Sharing Mayo Clinic

Stories from patients, family, friends and Mayo Clinic staff

Items Tagged ‘Mayo Clinic Children’s Center’

October 11th, 2016

Teen Finds a Positive Way Forward After a Brain Cancer Diagnosis

By SharingMayoClinic SharingMayoClinic

When he was born 13 years ago, Connor Johnson was a “miracle baby,’ according to his parents. Kathleen and Curtiss Johnson had struggled for years to become and stay pregnant. They had given up hope, when they discovered they were nearly four months along. The miracle of Connor’s life took on new poignancy in the […]

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Tags: Dr. Amulya Nageswara Rao, Mayo Clinic Cancer Center, Mayo Clinic Children's Center, medulloblastoma, Proton Beam Therapy


August 3rd, 2016

Healing Baby Lucas’ Heart With His Own Cells

By SharingMayoClinic SharingMayoClinic

Jennifer Gutman calls the day doctors diagnosed her youngest son, Lucas, with hypoplastic left heart syndrome the worst day of her life. The severe heart defect, sometimes referred to as HLHS, was uncovered during what Jennifer and her husband, Brian, thought would be a routine ultrasound. The startling news brought immediate fears for Lucas’ future. Determined to help Lucas, Jennifer’s sister-in-law, a […]

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Tags: clinical trials, Dr. Timothy Nelson, Hypoplastic Left Heart Syndrome, Karen Miller, Mayo Clinic Children's Center, Regenerative Medicine, Research


July 23rd, 2016

‘All We Want Is for Evie to Reach 100 Percent of Her Potential’

By SharingMayoClinic SharingMayoClinic

The night before 8-year-old Evie McLeish’s brain surgery, her Mayo Clinic neurosurgeon David Daniels, M.D., Ph.D., told her parents, “I don’t want you to think of this as the end. This is just the beginning of a marathon.” The procedure was the start of Evie’s long-term care plan for treatment of a brain tumor. Along […]

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Tags: brain tumor, Dr. David Daniels, Mayo Clinic Children's Center, Medullablastoma, Proton Beam Therapy


July 8th, 2016

Desperate for Relief From Pain, Teen Considered Amputation. Today, He’s Back on Both Feet

By SharingMayoClinic SharingMayoClinic

When he was 16 years old, Connor Bleakley asked his father, David, if he could have his foot amputated. David thought it was probably a good idea. By that point, Connor had lived with severe pain in his foot and ankle for years. He had gone through numerous treatments to relieve the discomfort, with little […]

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Tags: Dr. Tracy Harrison, Mayo Clinic Children's Center, Pain Medicine, Pediatric Pain Rehabilitation Program


May 29th, 2016

Limb Lengthening and Regeneration Clinic Offers Hope for Amarachi

By SharingMayoClinic SharingMayoClinic

Just six months ago, every step for Amarachi Austin-Okoh was filled with pain. The 11-year-old from Nigeria had enough trouble walking. Things like running, playing tag or playing basketball seemed like a dream. But now they’re things she can look forward to, thanks to a life-changing trip to Mayo Clinic. Amarachi has a condition called […]

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Tags: Blount's Disease, Dr. S. Andrew Sems, Dr. Todd Milbrandt, Limb Lengthening, Mayo Clinic Children's Center, Orthopedic Surgery


March 4th, 2016

Hope for ‘Happy, Healthy Life’ Thanks to Answers for ‘Never Seen Before’ Problems

By SharingMayoClinic SharingMayoClinic

Written by Bethany Henthorn Our daughter, Mallory, was born with several congenital defects known cloacal exstrophy (OEIS – omphalocele, bladder exstrophy, imperforate anus and spinal defects) found in 1 and 400,000 live births. After Mallory’s 20-week gestational ultrasound, we were referred to Mayo Clinic in Rochester, Minnesota, from Mayo Clinic Health System – Red Cedar […]

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Tags: Cloacal Exstrophy, Labor and Delivery, Maternal Fetal Medicine, Mayo Clinic Children's Center, NICU, Obstetrics and Gynecology, OEIS, Patient Stories, Prenatal Monitoring


October 30th, 2015

Putting Kieran’s Heart Back Where it Belongs

By Hoyt Finnamore HoytFinnamore

Caitlin Veitz never takes for granted just how special her daughter Kieran is. “She’s laid back, happy, wonderful,” Caitlin says. The circumstances around her birth, however, were not as serene. At her 20-week ultrasound, Caitlin learned her baby’s heart was not where it was supposed to be and that it had developed outside of the […]

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Tags: 3d printing, Cardiac surgery, Cardiology, Congenital heart defect, Dr Carl Rose, Dr Christopher Moir, Dr Jane Matsumoto, Dr. Joseph Dearani, Ectopia Cordis, Mayo Clinic Children's Center, Obstetrics, Pediatrics


October 22nd, 2015

Rallying Around ‘Jack’ – Buying Time for 11-Year-Old Who Touched the Hearts of His Care Team

By Uma Thangaraj uthangaraj

He melts hearts with his infectious smile, cheerful attitude and frequent magic tricks. But the slogan on Haonan Jiang’s T-shirt, which reads “Tough as Nails,” is a more accurate summation of his spirit, and the fight he and his family have been waging. The 11-year-old from Beijing, China, prefers to be called “Jack.” He is suffering from […]

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Tags: anaplastic astrocytoma, Cancer, Dr. Amulya NageswaraRao, Dr. Nadia Laack, Dr. Sherilyn Driscoll, Mayo Clinic Children's Center


August 31st, 2015

Mother Gives Daughter the Gift of Life … Twice

By Hoyt Finnamore HoytFinnamore

At 27 weeks into her pregnancy with twins, Amber Sylvester went to Mayo Clinic with her husband, Mike, for an ultrasound test and received news that no parent wants to hear. One of the babies was in trouble. She had enlarged kidneys, no amniotic fluid around her body, and fluid in her abdomen. She would […]

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Tags: Dr. Mikel Prieto, kidney transplant, Living Donor Transplant, Mayo Clinic Children's Center, Mayo Clinic Transplant Center


May 29th, 2015

Mayo, Hands for Humanity Form Village to Save Little Aisha

By Hoyt Finnamore HoytFinnamore

In April 2013, the International Services Office at Mayo Clinic received a copy of an article from a Gambian newspaper. In the article, a father begged for help for his 2-year-old daughter, Aisha. She was born with a ventricular septal defect – a hole in the heart that occurs in the wall that separates the heart’s […]

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Tags: Cardiac surgery, Del Wibben, Dr. Allison Cabalka, Dr. Brian Mohoney, Dr. Eric Towe, Dr. Frank Cetta Jr., Dr. Joseph Dearani, Humanitarian Outreach, International Medicine, Kate Welp, Mayo Clinic Children's Center, Pediatric Cardiology


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