January 30th, 2017
Growing up, Joe Meyer loved sports. In elementary school, he played basketball and baseball. The summer before he entered eighth grade, the Jacksonville, Florida, youth decided to give football a try.
Before he took to the gridiron, Joe visited his pediatrician for sports physical. At that appointment, his doctor noticed a heart murmur. Joe, then 14, couldn’t be cleared to play until he went to a cardiologist.
In August 2011, after seeing a pediatric cardiologist and having an echocardiogram and stress test, Joe was diagnosed with obstructive hypertrophic cardiomyopathy, or HCM — an incurable disease, usually caused by gene mutations, in which the heart muscle becomes abnormally thick.
The diagnosis took Joe away from sports and other physical activity for several years. Read the rest of this entry »
September 11th, 2015
In 1968, when I was just three months old, I was taken from my mother’s arms and rushed into emergency surgery. My skin tone turned to a sky blue color, and the doctors caring for me knew they needed to act fast if they wanted to save me. They needed to get oxygen to my vital organs, because my heart was failing.
The doctors did a temporary-fix surgery to improve my circulation and to buy them time in hopes that they would find a better solution. The surgery worked, but the question was: How long would it last?
Later that day, my mother was given words that no mother wants to hear. “Take him home to die,” the doctors told my mom. Four open-heart surgeries and 45 years later, I am still here, proving those doctors wrong.
I am happy that through science and research, there are now medical devices and surgical techniques that are much more high-tech than what they had to work with 45 years ago. My gray hairs prove that I, a Tetralogy of Fallot baby, am still alive into my adulthood years. Read the rest of this entry »
December 3rd, 2013
After heart surgery, Deshawn Corbin can run, jump and swim like a kid ... for the first time
Deshawn Corbin is just 15 years old. But he’s already experienced more life than most people many times his age.
Deshawn was born with complex congenital heart disease that affected the way blood traveled through his body and kept him from getting enough oxygen. His teenage mother, who’d had no prenatal care, realized she would be unable to care for a child with such special needs and gave him up for adoption. On the day he was born, Deshawn became a ward of the state and had his first open heart surgery. Read the rest of this entry »
Tags: Cardiac Surgery, Congenital Heart Disease, Dr Ann Reed, Dr Ben Eidem, Dr Harold Burkhart, Fontan Procedure, Juvenile Rheumatoid Arthritis, Mayo Clinic Children's Center, patient stories, Pediatrics