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Stories from patients, family, friends and Mayo Clinic staff

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Dec 18, 2017 · Body Builder Regains Energy After Surgery for Myasthenia Gravis

I am the wife and best friend of a 72 year old man with a diagnosis of MG about 4 years ago. His antibody blood count was extreemly high once tested. He has had low tyroid for many years and we thought his muscle fatugue was due to throid issues. Given his age no surgery is offered. I understand the anger of many of these posts if only for their own suffering. I guess I enjoy the discussion and know each MG patient is different… some say like snow flakes are all different. I learn from this sharing and want to offer up a few questions… 1) do any or all MG patents have Low Thriod? 2) were any MG patents exposed to chemicals like Agent Orange… defoliants? others? 3) Have any if you that had the Tynecomy (sp) found that the so called normal size/no lumps thymous was far different once removed? I wonder if we all shared more if some new information might lead to a better understanding and/or less suffering.

Dec 25, 2016 · Body Builder Regains Energy After Surgery for Myasthenia Gravis

your story is interesting and inspiring. My husbands Dr gave him prednisone too but then tirated him on to masinon (sp) then Celcept. Dr said that there was no growth on his Thymus so surgery was not an option. I wish this story had more information so I could compair this case with my husbands case and treatment.

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