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mjoanali

@mjoanali

Activity by @mjoanali

mjoanali

Hi Margiemae:
So good to hear from you and really happy that you have taken the time to respond. I am praying for your husband that the spot turns out to be just an old scar because when I had the balloon angioplasty last year, my arteries were ruptured and if I have to go to another emergency department, they think that the spots are new clots but it is just the scars from the ruptures. I am 54 years old turning 55 next month. I have had this PH since I was 31...that was when they found the 2 clots in my lungs and the doctors did not diagnose PH..they inserted an IVC ( inferior vena cava) filter into my chest in 2003. I received a letter from Health Canada that the filters were recalled so I did some tests on Thursday and next Thursday, I will see the vascular surgeon to get the results. I will keep you updated and I hope you guys get the positive results that we are hoping for and please tell your husband to keep smiling and God never gives us more than we can endure. It is a test of faith. God bless and hope to hear from you soon. ..
Love
Joan

mjoanali

Hi Margiemae:
Thank you for sharing your husband's story and I wish him all the best. ..I have an IVC (inferior vena cava) filter since 2003. It was inserted to prevent clots from going to my heart. It has been recalled by Health Canada because it was supposed to be a temporary filter. I'm going to the hospital today to run some tests and then they will decide what the next step will be.
I wish you and your husband all the best for a speedy recovery. .illness takes a toll on the whole family. God bless...talk to you soon. ..Joan

mjoanali

Hi..my name is Joan and I reside in Ontario Canada . I have pulmonary hypertension and have had pulmonary thrombo endartorectomy in 2013. It was a very scary surgery and like Laura, I was extremely scared knowing that my heart and lungs has to cooldown. I had several complications but thankfully I came out a lot better and am able to walk , climb stairs etc. However , last year the surgeon called me to advise of new procedure called Balloon pulmonary angioplasty (BPA). The first procedure went well and I felt great, however, the following procedures were not great. Several of my arteries were ruptured and I felt as if the life has been "sucked out " of me. I do not plan to do anymore BPA'S. I am currently being followed by a respirologist who is amazing. I have right bundle block, severely enlarged right ventricle and severe left chest pressure and constant pain. I'm currently on blood thinners because my PH is caused by blood clots as I have protein S deficiency. I am currently on a medication called Adempas which is specifically for PH.
Thank you for reading my story and I look forward to hearing from your team with any feedback that may be helpful to me . My health, especially my heart seems to be detoriating.I can be reached by email and I would also like to hear of other people's journeys with PH. Thank you and hope to hear from you at your earliest convenience .

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