August 31st, 2015 · Leave a Comment
At 27 weeks into her pregnancy with twins, Amber Sylvester went to Mayo Clinic with her husband, Mike, for an ultrasound test and received news that no parent wants to hear. One of the babies was in trouble. She had enlarged kidneys, no amniotic fluid around her body, and fluid in her abdomen. She would likely not survive until birth. Even if she did survive, doctors said she would likely not live long enough to receive a transplant.
Amber remembers that appointment clearly. â€śThe tech asked me if my water broke,â€ť she says. â€śWhen I saw the concern on her face, I knew that something was not right. All I can remember is crying hysterically.â€ťÂ Read the rest of this entry »
June 26th, 2015 · Leave a Comment
As a pediatric cardiology fellow at Mayo Clinic, Dr. Brandon Lane Phillips cared for a number of children from Mongolia who had congenital heart defects. Before they went into surgery, he would take a photo of their hands next to his on a white piece of paper. He would do the same again after surgery and before they returned home.
The difference was striking. "In the pictures before heart surgery, you could clearly see a blue cast to their skin. After surgery, the blue was gone," he says. "That really hit home for me."
It made an impact because Dr. Phillips is not only a physician who specializes in pediatric cardiology, he's also been a pediatric cardiology patient.
"Many of the kids who came to us from Mongolia had the same heart defect I did: tetralogy of Fallot," he says. "They were often close to their teenage years and had never undergone surgery. These children were usually quite blue. They couldn't walk very far. It was a glimpse of what would have happened to me without the medical attention I received.Â Read the rest of this entry »
June 12th, 2015 · Leave a Comment
If Ty Wiberg, a 13-year-old from Chippewa Falls, Wisconsin, has one guiding principle in life, that might be the one.
The Chippewa Falls Middle School student has undergone 16 surgeries, walks with braces and uses a wheelchair for distance. Ty was born withÂ spina bifida, a spinal cord malformation. He also suffers from hydrocephalus, a buildup of fluid in the brain for which a tube-like shunt drains excess fluid. And he has limited sensation from the knees down, among other issues.
Not that any of that is slowing him down.
Ty mono-skis, distance races with his wheelchair, scuba dives, plays wheelchair basketball, swims and does karate. This past winter, he spent a week at a downhill ski camp in Colorado for kids with disabilities and injured veterans. This spring, he recently received his black belt in karate.Â Read the rest of this entry »
April 15th, 2015 · Leave a Comment
After an ultrasound at 32 weeks into her pregnancy, Anna Ryabova, along with her husband, Oleg Pecherskii, faced a grim prognosis for their unborn son.
"The doctors in Russia told us his kidneys were very small, that they had not developed according to his gestational age, and that he would likely die within five days of his birth," Anna says.
But Roman miraculously survived, and on the 10th day, he was moved to one of Moscow children's hospital, where there was a nephrology department.
There, a nephrologist told to Anna and Oleg that Roman's condition would lead to a number of disabilities: he would have difficulty walking, as well as problems with his hearing, vision and mental development. Oleg asked doctors there about kidney transplant as a possibility for Roman. They answered that it was not a good idea and that children under five years had little chance of survival, in Russia especially. Instead, doctors suggested peritoneal dialysis.
"Nevertheless, we did not lose hope and were determined to do everything for our little son to get him out of disease. We staunchly believed in the best, and today we can say that our grit was rewarded by our very active and cheerful boy," Anna says.Â Read the rest of this entry »
December 3rd, 2013 · Leave a Comment
After heart surgery, Deshawn Corbin can run, jump and swim like a kid ... for the first time
Deshawn Corbin is just 15 years old. But heâ€™s already experienced more life than most people many times his age.
Deshawn was born with complex congenital heart disease that affected the way blood traveled through his body and kept him from getting enough oxygen. His teenage mother, whoâ€™d had no prenatal care, realized she would be unable to care for a child with such special needs and gave him up for adoption. On the day he was born, Deshawn became a ward of the state and had his first open heart surgery. Read the rest of this entry »
Tags: cardiac surgery, Congenital Heart Disease, Dr Ann Reed, Dr Ben Eidem, Dr Harold Burkhart, Fontan Procedure, Juvenile Rheumatoid Arthritis, Mayo Clinic Children's Center, Patient Stories, Pediatrics
June 13th, 2013 · Leave a Comment
â€śWe knew if she made it to Mayo Clinic, she would make it,â€ť says Judy Morinville of the September day Mayo MedAir airlifted her teenage daughter to Mayo Clinic. Mickala Morinville did make it, and her journey serves as a reminder of the miracles that can happen when you combine Mayo expertise with a higher power and a determined patient.
Mickala was in a dire situation. Her lungs were destroyed, likely by a virus, and Mickala struggled to get enough oxygen. Even getting her to Mayo was a challenge. An extracorporeal membrane oxygenation (ECMO) machine was oxygenating Mickalaâ€™s blood. Because of the complexity of transporting these patients, most cannot move to another facility. Thankfully, Mayo MedAir has expertise that made her trip to Mayo possible. Read the rest of this entry »
April 5th, 2013 · Leave a Comment
"My sweet boy," Deborah Morey said as she practically skipped across the room to join him in a group photograph. The boy is her son, 15-year-old Curtis Morey, who was diagnosed withÂ medulloblastomaÂ (a type of brain tumor) on Jan. 27, 2012. The skipping at his Mayo appointment last week was one of several signs that March 28, 2013, was a happier milestone in Curtis' medical adventure.
When the Moreys arrived for the appointment, Deborah was wearing a blaze-orange T-shirt with Curtis' picture on the front and the word "Curtify" printed across the back. Perhaps more surprising, the clinical assistant who greeted them wore a matching T-shirt. Inside, Curtis' doctor,Â Amulya Nageswara Rao, M.B.B.S., of theÂ Mayo Clinic Children's Center, was (you guessed it) also was wearing the same shirt. The emotion in the room was palpable, a mixture of relief and elation. And for good reason -- last Thursday marked the beginning of Curtis' last chemotherapy treatment. Read the rest of this entry »
December 29th, 2012 · Leave a Comment
Lori Blommers used to cry at dance recitals. She knew that her youngest daughter, Harper, would never join the girls on stage because of injuries suffered at birth. Today, Harper is happily dancing away, thanks to an unusual surgery at Mayo Clinic that allowed her arm to move more freely.
When Harper was born on Aug. 26, 2004, she became stuck in the birth canal with only her head delivered. The pulling and the pushing after 27 hours of labor damaged Harper's collarbone and severed the brachial plexus nerves from her left arm.
The brachial plexus is a network of nerves extending from the spinal cord that controls muscle movement and sensation in the shoulders, arms and hands. About 1 in 2,000 babies born in the United States suffer brachial plexus injuries at birth. "It's primarily a problem of big babies trying to get out of small moms,"says Mayo Clinic pediatric orthopedic surgeon William Shaughnessy, M.D. Read the rest of this entry »
December 21st, 2012 · 1 Comment
Even before 6-year-old Ella Schultz was born, she was already a miracle and had beaten many odds. Because Ella's mother, Patty, was 42 years-old when she was considering becoming a parent, and her father, Ernie, had survived cancer, neither were sure they would be able to conceive a child. Fortunately, they were able to become pregnant quickly. Patty's pregnancy was trouble-free, and when Ella was born, on Christmas Day in 2001, she appeared perfectly healthy.
"At two months of age, however, Ella began to develop tan 'cafe-au-lait' spots on her skin, which are pigmented birthmarks," says Patty. "Because these spots can sometimes signal bigger health issues, our local doctor referred us to Mayo Clinic for testing." Read the rest of this entry »