Sharing Mayo Clinic

Stories from patients, family, friends and Mayo Clinic staff

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iggeez (@iggeez1416) posted · Mon, Oct 27 11:23pm · View  

Mystery Solved – Diagnosis Moves Patient from Frustration to Peace of Mind and a Plan

Karen Gibson at Mayo Clinic with her husband. I want to share my story to possibly help another person and to hopefully help others who are still facing their own health unknowns.

I struggled for years with extreme fatigue, major skin problems, muscle weakness, escalating eye issues, and a host of other unexplained symptoms. I moved to Georgia with more and more symptoms. I developed relationships with new doctors and developed new symptoms – seizures and heart-related syncope. I went to see a neurologist, who began to run tests. In the meantime, I had regular quarterly blood panels by my regular physician, who upon reporting to me by phone noted no irregularities. I was told time and time again to stop chasing a diagnosis. My family continued to watch my decline.

After running numerous tests, my neurologist could only ascertain that I may have had some mini-strokes. My neurologist referred me to a major university hospital. After two visits, and being practically laughed out of the place, I began to have serious doubts about my symptoms and began to believe the many specialists and psychologists who told me it was emotional response.  [...]

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iggeez (@iggeez1416) responded:

Hi Doris, I am so sorry to hear of your troubled medical issues. It sounds like you are on a giant merry go round and can't get proper help. I have contacted one of the many excellent staff members at Mayo Clinic and they are going to get in touch with you for some suggestions. I hope this will help. Take Care and message me to let me know you are alright.

Posted Mon, Oct 13 at 7:14am CDT · View

Lolagirl1224 (@lolagirl1224) responded:

Karen, Thank you for writing your story. I have had lupus for many years, however 6 weeks ago I started have many of the same muscle problems you did. I've literally gone from a sick person who'd learned how to live a semi normal life to a disabled person who can't walk, talk correctly, work my normal job, driving is difficult and shopping... well let's just say that doesn't happen anymore. Someone saw this article [...]

Edited: 10/27/2014 @ 11:23pm

Posted 2 day(s) ago · View
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CSMMayo (@csmmayo) posted · Fri, Oct 24 8:53pm · View  

Stroke Awareness: Do you know the signs?

Despite the fact that I have been a Mayo Clinic employee for almost 19 years, and have worked for over five of those years with our comprehensive Stroke Center, I was shocked to find out that I didn't know all the signs and symptoms of stroke!

It’s not just slurred speech or drooping of the face. Did you know that sudden vision loss or blurriness can be a sign of an impending stroke? So, too, can difficulties swallowing.

A recent study by some of my colleagues in Rochester showed that almost 60 percent of patients who came to the emergency room with symptoms didn't believe they were having a stroke. And most didn't go to the emergency room when their symptoms first appeared. The patients said they thought the symptoms would simply go away.

Stroke can be treated. But you have to be diagnosed first. The key is to recognize the signs and get to an emergency room.  I encourage everyone to read more about stroke and be aware. It could happen to you.

This post was written by Suzanne Shaw, nurse administrator at Mayo Clinic’s comprehensive Stroke Center in Florida.

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Jackie (@ronja) responded:

I am 73 years old and healthy..... and also thought I was aware of stroke symptoms; that is until last March when I experienced what I now know as a Lacunar stroke. One morning I noted that my left arm felt strange ... Not tingling/pins n needles/not really numb. Just barely noticeable ... somewhat like your face feels when you have had novocaine for dental work and the affects are almost gone. I could draw [...]

Posted 5 day(s) ago · View
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Hoyt Finnamore (@hoytfinnamore) posted · Wed, Oct 15 1:17pm · View  

Learning to Hear Again

Mayo Clinic patient Scott Malmstrom discussed the cochlear implant process. There are certain sounds that Scott Malmstrom had never known. He was born with hearing impairment, and it gradually got worse throughout his life. By fourth grade, he began experimenting with hearing aids. Over time, he became what he calls a “professional lip reader.”

Hearing aids didn’t help much with the type of hearing loss Scott had. “Where he struggled was speech discrimination – being able to recognize and understand what's being said,” he says. “That's where they eyes take over. That's what I've done over many years and became very good at it.”

But his diminished hearing did keep him from experiencing certain things, and he says it affected his communication with those he loved. Today, through the magic of cochlear implants, Scott is hearing new things and experiencing life in a way he hadn’t quite imagined.  [...]

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Makala Johnson (@makalajohnson) posted · Mon, Oct 13 2:13pm · View  

Unraveling the Mystery of Semicircular Canal Dehiscence Syndrome

Imagine listening in real time to the thump, thump of your own heartbeat, the rush of your blood pulsing through your veins, and even the slightest twitch of your eyes - all in surround sound.  Those are but a few of the symptoms that Wendy Tapper was experiencing when she arrived at the Mayo Clinic in May of 2012.

The Journey to Mayo

Wendy TapperOutgoing and energetic Wendy, of Kansas City, Mo., enjoyed a career as a producer and publicist.  Bringing people and ideas together was second nature to Wendy and aided in her determination to find the answers in her own health care.

For three years prior to coming to Mayo Clinic in spring 2012, Wendy went from doctor to doctor and endured batteries of tests, scans, appointments and misdiagnoses.  Her rare condition ultimately revealed by Mayo physicians was masked in part by two distinct illnesses - breast cancer and a stroke. 

While those illnesses and the treatments Wendy was receiving are life-altering, they were compounded with the escalation of an underlying third and separate issue.  It was the escalation of her symptoms of dizziness, hearing loss and a drastically diminishing quality of life that brought Wendy to Mayo Clinic. [...]

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Leaj (@leaj) responded:

I have just been diagnosed last Monday after a 12 year battle to find out what was wrong with me , I also live in Australia. I have it in both ears and have had balance issues my entire life , but the symptoms became debilitating about 12 years ago when I bought a property high on a mountain. It is only 889 meters above sea level, but I traveled daily to work and became [...]

Posted Mon, Sep 15 at 2:28am CDT · View

Kelley Sregor (@sregoryellek2) responded:

Lea J, can you update any progress you made please. thank you.

Posted Mon, Oct 13 at 2:13pm CDT · View
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