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Makala Johnson

Rare heart-liver transplant gives South Carolina woman a second chance at life

Posted by makalajohnson, Mar 25, 2013

Beki Rose and familyBeki Rose and her husband, Tom, had met with half a dozen doctors, and they all said the same thing.

"They told me to go home and get my things in order," says Beki, a 51-year-old mother of three with arrhythmogenic right ventricular dysplasia. The congenital condition had so damaged Beki's heart and liver that she would need a rare heart-liver transplant to survive. But a recent diagnosis of liver cancer meant that Beki was not a candidate for a liver transplant. "I was told no doctor would take my case."

Then she came to Mayo Clinic, where Russell H. Wiesner, M.D., a gastroenterologist, gave her a reason to hope.

"Dr. Wiesner didn’t think I had liver cancer," says Beki. Imaging exams had shown large nodules on her liver, which doctors assumed were cancerous. "No one had been willing to do a biopsy until we got to Mayo."

A biopsy showed the nodules were benign. Beki was eligible for the transplant list.

Of the 130 heart-liver transplants that have been performed in the United States, 25 have been performed at Mayo Clinic — more than at any other medical center. Beki was comforted by Mayo's experience, but knew the odds still weren't in her favor.

"My panel-reactive antibody level was 93 percent, which meant my body would only accept 7 percent of donor organs," says Beki. Doctors implanted a ventricular assist device to help her heart pump blood until a viable donor heart became available. Nine months later, she received a transplant.

"My experience was amazing," says Beki, who is regaining her strength after nearly 20 years of deteriorating health. "The unusual is usual at Mayo. I wish more people would be advocates for their own health care and go to Mayo for help. Mayo is there for everyone."

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Tags: arrhythmogenic, Beki Rose, Dr. Russell Wiesner, Heart Transplant, heart-liver, liver transplant, right ventricular dysplasia


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