Sharing Mayo Clinic

Stories from patients, family, friends and Mayo Clinic staff


Sara Jacobsen (@saraf17) published a blog post · February 5th, 2014

Colorado Nurse Finds Answers to Medical Mystery

Written by Sara Jacobsen

Everyone who visits the Mayo Clinic has a story. Though my story may be a lot like all of the other patients who have come and gone through the Mayo Clinic system, I want to share my gratitude for the organization, facility and clinic that Mayo is.

Sara JacobsenThe year 2013 proved to be a bit of a roller coaster for me. I started out with bowel and bladder difficulty that ultimately spread to affect my neurological system and breathing. I had seen every specialist and had more tests done than I ever knew were possible. In August, I started worsening. I was having difficulty taking a deep breath in, while having increased right sided weakness, fatigue and numbness. The whole array of diagnoses were thrown at me (ALS, MS, Cancer, Myasthenia Gravis, and everything in between). I was placed on oxygen at night and it was becoming difficult to have enough energy to care for my two young boys (ages 3 and 5). I continued to work as a nurse, but I wasn't as effective as I had been.

In October, things continued to worsen. I had to stop running because my right foot was becoming numb, and I had to limit my activity because it was becoming more and more difficult to breathe. By the time I decided to come to the Mayo Clinic (the best place in the world for medicine) in November, it was hard for me to drive home at night because of the numbness in my right foot, it was getting difficult to make it through a day of work, and I had no energy for my kids. The quality of life I had was diminishing quickly.

When we arrived at the Mayo Clinic, I had the awesome privilege of seeing Dr. Karen Mauck. She spent an incredible amount of time with me and ordered more tests. The way the Mayo Clinic moves you through each test and gets you taken care of is more than incredible. They have a system down that is efficient, caring and absolutely amazing. After being there for 7 days, I was able to find a diagnosis of Hashimoto's thyroiditis. The scary diagnoses were eliminated. I had some rare neurological antibodies that were elevated, but there is a specialist for that too! And, they said not to focus on that and recheck it in a year.

I was given a plan. I was given validation and care that was beyond anything I could ever have asked for. I am back home in Colorado. I am working, exercising and enjoying, and playing with my boys. I will be forever grateful to Dr. Mauck and the system that Mayo is. Thanks for all you do and will continue to do. May you all continue to be used and blessed every day. Thank you for letting me share my story!

Dr Karen Mauck Hashimoto's thyroiditis Patient Stories

 

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Kim (@magnoliat) · Sat, Mar 1 at 5:52pm CDT · #

I have hashimoto but they won't give me anything. Been so sick I went to a neuro and labs showed Epstein Barr virus and cmv. Hoping after nerve test they will know what to do. MRI came back good.

Joan (@dakotajoan) · Sat, Mar 1 at 10:55pm CDT · #

It's sad you had to go through all that to find out. Stopthethyroidmadness.com helped me ask for the right tests for my daughter so I could find out what it was. I am wondering what mayo's did for you. Asking you not to focus on neurological antibodies and wait a whole year seems questionable. I am wondering if they discussed diet at all? Did they tell you hashis means anitbodies against your thyroid that's made up of protein that is like the protein in gluten and casein?

Kim (@magnoliat) · Sun, Mar 2 at 2:56pm CDT · #

Thanks. I went gluten free for three months and I felt good for a lil time
but all the same again.
So far after getting hashimoto my dr sent me to a neurologist. He did MRI
of heAd and it was normal. Labs came back positive for ebv and cmv. Chronic
fatigue.
So I am going back in March 13th to do a nerve study on arms and legs. Then
he will discuss further. What is exactly going on.
I am having tremors in my right hand and a buzzing feeling on and off in my
left leg below knee. Most of my pain is neck and back mid rib pain. Like
burning pain. I don't take my tramadol quick enough my legs and arms start
hurting.
Just want it taken care of so I don't get something worse like ms or
Hodgkins. So fatigued it's crazy and I am a go getter. But now I can't plan
a thing. I can feel bad as quick as I feel good. Or vice versa. Strange.
Teaching me patience for sure.