Sharing Mayo Clinic

Stories from patients, family, friends and Mayo Clinic staff

Pediatrics

April 13th, 2017

Keen Expertise Helps Infant Survive Rare, Life-Threatening Brain Tumor

By SharingMayoClinic SharingMayoClinic

To the delight of everyone who knows 3-year-old Rayna Speary, her head is perfectly round and smooth and average size. Given that the youngster was diagnosed and treated for an extremely rare brain tumor that caused her head to balloon in size as a 4-month-old, and that she underwent a dramatic surgery at Mayo Clinic […]

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Tags: Child and Adolescent Neurology, Dr. David Daniels, Family Medicine, Neurology and Neurosurgery


February 3rd, 2017

Astounding Recovery for an 8-Year-Old Boy Shot by an Arrow

By SharingMayoClinic SharingMayoClinic

It’s a story that plays out like a Hollywood movie. A young boy is accidentally struck by an arrow and narrowly escapes death. The arrow pierces the 8-year-old’s backbone and splits his spinal cord. He’s paralyzed from the waist down, and his doctors fear he’ll never walk again. But remarkably, the story has a happy […]

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Tags: Child and Adolescent Neurology, Dr. Denise Klinkner, Dr. Nicholas Wetjen, Emergency medicine, Physical Medicine and Rehabilitation


November 8th, 2016

Changing Minds While Learning to Live With Epilepsy

By SharingMayoClinic SharingMayoClinic

The first time Tehya Mrotek had a seizure during class, she had just begun high school. Most of the faculty and staff at Stewartville High School didn’t know how to respond to Tehya’s condition. The school nurse recognized what had happened, however. The nurse explained it to Tehya when she regained consciousness from her tonic-clonic […]

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Tags: Child and Adolescent Neurology, Dr. Katherine Nickels, Epilepsy


October 11th, 2016

Teen Finds a Positive Way Forward After a Brain Cancer Diagnosis

By SharingMayoClinic SharingMayoClinic

When he was born 13 years ago, Connor Johnson was a “miracle baby,’ according to his parents. Kathleen and Curtiss Johnson had struggled for years to become and stay pregnant. They had given up hope, when they discovered they were nearly four months along. The miracle of Connor’s life took on new poignancy in the […]

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Tags: Dr. Amulya Nageswara Rao, Mayo Clinic Cancer Center, Mayo Clinic Children's Center, medulloblastoma, Proton Beam Therapy


August 3rd, 2016

Healing Baby Lucas’ Heart With His Own Cells

By SharingMayoClinic SharingMayoClinic

Jennifer Gutman calls the day doctors diagnosed her youngest son, Lucas, with hypoplastic left heart syndrome the worst day of her life. The severe heart defect, sometimes referred to as HLHS, was uncovered during what Jennifer and her husband, Brian, thought would be a routine ultrasound. The startling news brought immediate fears for Lucas’ future. Determined to help Lucas, Jennifer’s sister-in-law, a […]

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Tags: clinical trials, Dr. Timothy Nelson, Hypoplastic Left Heart Syndrome, Karen Miller, Mayo Clinic Children's Center, Regenerative Medicine, Research


July 23rd, 2016

‘All We Want Is for Evie to Reach 100 Percent of Her Potential’

By SharingMayoClinic SharingMayoClinic

The night before 8-year-old Evie McLeish’s brain surgery, her Mayo Clinic neurosurgeon David Daniels, M.D., Ph.D., told her parents, “I don’t want you to think of this as the end. This is just the beginning of a marathon.” The procedure was the start of Evie’s long-term care plan for treatment of a brain tumor. Along […]

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Tags: brain tumor, Dr. David Daniels, Mayo Clinic Children's Center, Medullablastoma, Proton Beam Therapy


July 8th, 2016

Desperate for Relief From Pain, Teen Considered Amputation. Today, He’s Back on Both Feet

By SharingMayoClinic SharingMayoClinic

When he was 16 years old, Connor Bleakley asked his father, David, if he could have his foot amputated. David thought it was probably a good idea. By that point, Connor had lived with severe pain in his foot and ankle for years. He had gone through numerous treatments to relieve the discomfort, with little […]

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Tags: Dr. Tracy Harrison, Mayo Clinic Children's Center, Pain Medicine, Pediatric Pain Rehabilitation Program


June 25th, 2016

‘How’d We Get So Lucky?’ — Proton Beam Therapy Available at the Right Time for Jackson

By SharingMayoClinic SharingMayoClinic

For two weeks, 14-year-old Jackson Fisher was plagued by headaches, double-vision, nausea and weight loss. His parents, Michelle and Patrick Fisher, weren’t sure what was wrong. But when Jackson came home one evening completely exhausted after lacrosse practice, they decided it was time to find out what was going on. The next day, they took […]

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Tags: Dr. Amulya Nageswara Rao, Dr. David Daniels, Dr. Nadia Laack, Nancy Heinzelman, Proton Beam Therapy, Randy McKeeman


May 29th, 2016

Limb Lengthening and Regeneration Clinic Offers Hope for Amarachi

By SharingMayoClinic SharingMayoClinic

Just six months ago, every step for Amarachi Austin-Okoh was filled with pain. The 11-year-old from Nigeria had enough trouble walking. Things like running, playing tag or playing basketball seemed like a dream. But now they’re things she can look forward to, thanks to a life-changing trip to Mayo Clinic. Amarachi has a condition called […]

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Tags: Blount's Disease, Dr. S. Andrew Sems, Dr. Todd Milbrandt, Limb Lengthening, Mayo Clinic Children's Center, Orthopedic Surgery


March 4th, 2016

Hope for ‘Happy, Healthy Life’ Thanks to Answers for ‘Never Seen Before’ Problems

By SharingMayoClinic SharingMayoClinic

Written by Bethany Henthorn Our daughter, Mallory, was born with several congenital defects known cloacal exstrophy (OEIS – omphalocele, bladder exstrophy, imperforate anus and spinal defects) found in 1 and 400,000 live births. After Mallory’s 20-week gestational ultrasound, we were referred to Mayo Clinic in Rochester, Minnesota, from Mayo Clinic Health System – Red Cedar […]

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Tags: Cloacal Exstrophy, Labor and Delivery, Maternal Fetal Medicine, Mayo Clinic Children's Center, NICU, Obstetrics and Gynecology, OEIS, Patient Stories, Prenatal Monitoring


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