Sharing Mayo Clinic

Stories from patients, family, friends and Mayo Clinic staff

Sara Jacobsen (@saraf17)

Activity by Sara Jacobsen

Sara Jacobsen (@saraf17) posted · Sun, Mar 2 2:56pm · View  

Colorado Nurse Finds Answers to Medical Mystery

Written by Sara Jacobsen

Everyone who visits the Mayo Clinic has a story. Though my story may be a lot like all of the other patients who have come and gone through the Mayo Clinic system, I want to share my gratitude for the organization, facility and clinic that Mayo is.

Sara JacobsenThe year 2013 proved to be a bit of a roller coaster for me. I started out with bowel and bladder difficulty that ultimately spread to affect my neurological system and breathing. I had seen every specialist and had more tests done than I ever knew were possible. In August, I started worsening. I was having difficulty taking a deep breath in, while having increased right sided weakness, fatigue and numbness. The whole array of diagnoses were thrown at me (ALS, MS, Cancer, Myasthenia Gravis, and everything in between). I was placed on oxygen at night and it was becoming difficult to have enough energy to care for my two young boys (ages 3 and 5). I continued to work as a nurse, but I wasn't as effective as I had been.

In October, things continued to worsen. I had to stop running because my right foot was becoming numb, and I had to limit my activity because it was becoming more and more difficult to breathe. By the time I decided to come to the Mayo Clinic (the best place in the world for medicine) in November, it was hard for me to drive home at night because of the numbness in my right foot, it was getting difficult to make it through a day of work, and I had no energy for my kids. The quality of life I had was diminishing quickly. [...]

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Joan (@dakotajoan) responded:

It's sad you had to go through all that to find out. Stopthethyroidmadness.com helped me ask for the right tests for my daughter so I could find out what it was. I am wondering what mayo's did for you. Asking you not to focus on neurological antibodies and wait a whole year seems questionable. I am wondering if they discussed diet at all? Did they tell you hashis means anitbodies against your thyroid that's made [...]

Posted Sat, Mar 1 at 10:55pm CST · View

Kim (@magnoliat) responded:

Thanks. I went gluten free for three months and I felt good for a lil time but all the same again. So far after getting hashimoto my dr sent me to a neurologist. He did MRI of heAd and it was normal. Labs came back positive for ebv and cmv. Chronic fatigue. So I am going back in March 13th to do a nerve study on arms and legs. Then he will discuss further. What [...]

Posted Sun, Mar 2 at 2:56pm CST · View
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