Thank you for sharing your story. My husband was diagnosed with Barrett’s Esophagus in 2011. The protocol at that time was a follow up endoscopy in 3 years. Exactly 3 years later, the next endoscopy showed cancer cells. In November, 2014 he had his esophagus removed and was diagnosed with stage 1A cancer with a good prognosis. There was no protocol for chemo or radiation at that time. 15 months later, the cancer returned in a nearby area and radiation and chemo were given. Now we go every 5 months or so for scans to see if he is clear of cancer.
We know of a few men who have had this surgery and 3 years later are doing ok. I understand that this type of cancer is on the rise and I admire your work to seek out patients and help them through this. It is one of the most invasive surgeries and recovery is hell. Having someone to be a sounding board is so important. Wishing you the very best on your continuing recovery journey.