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Jan 2, 2017 · Body Builder Regains Energy After Surgery for Myasthenia Gravis

You need to reread what I said. I said they died from complications from MG. I can direct you to many families who have lost their loved ones from those complications. Don’t you dare tell me they didn’t have Myasthenia Gravis. I’ve had multiple scans and I do not have any thymic material left and I did not have this miraculous remission. When i woke from my surgery I went into crisis actually. So go back and re-educate yourself before you try and correct me or anyone else that has posted here concerned about this article. I’d like to see you stand up and explain to me and anyone else with MG AND their family that we are wrong. State all the facts, not just the sugar coated parts that you feel you need to share.

Jan 2, 2017 · Body Builder Regains Energy After Surgery for Myasthenia Gravis

Mayo clinic won’t even see me. They’ve reviewed my medical file from my nurologist but refuse to try and help me. I’ve gone through ALL the treatment including a tymectomy. Unlike this man who could have the robotic removal I had to have the invasive sternum cut. I went through the risk hoping for improvement of any kind. Here I am 6.5 years after my tymectomy, not able to take prednisone, mestinon, cellcept, imuran, plasma pheresis, but I can have IVIG for help when I’m not battling insurance for approval. Don’t believe everything you read. If this man had woken up from his surgery and was miraculously better that’s amazing. It is truly a miracle, not Mayo for finding a supposed “cure”. Myasthenia Gravis does NOT have a cure. Do your research. There is only remission IF you are lucky. And, in the past 9.5 years since my diagnosis I’ve met 1 of 200+ that has gone through remission. AND that remission only lasted a couple years. I’ve watched too many die from complications of MG. Don’t release an article like this without all the information included. Honestly, it’s disgusting that Mayo wrote this and credited doctor’s for “curing” this man. There is NO KNOW CURE! Remission is possible so there is always hope. But, don’t be a disgrace to the medical community and those of us suffering from this disease everyday. It’s unethical.

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