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May 24, 2018 · Complex Diagnosis Reshapes a College Student’s Future

I have suffered for about 8 years and was just recently diagnosed with fibromyalgia. Tested positive for c-reactive protein, but rheumatologist says no significant arthritis, so not lupus. I have had headaches and migraines for over 30 years, facial pain that I was told was TMJ. Now, not so sure it isn't trigeminal neuralgia, involves back of skull, ears, facial swelling, in addition to extreme facial pain. Friends do not understand why I am so grateful for texting rather than having a phone against my face. Along with suspected lupus, I have been told I have MS, also. I have had four MRIs. All show brain lesions. First rad said MS, second sat with me (a neurorad) and told me I had two kinds of lesions, some small that may be from migraines or MS, and another larger one that he, in his 35 years of practice, has never seen. Another rad said stroke, another findings nonspecific. I was going to also have a sleep study, but when you know the reason you don't sleep is because you're in a race because of RLS, what's the point. I have such low points every day, I think I might fall down from weakness, or do too much and feel as though I have a bad case of flu. Medical bills have bankrupted me, and I had to give up job I worked so hard for, graduating top of my class in nuclear medicine technology. Husband wants me to keep up with him, but I can't. Also have Hashimoto's. All new docs determined my illness is from hypothyroid, but TSH still in normal range. I am losing my mind, having no fun, while no one can decide and treat me appropriately.

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