Joey’s Hope – Part 1 of 4


To be told he had melanoma cancer totally shocked Joel Saunders and his family who live in Fort Wayne, Indiana. An auto technician (window installer), Joel was always extremely healthy and rarely called in sick to work. He has been married to Kimberly for 17 years. They have one child, a daughter, Jadyn, who is now eleven years old. The three of them love the Lord with all their hearts and are members of a local church.

It all began when Joel discovered a pea-sized lump on his shoulder near the base of his neck. After having the lump surgically removed in August 2009, he was diagnosed with melanoma cancer in the lymph node. Later that month Joel had a “modified radical neck dissection” where they removed about 30 more lymph nodes in his neck, jaw, and shoulder areas. Read more

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By makalajohnson | Posted in Cancer, Neurology & Neurosurgery | Tagged , , , , , , , , , , | Comments (1)

Doubly Rewarding: Weight Loss and Liver Transplant for Rare Disorder


In 2007, Kimmy Lockwood decided to be screened for weight-loss surgery to address a longtime weight problem. Little did she know that decision would be lifesaving and eventually lead to a liver transplant at Mayo Clinic.

Tests indicated Lockwood had low iron levels. Her local physicians found the reason — a genetic disorder called hereditary hemorrhagic telangiectasia (HHT, also known as Osler-Weber-Rendu disease or syndrome).

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By stacytheobald | Posted in Transplant, Uncategorized | Tagged , | Leave a comment

From Wheelchair to Rock-Climbing in 3 weeks!


Having gone to several doctors elsewhere without receiving answers, this previously athletic student, Nick, and his mom, Becky, arrived to Mayo Clinic. They were exhausted. Nick was bundled up in many layers and in a wheelchair. Five minutes into his first appointment, Dr. Phil Fischer diagnosed Nick with POTS and Autonomic Dysfunction. He started the three-week Pediatric Pain Rehabilitation Program and left a transformed person. We caught up with he and his mom on their last day here. Watch their astounding testimonials, filled with grateful enthusiasm. As Becky says below, she truly feels like Mayo has given her son back to her.

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By makalajohnson | Posted in General Internal Medicine, Neurology & Neurosurgery, Pediatrics | Tagged , , , , , , , , , , , , | Comments (3)

My Stem Cells


During the summer of 2011, my husband, David, underwent a series of tests which revealed extremely high levels of a certain protein in his blood.  As a result, we were referred to the Hematology Department at Mayo Clinic, Rochester, MN, for further evaluation and diagnosis.  We were seen in September, 2011, and a bone marrow biopsy was performed to rule out multiple myeloma.  Abdominal fat tissue was also biopsied to rule out a rare, potentially fatal, plasma cell dyscrasia called amyloidosis.  Unfortunately, the Congo red stain analysis confirmed the presence of the abnormal amyloid protein.  We were blindsided and stunned by the diagnosis. We resolved to go about the business of fighting the disease, bolstered by the knowledge that we were at arguably the very best center of excellence for amyloidosis treatment.

Our physician, Dr. Morie Gertz, recommended an autologous stem cell transplant.  After a few weeks at home planning our “deployment” and obtaining insurance approval for transplant, we returned to Mayo Clinic to begin treatment.  Following growth factor injections which mobilized David’s stem cells, we spent time in the Apheresis Unit collecting cells for the transplant.  He then underwent two days of high dose chemotherapy, before his stem cells were reinfused on transplant day.  Thereafter, Station 94 of the Eisenberg Building at Rochester Methodist Hospital became a regular part of our daily lives.

We made the daily trek from our nearby apartment to Station 94 for exams and blood draws.  We were fortunate that David was able to complete his transplant entirely on an outpatient basis.  His healthcare providers did an excellent job of monitoring David’s progress and helping him manage his nausea and other side effects.  Our job was to ensure that he remained properly hydrated and nourished, and to remain compliant with transplant dietary and environmental guidelines.  We joked about it seeming like a long series of “Groundhog Days”, but in retrospect we are thankful that our primary challenges were tedium and monotony, rather than any serious crises.  We were released to return home on Day 18 following transplant.  We spent just over one month at Mayo Clinic, which was less than our anticipated stay of 6 to 8 weeks.

I arrived home with the photos I had taken to document David’s treatment, but had no plans for compiling them into a video at that time.  The song lyrics, however, had presented themselves to me in vague conceptual form shortly after diagnosis when I was still learning to correctly spell and pronounce amyloidosis.  A lifelong love of musical parody, coupled with my memories of a recent live performance of “My Hero” by the Foo Fighters, proved to be the perfect storm.  The lyrics continued to swim around in my head during our time at Mayo Clinic, occasionally surfacing to refresh and edit themselves.  “My Stem Cells” ultimately became part thank you note and part love letter to everyone in Tulsa and at Mayo Clinic who took care of David during diagnosis and treatment, and who is still involved in his ongoing care.

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By makalajohnson | Posted in Cancer | Tagged , , , , , , , , , , | Comments (9)

Thumbs-Up After Successful Thumb Reattachment


Anistasia and Dr. Carlsen giving thumbs up

Anistasia Smith and her mother, Bridgette Grunewald, give a big thumbs-up to Brian Carlsen, M.D., and the team at Mayo Clinic who cared for the then 4-year-old in February 2011. Anistasia’s left thumb had been severed in a recliner chair.

“Anistasia was asleep, cuddling on her grandma’s chest. When the recliner was brought to an upright position, her thumb was caught in the chair’s mechanism and cut off,” says Grunewald. “My mother put pressure on Anistasia’s hand to control the bleeding and called 911.”

First responders retrieved the thumb and used a bag of frozen vegetables from the family’s freezer to keep it cold and increase the likelihood of the tissue surviving. Read more

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By stacytheobald | Posted in Orthopedics, Pediatrics, Uncategorized | Tagged , , | Leave a comment

Marlys Fox beats cancer death sentence…by 45 years


By Susan Pepperdine

“My doctor came in, and in his best Marcus Welby voice told me I was going to die,” Marlys Fox vividly remembers. She was just 32 years old, so “I wasn’t going to take that sitting down. When I immediately announced, ‘I’m going to Mayo Clinic,’ he told me that they would just get my hopes up, and it wouldn’t make any difference. He gave me six months to live.”

Marlys Fox 1967

The year was 1967, and Marlys was living and working in Des Moines. She’d made the appointment with her obstetrician/gynecologist after experiencing bleeding. The tests he ran showed choriocarcinoma, a rare, fast-growing cancer of a developing placenta. She hadn’t even known for sure if she was pregnant.

“I knew Mayo’s reputation, so I just got in my car and drove the three-and-a-half hours to Rochester,” she said. “I walked into the reception area, and told them I didn’t have an appointment but needed to see a doctor immediately. Then I just stood there and cried. After that, it was only a short time before I saw a lot of people. Read more

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By joedangor | Posted in Cancer | Tagged , , | Leave a comment

New Therapy Freezes Out Atrial Fibrillation


Rosalee Johns says she has her life back thanks to a freezing therapy called cryoablation that restored her heartbeat to normal.

In 2008, Johns, then age 67, was diagnosed with atrial fibrillation, a condition in which the atria — the upper chambers of the heart — receive irregular electrical impulses that cause erratic heartbeats. Johns’ heart beat rapidly. She was light-headed and short of breath. The episodes occurred every three or four weeks, lasting 12 to 15 hours. Despite treatment with medication, the episodes increased to almost daily.

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By stacytheobald | Posted in Cardiology & Cardiac Surgery, Uncategorized | Tagged , , , , | Leave a comment

Nurse finds out what being “hip” is all about


Julie and daughter Taylor

My story begins in 1998. At the age of 32 I was diagnosed with bilateral hip dysplasia. Because I was a breech baby at birth the doctors at home had told me that this was probably the reason why I was having problems. I was having the most pain in my left hip. I first went to see Dr Ray Emerson at the Mason City Clinic in Mason City, Iowa. He took a hip xray and diagnosed me from that. I am an RN and was working at the hospital so being on my feet all day was somewhat of a task at times. He suggested to me that a cortisone shot may help alleviate some of the pain along with an anti-inflammatory. So I took him up on his advice and took the cortisone shot. After about a week the shot wore off and it was back to the pain again. The pain was not yet unbearable at this point and nothing that the anti-inflammatory medication couldn’t control. I continued to work as an RN and was on my feet many hours a day.

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By makalajohnson | Posted in Orthopedics | Tagged , , , , , , , , , | Comments (6)

When Medication is No Longer Effective for Atrial Fibrillation


Ron Boyle has had atrial fibrillation for twelve years.  He recalls, “When I was in a-fib most of the time, getting upstairs was a problem.  Just doing daily routine was a problem.  Get up in the morning and being totally fatigued and that’s the way the day would start.”  His previous medications were no longer stabilizing his symptoms and his life only became more difficult as time progressed.

Searching for answers, Ron turned to the internet for other options.  He came upon a new type of catheter study at Mayo Clinic under the direction of Dr. Douglas Packer.  Ron contacted Mayo Clinic and the staff informed him of the details of the study including the possibilities and side effects of placing the catheter in the procedure called a pulmonary vein ablation.  After weighing his options, Ron decided to move forward with becoming part of the study.

Months after the ablation Ron expresses, “It really has changed my life,” and calls the results “spectacular”.  He knows the outcome doesn’t happen to everyone but says, “Even if it didn’t turn out I wouldn’t have any regrets about coming to Mayo Clinic.”  With his atrial fibrillation under control, his life has gone back to the way things were, and he is looking forward to being able to enjoy his trip to Alaska without the limitations he had last year.

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By makalajohnson | Posted in Cardiology & Cardiac Surgery | Tagged , , , , , , , , , , , , , , | Comments (5)

Seeing the Light Helps Parkinsonism Patient Walk


It began with a headache in 2007. That was followed by weakness on his left side, a slight slurring of his speech and tremors. Doctors thought Wayne Puckett, then 42 and a father of five, had suffered a stroke.

But over the next two years, the headaches persisted. Complicated migraine was the new diagnosis. But the tremors worsened and Puckett, previously an active man, began to have trouble walking.

“Our local doctors couldn’t figure out what was happening. Our family doctor said it would be best to go to Mayo Clinic,” recalls Puckett, who lives outside Orlando, Fla.

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By stacytheobald | Posted in Neurology & Neurosurgery, Uncategorized | Tagged , , , | Comments (1)