a car accident in may 2015 and had a blackout. i never had one before, on or off the job, i was a letter carrier in the mail truck for 34 years. my eyes were totally black but iwas able to walk away from the accident. i should've went to the hospital but didn't. went to my dr. the next day and he said i looked good minus all the bruises.on july 15 [...]

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Thu, Nov 10 at 10:56am CST by @SharingMayoClinic · View  

Minimally Invasive Bariatric Procedure Brings Relief, Joy in Food Again

A minimally invasive procedure at Mayo Clinic helped Stephanie Cortez combat debilitating gastrointestinal symptoms and regain control of her body.Stephanie Cortez had been battling the scale for most of her 47 years. Weighing 240 pounds, the Lake Park, Georgia, resident decided to undergo gastric bypass surgery in 2008 in the hopes of losing a hundred pounds.

Stephanie made steady progress for the next six years. She adopted and maintained a healthier lifestyle and better eating habits. Then she hit a roadblock. In 2014, Stephanie developed a bleeding ulcer in the stomach pouch created during her surgery.

Though the ulcer healed, scar tissue created additional problems, including a narrowing of the area between the stomach pouch and intestine. The condition, called the gastrojejunal anastomosis, caused an intestinal obstruction.


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Tue, Nov 8 at 1:47pm CST by @SharingMayoClinic · View  

Changing Minds While Learning to Live With Epilepsy


The first time Tehya Mrotek had a seizure during class, she had just begun high school. Most of the faculty and staff at Stewartville High School didn’t know how to respond to Tehya’s condition.

The school nurse recognized what had happened, however. The nurse explained it to Tehya when she regained consciousness from her tonic-clonic episode. But Tehya’s teachers and support staff weren’t very familiar with epilepsy and were not equipped to administer seizure first-aid, says Tehya’s mother, Tamra Mrotek. That was six years ago.

Within three years, not only had all of Tehya’s teachers and administrators become proficient in epilepsy education, but the town of Stewartville had received certification as a Seizure Smart Community from the Epilepsy Foundation of Minnesota.


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Tue, Oct 25 at 9:43pm CST by @SharingMayoClinic · View  

Deep-brain Stimulation Helps A Pilot Return to Flight

Ryan Uitti, M.D., and Beth McAllister with a self-portrait of patient Tyrone Nanton.

Ryan Uitti, M.D., and Beth McAllister of the movement disorders surgical team with a self-portrait of their grateful patient, Tyrone Nanton.

As a commercial airline pilot, Tyrone Nanton spends his days in a standard blue-and-white uniform. But in his off-hours, Tyrone’s creativity emerges in two favorite hobbies: creating colorful, elaborate costumes for carnival in his native Antigua, and painting. From 2006 to 2015, though, a tremor that got progressively worse made his hands shake so much that it kept him not only from those artistic pursuits, it eventually kept him from flying.

When the tremor started, Tyrone went to see a neurologist near his home in Brandon, Florida. To control the shaking, he was given a medication typically used for seizures. Due to regulations, however, the airline barred use of that medication. Tyrone had to find a different drug to manage his symptoms. Over time, however, even with an ever-increasing dosage of that medication, his tremor worsened.

“I couldn’t hold a glass with one hand. I couldn’t eat with a knife and fork,” Tyrone says.

At that point, Tyrone could not continue flying. He had to take medical leave and go on disability. Tyrone says he couldn’t imagine no longer being a commercial airline pilot. Seeking options after his local neurologist said there was nothing else that could be done, he decided to get a second opinion.  [...]

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cmward responded Sat, Nov 5 at 3:12pm CST · View

would this help children with ADHD?


SMHNadmin responded Sun, Nov 6 at 8:26am CST · View

Here is a general informational link that may be helpful:

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Aug 15, 2014 by @iggeez1416 · View  

Mystery Solved – Diagnosis Moves Patient from Frustration to Peace of Mind and a Plan

Karen Gibson at Mayo Clinic with her husband. I want to share my story to possibly help another person and to hopefully help others who are still facing their own health unknowns.

I struggled for years with extreme fatigue, major skin problems, muscle weakness, escalating eye issues, and a host of other unexplained symptoms. I moved to Georgia with more and more symptoms. I developed relationships with new doctors and developed new symptoms – seizures and heart-related syncope. I went to see a neurologist, who began to run tests. In the meantime, I had regular quarterly blood panels by my regular physician, who upon reporting to me by phone noted no irregularities. I was told time and time again to stop chasing a diagnosis. My family continued to watch my decline.

After running numerous tests, my neurologist could only ascertain that I may have had some mini-strokes. My neurologist referred me to a major university hospital. After two visits, and being practically laughed out of the place, I began to have serious doubts about my symptoms and began to believe the many specialists and psychologists who told me it was emotional response.  [...]

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julioe clarke responded Wed, Nov 2 at 12:27pm CST · View

Hello everyone, i am Julie Clarke from US. I have been suffering from LUPUS for 2 and half years and has been cured by a Herbal doctor called Dr. Akpan who uses herbal and traditional medicine to cure people. I have spent so much on my health paying hospital bills for years but no improvement. A friend told me about this herbal man who cure people with herbal medicine. He cures all sickness, diseases, viruses, [...]


rachelle ronald responded Sat, Nov 5 at 5:35pm CST · View

i am sharing my family testimony with joy and hopes that you will also use get your own cures from the best herbal doctor...i was sick from the disease Ephysema,i had to stop my work and cut all contact from friends,for long i searched for possible help to get cured.until i came across a blog testimony the herbal cures dr felix provide,i contacted him through his email: [email protected] with my problem,he prepared herbs sent it [...]

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Fri, Nov 4 at 11:11am CST by @SharingMayoClinic · View  

Multiple Medical Emergencies Give Nurse A New Perspective on Mayo Clinic Care

After receiving treatment for two serious falls and going through a surgery, nurse Jackie Traurig has a heightened appreciation for the health care Mayo Clinic provides.

Jackie Traurig in the body cast needed to heal her fractured lumbar vertebra and with the nurse from Orthopedic Surgery who helped ease her nerves, Lori Pierce, who she calls “the biggest angel in the world.”

As a nurse for more than eight years at Mayo Clinic’s Rochester campus, Jacklyn Traurig knew firsthand the value of the organization’s team approach to health care. But although Jackie was practiced at providing quality care, she didn’t truly see just how exceptional Mayo Clinic’s style was until she found herself in back-to-back medical crises.

A fall on the stairs landed Jackie in the Emergency Department with a broken back. Then, while still healing from the first event, Jackie fell again. This time, she slipped in a stairwell and suffered a concussion and broken collarbone. A CT scan following that fall revealed a brain tumor.

Despite all this, Jackie looks for the good in her experiences.


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Thu, Nov 3 at 9:53am CST by @SharingMayoClinic · View  

Routine Exam Leads to Successful Tonsil Cancer Diagnosis and Treatment

For Gary Pearson, a physical required to renew his driver’s license led to evaluation of a suspicious lump on his neck that turned out to be tonsil cancer. With prompt diagnosis and treatment at Mayo Clinic, Gary is now cancer-free.

When Gary Pearson went in for a routine physical required by the Minnesota Department of Transportation to maintain his commercial driving privileges, he left with much more than a renewed driver’s license. The 58-year-old departed his appointment with an urgent directive from the nurse practitioner that examined him to see his primary care doctor. The reason: Gary had a bulbous lump on his neck.

“If she hadn’t found it, who knows how long it would’ve taken to detect it,” says Gary of Claudia Swanton, the advanced practice nurse in Mayo Clinic’s Division of Preventive, Occupational and Aerospace Medicine who performed the exam.


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Dec 24, 2012 by @Margaret_Marie · View  

Relief for pain caused by Chiari type I malformation

Sean Murphy on the ski slopes

After surgery for a Chiari malformation, Sean Murphy is back to skiing and his other normal pastimes.

When Sean Murphy's chronic headaches set in, they first bothered him after physical exertion, then after a stressful day at work.

Within months, the headaches were constant, always localized in the back of his head. The pain became debilitating.

Murphy consulted his family doctor and was referred to a neurologist. His hometown physicians were stumped.

Murphy was referred to Mayo Clinic, where he was diagnosed with Chiari malformation type I, a rare condition in which the brain tissue at the back of the head protrudes into the spinal canal. The disorder causes a variety of neurological symptoms, but is treatable.

Mayo Clinic physicians initially sought to relieve Murphy's symptoms with medication, but as his health continued to worsen they decided surgery was his best option. [...]

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angelbrown2472 responded Tue, Apr 12 at 9:05am CST · View

What was the mm measurement of your protrusion?


debchiari responded Fri, Oct 28 at 7:48pm CST · View

I had a 17 mm...3 surgeries...still quality of life

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Wed, Oct 26 at 4:23pm CST by @SharingMayoClinic · View  

Colleagues Go From Sharing a Workplace to Sharing a Kidney

Dawn Odenthal was more than willing to donate a kidney to help a colleague, Jolinda Conzemius. When Dawn Odenthal sat down for a meeting with her colleague Jolinda Conzemius in June 2014, organ donation was nowhere on her radar. The two women knew one another through their work at a company that specializes in school photography, yearbooks, church directories and other forms of memory preservation. Dawn is a regional sales director, and Jolinda is a photographer. They were meeting to talk about a project they had been assigned to work on together.

By the time they got up from the table that afternoon, however, they had started a process that would culminate in Dawn donating one of her kidneys to Jolinda for a life-altering kidney transplant at Mayo Clinic.

“I absolutely wanted to do this for her,” says Dawn. “There wasn’t a question in my mind.” [...]

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Mon, Oct 24 at 4:53pm CST by @SharingMayoClinic · View  

Spinal Cord Stimulator Eases Pain Without Creating Limitations for Paul Hesson

When he was 38, Paul Hesson was diagnosed with degenerative disc disease, and the condition triggered significant chronic back pain.

“Back then, they said I had the back of a 75-year-old man,” says Paul, who is 75 now.

As Paul got older, his pain increased, and he had severe joint stiffness. He went to see several neurosurgeons in the Jacksonville, Florida, area and received differing opinions for how to treat his condition. Ultimately, he decided to use medication to manage the pain. But by 2014, Paul’s pain worsened to the point that it limited his day-to-day activities. He knew he needed to do something more.  [...]

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Nov 6, 2013 by @mayoclinic · View  

Life after C. difficile

Dianne Shea thought that the fevers, chills, vomiting, nausea and endless bouts of diarrhea from C. diff would take away her independence. But after a fecal transplant, she says, "My life began again."  

Diane Shea with her fan clubWritten by Dianne Shea

I've been a paraplegic and a Mayo Clinic patient for more than 10 years. My legs decided to stop working over a period of just a few short months due to a spinal tumor. So I didn't think I was a stranger to adversity. Then I met a nasty little bug they call C. difficile. The name is not ironic. At first I thought I had a very violent form of the flu with fevers, chills, vomiting, nausea and (the worst by far) countless, endless bouts of diarrhea.

My days were filled with nothing more than being assisted to the bathroom, cleaning up, getting back into bed, then starting all over again, weaker than before. I required around-the-clock care. I couldn't get dressed, could hardly eat anything, didn't have enough energy to do the smallest of tasks, and couldn't have any fun. Most importantly, I couldn't get through physical therapies for my legs.


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Bobbowden1 responded Mon, Oct 24 at 12:10am CST · View

I contracted c-diff 12 days after returning from Cleveland Clinic for mytral valve repair. I called my surgeons nurse who immediately diagnosed the symptoms as c-diff and advised I visit my local GP here in Aspen. My GP confirmed c-diff was present and started me on one round of antibiotics with no improvement. I was switched to a second, $2000/ten day course of a new antibiotic to no avail. By this time I was in [...]


sarahsnana53 responded Mon, Oct 24 at 1:57am CST · View

I know the cure.! I suffered from extreme C diff for a number of years.Night sweats, fever, fatigue, the loss of appetite and of course thediarrhea. I had all the antibiotics, diets, and home remedies that were outthere. I have the same story as you only I am a paraplegic and with eachepisode would have to spend weeks, which turned into months in Care unitsand hospitals. My life belonged to c-diff. Then my doctor at [...]

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