April 13th, 2017
To the delight of everyone who knows 3-year-old Rayna Speary, her head is perfectly round and smooth and average size.
Given that the youngster was diagnosed and treated for an extremely rare brain tumor that caused her head to balloon in size as a 4-month-old, and that she underwent a dramatic surgery at Mayo Clinic to remove a substantial growth that occupied nearly half of her brain space, a perfect aesthetic of her head was not guaranteed. In fact, much about Rayna's development — including her very survival — wasn't assured. Read the rest of this entry »
July 23rd, 2016
The night before 8-year-old Evie McLeish’s brain surgery, her Mayo Clinic neurosurgeon David Daniels, M.D., Ph.D., told her parents, "I don’t want you to think of this as the end. This is just the beginning of a marathon."
The procedure was the start of Evie’s long-term care plan for treatment of a brain tumor. Along with the brain surgery, that plan included chemotherapy and radiation therapy. Due to her age and the location of her tumor, though, her doctors recommended Evie receive proton beam therapy instead of conventional radiation therapy.
The timing was right. Mayo Clinic had just begun a new Proton Beam Therapy Program at its Rochester, Minnesota, campus. And not only was this unique treatment readily available to Evie, it was relatively close to her family’s home in Ankeny, Iowa, just a three-hour drive away.
"We were dealt a big blow with Evie’s tumor," says her mother, Ali McLeish. "But there have been silver linings in this whole thing, including that we could get proton beam therapy without having to travel across the country." Read the rest of this entry »
June 25th, 2016
For two weeks, 14-year-old Jackson Fisher was plagued by headaches, double-vision, nausea and weight loss. His parents, Michelle and Patrick Fisher, weren’t sure what was wrong. But when Jackson came home one evening completely exhausted after lacrosse practice, they decided it was time to find out what was going on. The next day, they took Jackson to the emergency room.
What doctors found during that ER visit triggered a series of events the Fishers never could have anticipated and that eventually led the family to Mayo Clinic’s Proton Beam Therapy Program, where Jackson received treatment for a brain tumor.
“Every single person we’ve met at Mayo Clinic has been amazing, and we feel like we were meant to meet them,” says Michelle. “His doctors told us they were going to fight for Jackson. They’ve been forthcoming and explained things simply and honestly. I never second guessed his care. Being at Mayo Clinic has been the most positive experience of our lives.” Read the rest of this entry »