Sharing Mayo Clinic

Stories from patients, family, friends and Mayo Clinic staff

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Hoyt Finnamore

4 days ago by Hoyt Finnamore · View  

Experimental Nerve Graft Puts Former Green Beret Back on his Feet

Kevin Flike with his daughter, Lilah. Others might have panicked, but former U.S. Special Forces Engineer Kevin Flike kept his wits about him when he was shot in the abdomen during a firefight in Afghanistan four years ago. Through the worst pain of his life, the Green Beret pushed forward. He radioed his injury to teammates and began assessing the wound, which appeared mortal to his unit’s medic.

“I wanted to remain calm because I knew if I wasn’t, it was going to make the situation worse,” says Kevin, who, at 27, was one of the senior members in his unit. As it was, the situation was bad. The bullet tore through his lower abdomen, breaking his hip, damaging his colon, and ripping apart his left femoral nerve.  [...]

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Elizabeth Rice

Oct 19, 2011 by Elizabeth Rice · View  

Mayo Clinic Patient Creates Documentary to Educate Others on Frontotemporal Dementia

Susan Grant and Cindy Dilks from "Planning for Hope" and Val Lowe, M.D., Mayo Clinic Department of Radiology, examine Susan's PET Scans.

In Frontotemporal Dementia (FTD), areas of your brain (the frontal lobe and temporal lobe) shrink, causing progressive speech, language, personality and behavior problems, as well as a decline in your thinking and reasoning skills (cognitive skills). It is often misdiagnosed as a psychiatric problem or as Alzheimer's disease, but FTD tends to occur at a younger age than does Alzheimer's disease, typically between the ages of 40 and 70.


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Missyanderson (@missyanderson) responded Sun, Aug 16 at 4:21pm CDT · View

How does the care giver (wife) know when its time to go to nursing home for patient to live.

perfectingpink likes this

perfectingpink (@perfectingpink) responded Fri, Aug 21 at 10:34pm CDT · View

This is a very good question and one I do not have a great answer for. I suppose the time for a nursing home comes when it is either unsafe for the patient to remain at home or when the stress of taking care of the patient becomes detrimental to your health. I imagine it is hard to make such a decision and I hope you have a support network that can help you make [...]

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Susana Shephard

Aug 26, 2011 by Susana Shephard · View  

Living With Myelofibrosis (Part 3 of a 4 part-series)

Patricia Wagnerby Patricia Wagner

Thanks for sticking with me! In this entry, I’ll be talking about what is involved in being your own advocate. I believe that for myself, I would not be alive to write to you now had I not realized that I am in charge – not the professionals whose help I seek.

Initially, I looked for information at my local library. Everything I found on the subject was brief and grim. Eventually, I found a small online support group. We were all in the same boat: we didn’t have knowledge of our disease, how to treat it, or who could help us. In comparing our situations we began to pull together some of the answers. As the support group grew, we even developed an internal list of the doctors we trusted. [...]

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Dennis Bertwell

Dennis Bertwell (@pbertwell) responded Thu, Aug 20 at 2:27am CDT · View

I have just been diagnosed with ME and would like a support group. I was very happy to find this article!

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Margaret Shepard

Dec 13, 2012 by Margaret Shepard · View  

Research forges path to effective treatment for sclerosing mesenteritis

Carol Bolton outside Mayo Clinic in Rochester, Minn.

Carol Bolton enjoys a breath of fresh air between appointments outside Mayo Clinic in Rochester, Minn.

With more than three decades of experience as a nurse and nurse manager, Carol Bolton of Exeter, Calif., was acquainted with most medical conditions. But in 2004 when she began experiencing abdominal pain along with episodes of diarrhea or constipation, she was baffled by what it could be. Most likely, she thought, it was related to grief over the abrupt death of her husband of 35 years.

But when the pain persisted and grew worse, she saw a gastroenterologist, who ordered a computed tomography (CT) scan. Carol was shocked to learn that a mass (about the size of a quarter) had been found in her mesentery. The mesentery, a membrane that anchors the small intestine to the back of the abdominal wall, is comprised of delicate folds or leaves filled with blood vessels and nerves. [...]

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Tiffanyann (@tiffanyann6886) responded Tue, Aug 18 at 11:29am CDT · View

I have been diagnosed with Sclerosing Mesenteries back in June 2014. I have down 3 separate rounds of prednisone to keep the symptoms under control. Every time I have come off the medications the symptoms only come back and if not are worse. I am currently experiencing abdominal pain, nausea, loss of appetite, as well as bouts of constipation and diarrhea. I do not feel like I am getting better and this has been a [...]

Mary E

Mary E (@marezdotes) responded Tue, Aug 18 at 11:46am CDT · View

Tiffanyann,I'm not sure what part of Ohio you are in, but we have a private Facebook page that has other people on it that also have sclerosing mesenteritis, or mesenteric panniculitis.  We share information on our disease symptoms, what medications have worked, and which doctors have seen and treated this rare disorder.  If you are interested in joining this group, please let me know and I will connect you to one of the organizers of [...]

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Sun, Aug 16 at 8:26pm CDT by DLynn · View  

How effective is Glucocil? Glucocil is suppose to seriously control pre diabetes and diabetes.

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Cynthia (Cindy) Weiss

Sun, Aug 16 at 4:55pm CDT by Cynthia (Cindy) Weiss · View  

Patients Tell How Pain Rehabilitation Program Brought Them Relief

Christy Jeck discusses her experience at Mayo's Pain Rehabilitation Center in Florida. Three weeks. It sounds like a long time, especially if you’re going to a hospital or clinic every day.

But for people living with chronic pain, a daily, multi-week program is compelling if it can help them return to a more active lifestyle.

Established in 2011, the Pain Rehabilitation Center at Mayo Clinic's Florida campus offers a robust and integrated three-week outpatient program for adults affected by chronic pain and symptoms. [...]

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DLynn (@dlynn) responded Sun, Aug 16 at 8:21pm CDT · View

What is the information for Glucocil? Does it help? It is suppose to control Pre diabetes and diabetes.

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Hoyt Finnamore

Thu, Aug 13 at 9:23am CDT by Hoyt Finnamore · View  

Marathoner and Ironman Michael Koetting Back in the Race After Donating Kidney

Michael Koetting continues to race after donating a kidney to someone on the transplant list.


As an endurance athlete who has completed six Ironman triathlons and more than two dozen marathons, Michael Koetting does not fear physical challenges. So when he learned he could use his good health to help a stranger in need, he never hesitated.  [...]

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Cynthia (Cindy) Weiss

Wed, Aug 12 at 12:10pm CDT by Cynthia (Cindy) Weiss · View  

Cystic Fibrosis Patient Says Double Lung Transplant Transformed His Life

Jon Jantomaso stays active with his family after his lung transplant.

Nobody knows better than Jon Jantomaso how precious every breath can be. The 49-year-old realtor from Seminole, Florida, was diagnosed with cystic fibrosis at 2 months of age, and for the first 12 years of his life slept in a mist filled tent to help him breath and clear the mucus from his lungs. He has been in some form of physical therapy his entire life battling his disease.  [...]

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