Sharing Mayo Clinic

Stories from patients, family, friends and Mayo Clinic staff

HoytFinnamore

Hoyt Finnamore @HoytFinnamore

Mayo Clinic Department of Public Affairs. Editor, Sharing Mayo Clinic and In the Loop. 

Activity by Hoyt Finnamore @HoytFinnamore

HoytFinnamore

Unfortunately, we can't diagnose conditions, provide second opinions or make specific treatment recommendations through this correspondence.

If you would like to seek help from Mayo Clinic, please call one of our appointment offices (Arizona: 800-446-2279 Florida: 904-953-0853 Minnesota: 507-538-3270).

If you would like to connect with an online community where you can share your experiences, find support from people like you, and receive trustworthy information from Mayo Clinic experts, visit: http://connect.mayoclinic.org/.

HoytFinnamore

The Calmare website lists locations that offer the treatment. http://calmarett.com/facilities/facilities.html?f=Medical#panelid=WesternRegion

HoytFinnamore

Tue, Aug 16 at 10:57am CST by @HoytFinnamore · View  

Coordination and Teamwork Make Simultaneous Surgeries Seamless for Heart Transplant Recipients

WilliamandMichale805Michael Tyler and William Tiger didn’t know one another before the summer of 2016. But they now share a unique life event. Both 55-year-olds underwent heart transplant surgery at Mayo Clinic’s Arizona campus on the same day, at the same time. Completing the simultaneous procedures was a milestone for the Transplant Center team in Arizona, who had not previously been called on to perform more than one heart transplant at a time.

“It was truly remarkable how the team came together,” says transplant coordinator Allison Smith, who said the offers for both hearts came in on a Friday afternoon. Extensive coordination and precise timing were crucial to providing the best possible outcomes for the patients.

“When we all came in on Monday morning and knew the patients were doing well, it was like a euphoric high,” she says.  [...]

Click here to view the rest of the post

Login here to comment.
HoytFinnamore

Paula, you can find information about lupus at: http://www.mayoclinic.org/diseases-conditions/lupus/basics/definition/con-20019676. If you would like to seek help from Mayo Clinic, please call one of our appointment offices (Arizona: 480-301-1735 Florida: 904-953-0853 Minnesota: 507-284-2511).

You might also consider looking into our Mayo Clinic Connect website (http://connect.mayoclinic.org), where you can communicate with other patients who may have had similar experiences.

HoytFinnamore

Hi, Cheryle555. The links at the end of the article may help you learn more about this condition. You might also check the Heart & Blood Health Group on Mayo Clinic Connect: http://connect.mayoclinic.org/group/heart-blood-vessel-conditions/. If you'd like to seek help from Mayo Clinic, check our appointments page: http://www.mayoclinic.org/appointments.

HoytFinnamore

Hi, karenmaz. You can learn about Mayo's campuses in Arizona, Florida and Rochester through our Patient and Visitor page, where you can find travel guides and more: http://www.mayoclinic.org/patient-visitor-guide. Here's a link to our appointment page, where you can find phone numbers or request an appointment online: http://www.mayoclinic.org/patient-visitor-guide.

HoytFinnamore

Dec 10, 2015 by @HoytFinnamore · View  

Complementary Medicine Provides Healing Touch for Patient in Final Days

Karl Weissig enjoying music and nature.Marilyn and David Weissing, both Mayo Clinic employees, knew something was wrong when their 19-year-old son, Karl, asked to be taken to the hospital one summer evening in 2014. Karl, always healthy and active, rarely complained about anything. So David immediately drove him to the Emergency Department at Mayo Clinic’s Rochester campus.

Karl, a beekeeper, was the third of eight children raised on a hobby farm in Winona County, Minnesota.  Karl developed an interest in sustainable farming as a young child and had worked with several local farmers to expand his knowledge and expertise.

He spent the winter after his high school graduation managing an organic dairy herd in Missouri. By the following July, he was back home working a construction job, making a movie with some friends, and playing in a bluegrass band with his brothers.

Karl was initially diagnosed with atypical hepatitis A, possibly acquired a few months earlier during an outbreak at a restaurant. When his liver started to fail, Karl was put on the liver transplant list and, miraculously, received a new liver before a month had passed.  [...]

Click here to view the rest of the post

Login here to comment.
HoytFinnamore

Dec 8, 2015 by @HoytFinnamore · View  

Transplant Diary and a Father's Day Heart

Clint Frederick wrote a book about his heart transplant experience at Mayo Clinic. When Clint Frederick learned that he needed a heart transplant, he naturally wondered what the road ahead would look like. So he searched for a book that described the process from a patient’s perspective.

His search came up short. But it planted seed. Perhaps he'd change things for other patients.

"After I was approved for a heart transplant, I decided to keep a diary," he says. The diary became the basis for a book, supplemented by information he drew from his medical record, that chronicles Clint's 110 days on the transplant list. But his story begins long before his wait for a new heart.  [...]

Click here to view the rest of the post

Login here to comment.
HoytFinnamore

Nov 25, 2015 by @HoytFinnamore · View  

Surprise Diagnosis Spurs Learning Curve, Search for Help

Cheryl Sturdevant was surprised by her livedoid vasculitis diagnosis.Diagnosed with a rare disease, livedoid vasculopathy, Cheryl Sturdevant turned to Mayo Clinic for help. Then she turned to helping others.

When Cheryl Sturdevant found out she had livedoid vasculopathy, she had no idea what it was. An uncommon disorder, livedoid vasculopathy affects the skin. For no clear reason, it often causes deep wounds in the lower legs and feet, and those wounds can trigger debilitating pain.

"I had symptoms from my calves down onto my feet. The wounds on top of my feet made it difficult to wear shoes. The pain was intense," says Cheryl. "I had been teaching at the time of my diagnosis. But I wasn't able to keep doing that, due to my symptoms. I started looking everywhere for information and help."

Both were hard to come by. Cheryl went to a number of doctors, including several specialists, but she was unable to find someone who could work with her to manage the disease.

She kept researching livedoid vasculopathy and found information about it on a Mayo Clinic website. That prompted her to make a phone call that would change everything.  [...]

Click here to view the rest of the post

mlemieux

Martin, Mentor responded Tue, Feb 2 at 5:24pm CST · View

Cheryl, You're not alone!!! My heart goes out to you and your family. Having LV is not fun at all and can sometimes hurt the mind most of all. Please feel free to connect with us in our Livedoid Vasculopathy discussion group. Mayo Clinic Connect - Livedoid Vasculopathy: 1) http://connect.mayoclinic.org/discussion/i-am-looking-for-outcomes-in-the-use-of-blood-thinners-in/ 2) http://connect.mayoclinic.org/discussion/livedoid-vasculopathy/ Good luck with everything! Regards, Martin Lemieux @Martin_Lemieux - Tweet

Login here to comment.
HoytFinnamore

Nov 18, 2015 by @HoytFinnamore · View  

Putting the Pieces Together to Solve Medical Mystery

Kim Goranson found help for lupus symptoms at Mayo Clinic.Kim Goranson knew something wasn't right. For more than 10 years, she endured exhaustion, pain and bouts of confusion. But to her frustration, repeated medical evaluations revealed nothing. A high-energy real estate agent in Lincoln, Nebraska, Kim saw her successful career slip away as the symptoms took a heavy toll on her life.

"I had to quit working in 2010. I was only 50 years old," says Kim. "I thought I'd rest, get myself back together, and then get back to work. Instead, I got worse and worse. Many days, I didn't get out of bed."

Her outlook began to change, however, when Kim was referred to Mayo Clinic in Rochester, Minnesota. Although it took some time to arrive at a clear diagnosis, her Mayo Clinic care team was able to put the pieces of the puzzle together and determined that Kim had lupus.  [...]

Click here to view the rest of the post

paulaclatt

paulaclatt responded Sat, Feb 20 at 10:27am CST · View

I have very similar problems. I'm desperate and need to be seen by people who really care please contact me or set an appointment.

HoytFinnamore

Hoyt Finnamore responded Sat, Feb 20 at 2:08pm CST · View

Paula, you can find information about lupus at: http://www.mayoclinic.org/diseases-conditions/lupus/basics/definition/con-20019676. If you would like to seek help from Mayo Clinic, please call one of our appointment offices (Arizona: 480-301-1735 Florida: 904-953-0853 Minnesota: 507-284-2511). You might also consider looking into our Mayo Clinic Connect website (http://connect.mayoclinic.org), where you can communicate with other patients who may have had similar experiences.

Login here to comment.
HoytFinnamore

Nov 17, 2015 by @HoytFinnamore · View  

Taking It in Stride -- Amputations, Heart Surgeries and a Pump Won't Dampen Dick Feller's Spirit

Dick Feller remains positive about his unique medical experience, including amputations and a heart pump. Dick Feller likes to joke about his medical escapades.

In just six years, Dick Feller had three open-heart operations, had both legs and an arm amputated, and was fitted with a left ventricular assist device, or LVAD, to keep his heart pumping. That's a lot for one person to take. But with unconditional support from his family and an unwavering sense of humor, Dick hasn't let the experience affect his attitude.

"I have three stumps and a pump," Dick, 71, jokes. "And because I didn't want things to get boring, I had gall bladder and kidney stone surgery in between those other procedures."  [...]

Click here to view the rest of the post

Login here to comment.
HoytFinnamore

Nov 12, 2015 by @HoytFinnamore · View  

Restoring Mobility and Hope After Traumatic Motorcycle Crash

Troy Chroniger enjoys time with his daughters after brachial plexus surgery.

Troy Chroniger enjoyed a busy, if hectic, life in Orlando, Florida, as a construction estimator and dad to three daughters. To relax, Troy, age 43, enjoyed sports and an occasional motorcycle ride with friends. Life changed dramatically one Saturday in November 2011, when he was out for a ride, hit a rough patch of road, veered and collided with a guardrail. He was rushed to a hospital in Orlando, where doctors diagnosed him with a debilitating brachial plexus injury.

"It was one of the worst the doctor said he'd seen," Troy recalls the physician saying. Of the five nerves that make up the brachial plexus in the shoulder, Troy suffered a complete nerve evulsion injury. His doctor referred him to Mayo Clinic, which performs hundreds of brachial plexus procedures annually.  [...]

Click here to view the rest of the post

Login here to comment.
HoytFinnamore

Nov 5, 2015 by @HoytFinnamore · View  

Gut Feeling, Being in Right Place May Have Saved Lynn Witherspoon

Lynn Witherspoon and her husband moved to Jacksonville to be close to Mayo.When Lynn Witherspoon was diagnosed with breast cancer, she wanted to move quickly. And she wanted to move to a place she felt would give her the care she needed. So she and her husband moved from their home in North Carolina to Jacksonville, Florida, to be near Mayo Clinic's Florida campus.

"We live in a rural area, and I felt more comfortable going to Mayo for my cancer care," she says. She'd had relatives treated at Mayo. "So I knew what it offered and its reputation."

Lynn was diagnosed with invasive ductal carcinoma. She completed five months of chemotherapy, and had a lumpectomy and removal of some lymph nodes, followed by radiation therapy. Something told her she should take another step to protect her health.  [...]

Click here to view the rest of the post

Login here to comment.
HoytFinnamore

Nov 3, 2015 by @HoytFinnamore · View  

Bone Marrow Transplant Is Answer for Mom of Seven Battling Aplastic Anemia

A bone marrow transplant helped Kristen Soley battle aplastic anemia.

Photo: Tina Fisher Photography

When her doctors suspected Kristen Soley had aplastic anemia, a rare condition in which the body stops making enough new blood cells, she says something told her to call Mayo Clinic.

Aplastic anemia carries with it a high risk of infections and uncontrolled bleeding. It can develop at any age and can occur suddenly. In Kristen's case, signs that something was wrong included swelling and bruising around her ankles.

Kristen and her husband, Nate, drove from their home in Waverly, Minnesota, to Mayo Clinic's Rochester campus, where her diagnosis was confirmed, and doctors outlined a treatment plan.  [...]

Click here to view the rest of the post

ellebee

ellebee responded Nov 19, 2015 · View

I am glad that you had a great experience at Mayo for your transplant for aplastic anemia. I also had a transplant at Mayo for aplastic anemia and I received the most horrible care ever. I also now have a diagnosis of PTSD caused by the poor care I received. I would never recommend anyone to get their transplant at Mayo.

Login here to comment.
HoytFinnamore

Oct 30, 2015 by @HoytFinnamore · View  

Putting Kieran's Heart Back Where it Belongs

Baby Kieran is health today thanks to pediatric heart surgery at Mayo Clinic.Caitlin Veitz never takes for granted just how special her daughter Kieran is. “She’s laid back, happy, wonderful,” Caitlin says.

The circumstances around her birth, however, were not as serene.

At her 20-week ultrasound, Caitlin learned her baby's heart was not where it was supposed to be and that it had developed outside of the chest wall. The condition, called ectopia cordis, is "one of the, if not the, most rare congenital heart defects,” according to Joseph Dearani, M.D., a Mayo Clinic pediatric cardiac surgeon.

“We didn’t have any idea that anything like that could happen," says Caitlin. "It was scary. The odds were stacked against her.”  [...]

Click here to view the rest of the post

Login here to comment.
HoytFinnamore

Oct 29, 2015 by @HoytFinnamore · View  

Emergency Eye Surgery on Halloween for a 'Scary' Close Call

Brianna Bosley gets an eye exam from Dr. Dave Patel. It was Halloween night, 2014. Brianna Bosley, 18, a studio arts major at the University of Arizona in Tucson, was planning to attend a party with friends.

Some 100 miles to the north, in Scottsdale, Arizona, Dave Patel, M.D., a Mayo Clinic ophthalmologist, also was getting ready to celebrate Halloween with his 10-month-old son, something he had long-planned with his family. And he had made a pledge to not be a slave to his cell phone that night.

Neither Brianna nor Dr. Patel knew their lives would soon intersect – in a profound and dramatic way.  [...]

Click here to view the rest of the post

Login here to comment.
HoytFinnamore

Oct 21, 2015 by @HoytFinnamore · View  

Here Comes (the Father of) the Bride — With a Little Help From Mayo

Andre Pearson traveled to his daughter's wedding with some help from Mayo Clinic.

Andre Pearson wanted nothing more than to be in Indio, California, last June to answer the question: "Who gives this woman to be married to this man?" But up until the night before, it looked like he was going to be resigned to watching his daughter, Alexandra Price, get married from half a country away. Heart and kidney failure had kept Andre in a hospital bed at Mayo Clinic's Rochester campus since March. But then his care team had an idea.  [...]

Click here to view the rest of the post

Login here to comment.
HoytFinnamore

This procedure was done at Mayo Clinic's Rochester campus. If your daughter is a Mayo Clinic patient, contact your primary physician to get a referral into the Pain Clinic for a Scrambler evaluation.

Loading information...
Contact Us · Privacy Policy