Paul Scotti (@pscotti)
Activity by Paul Scotti
Being diagnosed with multiple myeloma, a serious blood cancer, is difficult enough to accept. But being told that you also have a rare hematologic condition called amyloidosis — a disorder that could prevent you from receiving the bone marrow transplant necessary to combat your myeloma — could put anyone’s strength to the test.
Such was the case for 67-year-old Kendall Schwindt of Sun City, Florida, a retiree who spent 26 years with Walmart and who has remained active playing golf and riding his motorcycle. After experiencing a sudden illness in March 2013 while visiting his son, Schwindt knew something wasn’t right. After visiting his family doctor, he was told he had a very high creatinine level in his blood and was sent to a local nephrologist for a kidney biopsy.
His diagnosis — multiple myeloma, a cancer of the plasma cells, a type of white blood cell present in bone marrow. Plasma cells normally make proteins called antibodies to help the body fight infections. But that wasn’t only devastating news Schwindt would receive. [...]
Such was the case of 67-year-old Donald Glynn of Jacksonville, Fla., an avid runner who has participated in countless marathons, half marathons and 5K races over the last 30 years. He also watched his diet, weight and blood pressure, and did most of the things you’d expect of someone who led a healthy lifestyle. But Donald, who worked as a surgical assistant at Mayo Clinic in both Rochester and Florida before his retirement, neglected one thing — regular checkups. Given his family’s history of heart disease (his mother, grandmother and grandfather all had it), that turned out to be a serious mistake.
After experiencing an irregular heart rate earlier this year, Donald was shocked to learn that his arteries were severely blocked and that he’d need a heart transplant. His condition was serious enough that while waiting for a new heart, he’d need to have a left ventricular assist device (LVAD) implanted to help his damaged heart function properly.
“Needless to say, given my lifestyle and being a runner for so many years, I was stunned to hear about the condition of my heart,” he says. “I thought I was doing everything right, but given my family history, it apparently wasn’t enough.” [...]
To 22-year-old double lung transplant recipient Curtis Higgons, being dubbed the “miracle patient” by his physicians may seem somewhat overstated. But when you consider the medical challenges his doctors had to contend with in preparing him for a life-saving double lung transplant, his moniker may be well deserved.
Curtis was born with cystic fibrosis, an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States alone. A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and can lead to life-threatening lung infections. It also obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. As the diseases progresses, lung transplantation often becomes a last treatment option.
“Although I was diagnosed with CF at six months old, it only had minor effects on my breathing until I reached my early high school years,” says Curtis. “I was a varsity athlete in bowling and golf, but during my sophomore year of high school things began to progress, and I ended up in the hospital three times.” [...]
Melanoma is the deadliest form of skin cancer. And for those patients whose disease has spread beyond its origination site, most treatment options have offered only modest success in controlling the disease. So when James Donaghy of Huntersville, North Carolina, entered a clinical trial at Mayo Clinic in Florida testing the effectiveness of an experimental immunotherapy drug called MK-3475, he figured he had nothing to lose after several other chemotherapy treatment options failed to control his melanoma.
The 67-year old, Brooklyn-born Donaghy had his first experience with melanoma in 1994, when he found a mole on his back. As a phone company lineman for 36 years who worked outdoors on a daily basis, he figured his prolonged exposure to the sun may have put him at high risk for skin cancer. The mole was eventually diagnosed as melanoma and removed by a plastic surgeon. With regular monitoring by his doctor, all was well for many years, until he found another mole in 2011, this time on his neck, which turned out to be a recurrence of his melanoma.
After 35 years on the road as a video technician for the CBS network covering major sporting events including the Super Bowl, the Olympics, SEC football, the Masters Golf Tournament, and the U.S. Open Tennis Tournament, Brooklyn native Robert Duffy was living a very active and busy life that kept him on the road about 240 days a year. At 60 years of age, his diabetes was under control, and he otherwise seemed healthy as he led a life of irregular hours, extended travel and living out of hotel rooms.
All that changed in 2011, when he became ill while covering a golf tournament in San Diego. He went to the hospital, and during his 10-day stay, Duffy was diagnosed with both liver and kidney disease. He was told he needed to have a confirmed appointment with a transplant center before he could be released from the hospital. Fortunately for Duffy, he had recently moved to Amelia Island, Fla., just a few miles down the road from Mayo Clinic in Jacksonville, the only transplant center in the Jacksonville / northeast Florida area.
“I was told I needed both a liver and kidney transplant, and was extremely lucky to end up at Mayo Clinic, as they were the only transplant center willing to list me because of my hepatitis-C, which I contracted in my teens but has been dormant for the past 40 years,” says Duffy. “The fact that I had recently moved to the Jacksonville area, where a top transplant center happened to be located, was a true blessing in my case.”
Duffy was put on the transplant list in March 2012 and received both organs from a deceased donor on Feb. 14, 2013, which happened to be Valentine’s Day and the birthday of his beloved dog, Bella. One year later, he is doing well and has decided to devote his life to helping others.
“I have a new outlook on life after going through this experience,” he says. “Your health is your wealth, and nothing else really matters if you aren’t healthy and happy. I’ve decided to spend my time giving back to others in need, like my donor has done for me.”
Since Duffy lost his father at the age of 12 and understands the need for a male mentor at that impressionable age, he is now involved in several community activities relating to children in the Amelia Island area.
“I know what it felt like losing my dad at a young age, and figured maybe I can help fill that void in some small way for other kids in the same situation,” he says.
Duffy participates in the Boys and Girls Club in Amelia Island, an organization that helps young people to reach their full potential as productive, caring and responsible citizens. He is mentoring young students and helping them with their homework.
He also got involved in a program called “Instruments Zoo,” sponsored by the Jacksonville Symphony Guild, that brings musical instruments into the public schools. This program is targeted to fifth grade students and provides an opportunity for them to get hands-on experience trying out an instrument that they might want to eventually pursue and learn how to play.
His latest community involvement effort is with “Take Stock in Children,” a government program targeted to low-income children of high school age. Duffy is mentoring a high school student during his entire four years of study, with the goal of helping him work hard, stay out of trouble, graduate from high school and ultimately receive a fully paid college education through the program.
“Giving back to the community, especially children, is important to me at this stage of my life,” says Duffy. “I’d love to go back to my job at CBS. They are like extended family and have been very good to me. But I realize that I probably couldn’t handle the rigors of that job anymore, with all the travel, so I’m focusing now on staying healthy and helping others in need. That’s the best choice for me right now.”
Duffy is grateful for his second chance at life thanks to his experience at Mayo Clinic in Florida. “From day one everyone involved in my care at Mayo Clinic has been the best and treated me with kindness and respect,” says Duffy. “My life was in their hands, and now that I have been given a second chance it is my turn to pay it forward.”
It’s often said that twins share similar traits and have unique bonds that other siblings simply don’t have. Sometimes those traits are things one would rather not share with their twin, especially when it comes to a potentially life-threatening medical condition.
Linda Foster and Brenda Santinelli, 60-year-old twin sisters from Pensacola, Fla., are active women with a love of the outdoors. Hiking, camping, fishing, hunting and other activities were well-suited to both their lifestyles. Both sisters are in long-term marriages. Both have young grandchildren. They even both have 20-plus-year careers at Walmart in their hometown. Both were former smokers who quit several years ago.
Hildred "Peggy" Lyons' first signs of liver problems occurred back in 1968, around the time of her son's birth, when her physician noticed she had elevated liver enzymes. An otherwise healthy woman who worked and also volunteered as a fitness instructor at her church teaching several classes a day to both adults and children, Lyons dismissed it as pregnancy-related and didn’t gave it much thought for the next 30 years.
Unfortunately, her liver problems resurfaced right around the time she retired from her job at Proctor and Gamble in 1998. Lyons was told by her physician in her hometown of Albany, Ga., that her liver enzymes were more seriously elevated and that she should see a specialist for a diagnosis. He also told her to cut back teaching her exercise classes, something she was reluctant to do. After going to a medical center in Atlanta for an evaluation of her condition, she was left wondering what her next steps were as she grew progressively ill without any answers.
Lyons turned to her church for support, where her pastor and fellow members prayed and fasted, hoping for an answer. On the last day of a 30-day fast, her pastor received a call from "a total stranger" in her community who said, "The answer is in Jacksonville, Fla., at the Mayo Clinic." [...]