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Stories from patients, family, friends and Mayo Clinic staff

Pediatrics

September 20, 2018

Toddler’s Personalized Care Sparks Enormous Strides

By SharingMayoClinic SharingMayoClinic

Affected by a rare neuromuscular condition, Katie Emerson was beset by extreme muscle weakness that affected her ability to eat, speak and move. Then her mother learned about a Mayo Clinic physician whose pioneering research into Katie’s condition gave the child a chance at normalcy.

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Tags: Child and Adolescent Neurology, Congenital Myasthenic Syndrome, Dr. Andrew Engel, Dr. Duygu Selcen


August 29, 2018

Feasting Fear-Free

By SharingMayoClinic SharingMayoClinic

For Knox Rhinehart, who had been plagued by chronic vomiting for years, eating was a torment to be avoided — until he met a Mayo Clinic specialist who understood that treating Knox meant treating his fear.

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Tags: Dr. Imad Absah, Eosinophilic esophagitis, Mayo Clinic Specialty Pharmacy, Pediatric Gastroenterology and Hepatology


July 26, 2018

Surviving and Thriving Against All Odds

By SharingMayoClinic SharingMayoClinic

Time and again, 5-year-old Aaliya Lopez has pulled through life-threatening medical crises, and thanks to ongoing medical support, the future she faces now is as wide open as her smile.

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Tags: Dr. David Daniels, Dr. Shelagh Cofer, Head and neck surgery, Mayo Clinic Children's Center, Neurology and Neurosurgery, otorhinolaryngology, Pediatric Cardiology, Tetralogy of Fallot


April 20, 2018

Going All Out to Ease a Young Patient’s Surgical Fears

By SharingMayoClinic SharingMayoClinic

After 5-year-old Lauren Hoel underwent her third open-heart surgery in five years, she was, understandably, a little frightened of her postoperative care and recovery. Her care team at Mayo Clinic knew just what to do.

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Tags: atrial septal defect, cardiovascular surgery, Dr. Allison Cabalka, Dr. Karen Myhre, Dr. Sameh Said, Mayo Clinic Children's Center, Mayo Clinic Health System in Eau Claire, Pediatric Cardiology, Transposition of the great arteries, Ventricular Septal Defect


April 6, 2018

Hospital Frequent Flyer Offers Insight to Others

By SharingMayoClinic SharingMayoClinic

After years of medical care and multiple hospitalizations, William Bilicic decided to use his experience as a patient to offer valuable advice to other people navigating hospital stays.

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Tags: Dr Christopher Moir, Hirschsprung's disease, Mayo Clinic Children's Center, Mayo Eugenio Litta Children’s Hospital


February 20, 2018

Fetal Surgery Sets the Stage for a Healthy Birth

By SharingMayoClinic SharingMayoClinic

Diagnosed with a life-threatening condition at 20 weeks gestation, Xavier Sorying underwent an innovative operation while in utero that helped him overcome his birth defect.

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Tags: Dr. Denise Klinkner, Dr. Rodrigo Ruano, Fetal Care Center, Fetal Diagnostic and Intervention Center, Fetal surgery, Mayo Clinic Children's Center, NICU, otorhinolaryngology, Pediatric surgery


February 2, 2018

For Baby With Rare Heart Defect, Innovative Collaboration Offers Hope

By SharingMayoClinic SharingMayoClinic

When Ryals Sexton was diagnosed with a potentially life-threatening heart defect, his parents turned to a new research consortium that offers groundbreaking treatment for hypoplastic left heart syndrome.

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Tags: Dr. Timothy Nelson, Hypoplastic Left Heart Syndrome, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


January 15, 2018

A Poignant Farewell as Teen Wraps up Proton Beam Therapy

By SharingMayoClinic SharingMayoClinic

It was a long road through proton beam therapy for 14-year-old Octavio Moreno Lara. But compassionate care from his Mayo Clinic team, coupled with some fun events, lightened the mood along the way.

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Tags: Proton Beam Therapy


December 27, 2017

Genetic Testing Solves a Family Medical Mystery

By SharingMayoClinic SharingMayoClinic

When Jordyn LaMont was born with serious health concerns, it was a harrowing repeat of a situation her mother had lived through before. But this time, specialists at Mayo Clinic were able to get to the root of the problem and provide the family with answers.

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Tags: Center for Individualized Medicine, Dr. Brendan Lanpher, Genetic testing


October 30, 2017

Rough Beginnings, Now Running: 12-year-old’s Dream Comes True

By SharingMayoClinic SharingMayoClinic

After a heart transplant and two months of cardiovascular rehabilitation, Mischa Melby has finally joined her classmates out on the playground.

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Tags: Cardiovascular health clinic, cardiovascular surgery, Dr. Joseph Dearani, Mayo Clinic Children's Center, Pediatric Heart Transplantation Program


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