April 13th, 2017
To the delight of everyone who knows 3-year-old Rayna Speary, her head is perfectly round and smooth and average size.
Given that the youngster was diagnosed and treated for an extremely rare brain tumor that caused her head to balloon in size as a 4-month-old, and that she underwent a dramatic surgery at Mayo Clinic to remove a substantial growth that occupied nearly half of her brain space, a perfect aesthetic of her head was not guaranteed. In fact, much about Rayna's development — including her very survival — wasn't assured. Read the rest of this entry »
February 1st, 2017
Nathaniel Kirera wasn’t expected to survive birth. When he did, then he wasn’t expected to live to see his first birthday, much less his 14th. He also wasn’t supposed to be able learn, let alone write a book. But he’s done all that, and today his medical odyssey is behind him.
That Nate has achieved so much despite having multicystic hydrocephalus, a condition in which half of his brain and its fluid drainage system formed abnormally, is no surprise to his mother Ann Makena, who, while she was pregnant, dreamed of a son walking and talking.
“The doctor said. ‘I’ve seen very bad conditions, but I’ve never seen anything this bad,’” Ann says. “I said, ‘It’s not that I don’t trust you … but I really felt very confident about this child. I said, ‘No I’m just going to leave it up to God.’”
November 8th, 2016
The first time Tehya Mrotek had a seizure during class, she had just begun high school. Most of the faculty and staff at Stewartville High School didn’t know how to respond to Tehya’s condition.
The school nurse recognized what had happened, however. The nurse explained it to Tehya when she regained consciousness from her tonic-clonic episode. But Tehya’s teachers and support staff weren’t very familiar with epilepsy and were not equipped to administer seizure first-aid, says Tehya’s mother, Tamra Mrotek. That was six years ago.
Within three years, not only had all of Tehya’s teachers and administrators become proficient in epilepsy education, but the town of Stewartville had received certification as a Seizure Smart Community from the Epilepsy Foundation of Minnesota.