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Jan 2, 2017 · Body Builder Regains Energy After Surgery for Myasthenia Gravis

You say “no improvement at all? How do you know Myasthenia Gravis wouldn’t affect you worse?

Jan 2, 2017 · Body Builder Regains Energy After Surgery for Myasthenia Gravis

If you “know so many who have died from MG” they must not have the disease. About 4% are very brittle Mtasthenics. I met online a young lady from Indiana who went into immediate remission from a full thymectomy, not cervical, and it influenced me. I offer help since 1998 and met quite a few who have acheived remission. All of those had a full sternal crack. If any thymic material is left you are left with Myasthenia Gravis.

Jan 2, 2017 · Body Builder Regains Energy After Surgery for Myasthenia Gravis

85% of MGers helped by a thymectomy isn’t to be credited to robotic surgery but “most part” is not credible by proof of the facts as most of us are satisfied.

Jan 2, 2017 · Body Builder Regains Energy After Surgery for Myasthenia Gravis

brandle95 a full sternal thymectomy is recommended because robotic surgery is not as effective. Every Thymectomy Trial for this reason has to be done by full sternal removal. The Dr who “invented” Robotic Thymectomy Surgery found over two year studies that it is up to 15% less effective.

Jan 2, 2017 · Body Builder Regains Energy After Surgery for Myasthenia Gravis

I am very educated in Myasthenia Gravis, its affects, its treatments. I was first “taught” MG by Dr David Kaufman a Neuro-Obpthalmologist who instructs Neuologists Myasthenia Gravis. He started me on a high dose of Prednisone and two weeks later my symptoms changed the MG ones more pronounced. At my scheduled second week at a 20mg lower dose of Prednisone, 40mgs, then he started me on Mestinon one tablet every four hours. I was briefly hospitalized to stabilize Myasthenia Gravis by reducing the high dose of prednisone and increasing the Mestinon which “cured” my extreme double vision on the first tablet! That hospital is where I found Dr Raina Ernstoff which I didn’t know was the Chair of the MSAB/MGFA ( the year was1997). Dr Ernstoff positively diagnosed my Myasthenia Gravis and scheduled a Full Sternal Thymectomy which involved getting all thymic material. Three days after the thymectomy I was sent home, (standard practice) in MI where before I rested I walked a 1/4 mile! I gradually reduced Mestinon and Prednisone as the brand name Imuran 50mg taken 3 times a day with all three meals took effect. December 17, 2001 I was taken off all MG Medication when a gall stone tried its best to kill me. Fifteen years later I am in drug induced remission needing a half tablet of Mestinon only because I have been on a therapeutic dose of Bactrim Ds 800-160mgs since January 20, 2012. The doctor who “invented” VAS Robotic Thymectomy Surgery kept meticulous records reports robotic surgery is up to 15% less effective with regular reports for 2 years. All of the Thymectomy Trials require a Full Sternal Thymectomy, including the most “recently” completed sucessful Study. My question is why do you support the least effective surgery? I have been through over 20 surgeries and felt a Thymectomy hurts a lot less than my knee surgery? I hope this helps!!

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