Sharing Mayo Clinic

Stories from patients, family, friends and Mayo Clinic staff

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Hoyt Finnamore (@hoytfinnamore) posted · Recent activity · Thu, Mar 26 6:21am · View  

Stopping the Seizures

Xander Torres shows off the scar from his brain surgery. After brain surgery at Mayo Clinic, Xander Torres is a healthy, happy kid

"My hand is wiggly." When 4-year-old Xander Torres said these words to his mother, Sarah, she had no idea the long journey they would begin. "To be honest, I didn't think much about it at first," she says.

Several weeks went by when Xander's hand was occasionally "wiggly." Then during a stint as ring-bearer in a family wedding, he had what looked to his parents like a seizure. Frightened and confused, they took Xander to several physicians in their hometown of Omaha, Nebraska. Unable to learn what was causing the problem, and with his seizures growing more frequent and severe, the Torres family decided to travel to Mayo Clinic’s campus in Rochester, Minnesota, in hope of finding answers.

After evaluation and several months of other therapies, young Xander eventually underwent brain surgery to relieve his seizures. The results have been life-changing. Today, with his seizures well-controlled, Xander is a little-league baseball player who loves science and intends to be a brain surgeon when he grows up.  [...]

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Kerrie-Sue Stahl (@kerriesuestahl) responded:

This story is so near and dear to me. On Nov. 10, 2015 it will my 40th anniversary of having brain surgery at the Mayo Clinic to relieve my epilepsy. It was 1975 and I was 9 years old and the first child to ever have this type of surgery. No pediatric neurosurgeon had done this type of surgery yet so I had a regular neurosurgeon, Dr. Edward Laws, who had never performed this surgery [...]

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Joyce Babcock (@joycebabcock) responded:

I dont have cancer to my knowledge .ive lost close 80 lbs since 2006 mostly on weight watchers.i have pcos irratable bowel syndrom w somstimes sevre constipation,id like to have a almost total hysterectomy because i believe i have endometrosis along w the pcos &i have a tilţed womb &fat from the weight lose on lower belly i like removed cause it makes it hard to keep clean. the pcos put me into menopause .i [...]

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Hoyt Finnamore (@hoytfinnamore) posted · Mon, Mar 23 11:59am · View  

From 'Shock' to Hope – Young Woman Shares Her Breast Cancer Journey

Dawn DeCook-Gibson shares her story of breast cancer treatment at Mayo Clinic.. In her early 30s and with “a wonderful child, wonderful husband and a great career,” Dawn DeCook-Gibson says the last thing she expected was a breast cancer diagnosis. Following the initial shock of the news, Dawn, from Chandler, Arizona, sought out doctors at Mayo Clinic and was guided through her treatment and recovery by Donald Northfelt, M.D., her oncologist, and Barbara Pockaj, M.D., her surgeon.

“I was diagnosed with stage 2b lobular carcinoma breast cancer last year,” she says. “I was in shock … everything just seemed like it was perfect, and then the diagnosis came in. Honestly, it stopped me in my tracks.”

One of her family members had received care at Mayo’s Arizona campus and recommended that Dawn do the same. “She was adamant that I go to Mayo Clinic,” Dawn says.  [...]

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Hoyt Finnamore (@hoytfinnamore) posted · Fri, Mar 20 2:15pm · View  

Battling Colon Cancer at an Unexpected Age

Kelly Barnard, diagnosed with colon cancer at age 19, poses for a strong arm selfieThe majority of people diagnosed with colon cancer are older than 50. Kelly Barnard was just 19 years old when she got an unwelcome Valentine’s Day surprise. Her stomach pain turned out to be something much more serious.

Among cancer's many negative qualities is the seemingly indiscriminate way the disease manifests itself. Cancer doesn’t care what your race, gender or ethnicity is. It doesn't care about your profession where you live or your family situation. And it doesn't necessarily care about your age. Just ask Kelly Barnard.

Kelly's cancer story began when she was just 19 years old. Then a freshman at the College of St. Scholastica in Duluth, Minnesota, she began feeling intense stomach pain one day in her dorm room. And while she tells the Duluth Tribune she'd "felt some little twinges of pain" in her stomach before, those were nothing like the pain she felt just before Valentine's Day 2013. "It was horrendous," she tells the newspaper. "I couldn't walk. I couldn't move."  [...]

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Mary E (@marezdotes) posted · Sun, Mar 15 9:46pm · View  

Hi Carol, I am new to this forum as well as my [...]

Hi Carol,
I am new to this forum as well as my diagnosis of sm of about 6 mos. I have had my diagnosis confirmed by CT and MRI at a reliable University Hospital with evidence of edema, fibrosis, and multiple enlarged lymph nodes the largest few measuring 8 mm. ( I'm a nurse by my background and have a husband who is a semi-retired Internist.) My symptoms are abdominal pain, distention, and constipation. The GI doctor I saw seemed to feel the tests were not significant enough to warrant much consideration although I reminded him the symptoms were what drove me to see the doctor in the first place. Reluctantly he started me on a 6 day dose pack of steroids which aren't making much difference. I'm curious what I should suggest next. He mentioned the Imuran, but everything I have read seems to point to the Tamoxifen. What is your suggestion? Should it be used with the prednisone? How long of a wait do I need to see if it is making a difference? Finally, where can I get more precise information on sm? The internet is very limited as you know. Thanks, Mary E

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