April 15th, 2015 · Leave a Comment
After an ultrasound at 32 weeks into her pregnancy, Anna Ryabova, along with her husband, Oleg Pecherskii, faced a grim prognosis for their unborn son.
"The doctors in Russia told us his kidneys were very small, that they had not developed according to his gestational age, and that he would likely die within five days of his birth," Anna says.
But Roman miraculously survived, and on the 10th day, he was moved to one of Moscow children's hospital, where there was a nephrology department.
There, a nephrologist told to Anna and Oleg that Roman's condition would lead to a number of disabilities: he would have difficulty walking, as well as problems with his hearing, vision and mental development. Oleg asked doctors there about kidney transplant as a possibility for Roman. They answered that it was not a good idea and that children under five years had little chance of survival, in Russia especially. Instead, doctors suggested peritoneal dialysis.
"Nevertheless, we did not lose hope and were determined to do everything for our little son to get him out of disease. We staunchly believed in the best, and today we can say that our grit was rewarded by our very active and cheerful boy," Anna says. Read the rest of this entry »
December 3rd, 2013 · Leave a Comment
By Mayo Clinic
After heart surgery, Deshawn Corbin can run, jump and swim like a kid ... for the first time
Deshawn Corbin is just 15 years old. But he’s already experienced more life than most people many times his age.
Deshawn was born with complex congenital heart disease that affected the way blood traveled through his body and kept him from getting enough oxygen. His teenage mother, who’d had no prenatal care, realized she would be unable to care for a child with such special needs and gave him up for adoption. On the day he was born, Deshawn became a ward of the state and had his first open heart surgery. Read the rest of this entry »
Tags: cardiac surgery, Congenital Heart Disease, Dr Ann Reed, Dr Ben Eidem, Dr Harold Burkhart, Fontan Procedure, Juvenile Rheumatoid Arthritis, Mayo Clinic Children's Center, Patient Stories, pediatrics
June 13th, 2013 · Leave a Comment
“We knew if she made it to Mayo Clinic, she would make it,” says Judy Morinville of the September day Mayo MedAir airlifted her teenage daughter to Mayo Clinic. Mickala Morinville did make it, and her journey serves as a reminder of the miracles that can happen when you combine Mayo expertise with a higher power and a determined patient.
Mickala was in a dire situation. Her lungs were destroyed, likely by a virus, and Mickala struggled to get enough oxygen. Even getting her to Mayo was a challenge. An extracorporeal membrane oxygenation (ECMO) machine was oxygenating Mickala’s blood. Because of the complexity of transporting these patients, most cannot move to another facility. Thankfully, Mayo MedAir has expertise that made her trip to Mayo possible. Read the rest of this entry »
April 5th, 2013 · Leave a Comment
"My sweet boy," Deborah Morey said as she practically skipped across the room to join him in a group photograph. The boy is her son, 15-year-old Curtis Morey, who was diagnosed with medulloblastoma (a type of brain tumor) on Jan. 27, 2012. The skipping at his Mayo appointment last week was one of several signs that March 28, 2013, was a happier milestone in Curtis' medical adventure.
When the Moreys arrived for the appointment, Deborah was wearing a blaze-orange T-shirt with Curtis' picture on the front and the word "Curtify" printed across the back. Perhaps more surprising, the clinical assistant who greeted them wore a matching T-shirt. Inside, Curtis' doctor, Amulya Nageswara Rao, M.B.B.S., of the Mayo Clinic Children's Center, was (you guessed it) also was wearing the same shirt. The emotion in the room was palpable, a mixture of relief and elation. And for good reason -- last Thursday marked the beginning of Curtis' last chemotherapy treatment. Read the rest of this entry »
December 29th, 2012 · Leave a Comment
Lori Blommers used to cry at dance recitals. She knew that her youngest daughter, Harper, would never join the girls on stage because of injuries suffered at birth. Today, Harper is happily dancing away, thanks to an unusual surgery at Mayo Clinic that allowed her arm to move more freely.
When Harper was born on Aug. 26, 2004, she became stuck in the birth canal with only her head delivered. The pulling and the pushing after 27 hours of labor damaged Harper's collarbone and severed the brachial plexus nerves from her left arm.
The brachial plexus is a network of nerves extending from the spinal cord that controls muscle movement and sensation in the shoulders, arms and hands. About 1 in 2,000 babies born in the United States suffer brachial plexus injuries at birth. "It's primarily a problem of big babies trying to get out of small moms,"says Mayo Clinic pediatric orthopedic surgeon William Shaughnessy, M.D. Read the rest of this entry »
December 21st, 2012 · 1 Comment
Even before 6-year-old Ella Schultz was born, she was already a miracle and had beaten many odds. Because Ella's mother, Patty, was 42 years-old when she was considering becoming a parent, and her father, Ernie, had survived cancer, neither were sure they would be able to conceive a child. Fortunately, they were able to become pregnant quickly. Patty's pregnancy was trouble-free, and when Ella was born, on Christmas Day in 2001, she appeared perfectly healthy.
"At two months of age, however, Ella began to develop tan 'cafe-au-lait' spots on her skin, which are pigmented birthmarks," says Patty. "Because these spots can sometimes signal bigger health issues, our local doctor referred us to Mayo Clinic for testing." Read the rest of this entry »
December 20th, 2012 · Leave a Comment
"Initially, we thought he had strep throat," says Jennifer. "At the same time, Jackson's teacher noticed a dramatic change in his handwriting, and his well-behaved and happy demeanor began to disappear."
As the symptoms persisted, Jennifer and husband Marty suspected a migraine headache or internal pressure on his eye, so brought him to a specialist. A CT scan, however, showed no visible tumor mass or abnormalities. Read the rest of this entry »
December 18th, 2012 · Leave a Comment
Viola and Felipe Gonzalez were stunned when their youngest son's persistent flu-like symptoms were diagnosed as a brain tumor.
The vomiting, holding his head while crying and unsteadiness weren't just a toddler's brush with the flu bug. A CT scan at the local pediatrician's office showed a mass the size of a quarter on Jayden's brain. He was just 20 months old.
Jayden was transported immediately from Fairmont, Minn., to Mayo Clinic via Mayo One emergency medical helicopter, with his parents following by car. The pediatrician had arranged for a team of pediatric neurologists, oncologists and neurosurgeons to meet Jayden upon arrival.
"It happened so quickly," says Viola. "We were shocked and scared but also relieved because we felt Jayden was in good hands." Read the rest of this entry »
December 17th, 2012 · Leave a Comment
Kelly Chubbuck admits she was a cautious first-time parent. But her motherly instinct told her it wasn't her nervousness that caused her infant son Ryan to breathe noisily and at times, even stop breathing." There were times I had to shake Ryan to get him to take a breath," remembers Kelly. "And it wasn't until I consulted with a specialist at Mayo Clinic that my fears were justified and eventually calmed."
The Chubbucks were referred to Dana Thompson, M.D., a Pediatric Otolaryngologist at Mayo Clinic in Rochester. "Dr. Thompson heard high-pitched breathing – called stridor – and initially suspected Ryan had tracheomalacia (a soft or floppy trachea) so she did a laryngoscopy and bronchoscopy to see what was going on," remembers Kelly.
What Dr. Thompson diagnosed is a condition called subglottic stenosis, a life-threatening narrowing of the upper portion of the windpipe (subglottis). "Subglottic stenosis can be caused by trauma, prolonged intubation with a breathing tube, infection, or the irritating reflux of stomach acid," explains Dr. Thompson. "But Ryan was born with this condition, which is called congenital subglottic stenosis." Read the rest of this entry »