Posted on February 19th, 2014 by mayoclinic
For her first 38 years, Jayne Bushman was a picture of health. But then one morning she woke up with an earache, something she says she'd never before experienced. Her first stop was to see her Family Medicine doctor at Mayo Clinic in Rochester who, unable to pinpoint the exact cause of her pain, sent her to Mayo's Department of Otorhinolaryngology. It was there that after a series of additional tests and examinations, Bushman learned she had much more than and ear infection. The diagnosis was Wegener's granulomatosis, a rare disorder that inflames the blood vessels and restricts blood flow to various internal organs.
The ear issues were simply one manifestation of the disease, which often affects the kidneys, lungs and upper respiratory tract. The restricted blood flow caused by the disease can damage these organs.
As Bushman listened to doctors explain her diagnosis, she says she felt "shocked." That only got worse after she went home and began using the Internet to research her disease. "The very first thing I did after my diagnosis is what a lot of people do, which is the very wrong thing," she says. "And I now tell any person I meet or talk to online who gets diagnosed with Wegener's disease to stay off the Internet. It'll do nothing but scare you. That's exactly what it did to me."
Still, Bushman says she only allowed herself to feel that way for a moment or two. "Initially, it was a huge shock," she says. "But I had three kids at home, I have a career … and I sure as heck wasn't going to let this get in the way of that. I've always tried to not live in my disease and to instead live with my disease.” Read the rest of this entry »
Posted on February 5th, 2014 by Seth Locketz
I was diagnosed with eosinophillic esophagitis (EE) by another provider, who said I needed to have my esophagus stretched every six months with a balloon. I decided to get a second opinion at the Esophagus Clinic at the Mayo Clinic. Wow, am I glad I did! At first, I was given a soft steroid, which may the EE go away! Which was great news! However, then Dr. Alexander and his team did some additional testing of my esophagus, and they were able to figure out that my EE (for which I had 10 times the normal amount of eosinophils) was actually caused from eating eggs, peanuts and dairy! Through the great care of Dr. Alexander and his team, not only did I not have to have my esophagus stretched, I did not even need to take medicine!!!! Read the rest of this entry »
Posted on May 31st, 2013 by makalajohnson
I was born profoundly deaf due to auditory neuropathy and did not hear a single sound until I received a cochlear implant when I was 4 ½ years old. My parents said that I was always a happy, sweet child and I was born with a smile on my face and a twinkle in my eye. Throughout my life, I’ve had to deal with many obstacles due to my deafness that most people don’t have to deal with. However, my cochlear implant, this miracle of sound, gives me an appreciation of sound and richness to life that others may take for granted. Through it all, I’ve held onto my belief that you shouldn’t just live life, but love it! Read the rest of this entry »
Posted on January 15th, 2013 by makalajohnson
Imagine listening in real time to the thump, thump of your own heartbeat, the rush of your blood pulsing through your veins, and even the slightest twitch of your eyes - all in surround sound. Those are but a few of the symptoms that Wendy Tapper was experiencing when she arrived at the Mayo Clinic in May of 2012.
The Journey to Mayo
Outgoing and energetic Wendy, of Kansas City, Mo., enjoyed a career as a producer and publicist. Bringing people and ideas together was second nature to Wendy and aided in her determination to find the answers in her own health care.
For three years prior to coming to Mayo Clinic in spring 2012, Wendy went from doctor to doctor and endured batteries of tests, scans, appointments and misdiagnoses. Her rare condition ultimately revealed by Mayo physicians was masked in part by two distinct illnesses - breast cancer and a stroke.
While those illnesses and the treatments Wendy was receiving are life-altering, they were compounded with the escalation of an underlying third and separate issue. It was the escalation of her symptoms of dizziness, hearing loss and a drastically diminishing quality of life that brought Wendy to Mayo Clinic. Read the rest of this entry »
Posted on December 29th, 2012 by Margaret Shepard
Respiratory health is important to John Saviano, a man who has led a healthy life, who doesn't smoke, and who drinks only moderately. For years, he routinely made annual visits to two physicians. He saw his regular physician for basic check-ups. Because scuba diving is one of the Miami Beach man's hobbies, he also saw an ear, nose, and throat specialist to determine that his nasal and ear passages were open to ensure safe diving and snorkeling. In 2003, however, a persistent sore throat sent him for an extra visit with his regular ENT physician.
The diagnosis was adult tonsillitis, and the initial treatment was antibiotics. When that treatment brought no improvement, his physician performed a tonsillectomy. John found recovery from that surgery painful and slow. After several weeks of pain, and further visits to the ENT surgeon, it was apparent that something was still wrong. As John put it, "My tonsil grew back." Something was in his throat and could easily be felt. Read the rest of this entry »
Posted on December 22nd, 2012 by Margaret Shepard
Tom Sherrard often told his wife, Kris, that they really needed to spend more time in Minnesota. Tom has vacationed in Northern Minnesota ever since he was a youngster. Today he, Kris, and daughters Megan and Sarah continue to vacation at the family summer home, where they enjoy boating, fishing, and all the lake has to offer. During 2006, they did spend more time in Minnesota, but it was farther south, at Mayo Clinic.
Tom first noticed a pea-sized lump on his neck in August of 2005. When he first felt it, he thought perhaps it was a swollen gland that would go away. Because his daughter Megan was to be married in a couple weeks, he didn't want to sidetrack the family from the wedding plans. So he put off seeing a doctor.
He finally made an appointment with his primary care physician in September, but ended up canceling because work got busy. He remained aware of the lump, which wasn't going away, and family members were asking about it. Finally his daughter Megan became very persistent, insisting that he needed to do something about it. Read the rest of this entry »
Posted on December 4th, 2012 by Margaret Shepard
David Farrell lives and works in the small town of Holyoke, Colorado. The 6'2" volunteer firefighter and emergency medical technician (EMT) had always worked out and stayed in good physical condition. He and his wife, Nicolette, have two sons, two daughters, and three grandchildren. They enjoy motorcycle road trips, camping, and going to NASCAR races. In fact, he dates the first indication of the cancer on the base of his tongue as about three weeks after getting home from the Talladega 500 in Alabama.
When he arrived at the Speer Cushion Company that September 2004 morning, one of the women who worked for him asked, "What's that bump on your neck?" Dave had seen no bump while shaving only an hour and a half earlier, but when he went to a mirror, there it was, about the size of an egg. Read the rest of this entry »
Posted on December 3rd, 2012 by Margaret Shepard
Professor had a feeling in his throat area for months, but was told not to worry about it. After two to three years it hadn't gotten better. Though he had no pain, his speech was beginning to slur, and he was referred to another doctor.
The second doctor diagnosed the cancer and described the surgery he recommended. When he left the office, Jim called his wife, Gayla, and told her, "You're not going to believe this, honey. I have cancer." When she asked him to come right home, he replied, "We're going to the Mayo Clinic." Read the rest of this entry »
Posted on November 19th, 2012 by Margaret Shepard
For years, Danny Snodgrass had trouble speaking. His local doctors attributed it to drainage issues. Eventually, an ear, nose and throat specialist ordered a biopsy. It came back positive for throat cancer.
Snodgrass, who had never smoked and drank alcohol only occasionally, was stunned. An online search for treatment options led him to Mayo Clinic, Rochester, Minn., which offered a laser alternative to conventional surgery.
When Snodgrass arrived for a meeting with Mayo Clinic doctors, he was hoping to be told his cancer diagnosis was wrong. Instead, he learned his cancer was advanced and had spread into the lymph nodes of his neck. Read the rest of this entry »