Sharing Mayo Clinic

Stories from patients, family, friends and Mayo Clinic staff

Items Tagged ‘Hydrocephalus’

March 7th, 2017

Teamwork Gives Maureen Connell an Accurate Diagnosis and Much-Needed Relief From Hydrocephalus

By SharingMayoClinic SharingMayoClinic

After enduring months of unexplained symptoms that left her unable to walk, Maureen Connell found the answer to her puzzling medical condition at Mayo Clinic.

Barry Connell couldn’t be happier to have his wife of 53 years, Maureen, back.

Though the couple spent 16 years traveling cross-country after Barry retired as president of a manufacturing company in Connecticut, nothing prepared them for the difficult journey they would embark on when Maureen’s health began to decline rapidly in 2015.

For the first five months of that year, The Villages, Florida, resident noticed his normally lively wife wasn’t as alert as she used to be. She was also much slower to respond to situations. Then, on Mother’s Day, Maureen collapsed in the bathroom of the restaurant where their family was celebrating.

That incident led to months of debilitating symptoms for Maureen, along with a series of ineffective treatments. No one could explain what was happening to her. In desperation, the Connells turned to Mayo Clinic, where they were able to finally find the source of Maureen’s problem — hydrocephalus, a buildup of fluid in the brain.

“After struggling with this for three months, we got a preliminary diagnosis less than 24 hours after arriving at Mayo,” Barry says.  Read the rest of this entry »

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Tags: Dr Betty Kim, hydrocephalus, neurosurgery, Transverse myelitis


February 1st, 2017

14-Year-Old Writes the Book on Beating the Odds

By SharingMayoClinic SharingMayoClinic

When Nate Munene Kirera came to Mayo Clinic, he had seizures almost every day and was debilitated by the side effects of medication to treat his condition. After working with his Neurology care team, his seizures are under control, and he’s thriving.

Nathaniel Kirera wasn’t expected to survive birth. When he did, then he wasn’t expected to live to see his first birthday, much less his 14th. He also wasn’t supposed to be able learn, let alone write a book. But he’s done all that, and today his medical odyssey is behind him.

That Nate has achieved so much despite having multicystic hydrocephalus, a condition in which half of his brain and its fluid drainage system formed abnormally, is no surprise to his mother Ann Makena, who, while she was pregnant, dreamed of a son walking and talking.

“The doctor said. ‘I’ve seen very bad conditions, but I’ve never seen anything this bad,’” Ann says. “I said, ‘It’s not that I don’t trust you … but I really felt very confident about this child. I said, ‘No I’m just going to leave it up to God.’”

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Tags: Child and Adolescent Neurology, Dr Katherine Nickels, Dr Nicholas Wetjen, hydrocephalus


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