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Jun 27, 2018 · Complex Diagnosis Reshapes a College Student’s Future

Reilly, you are inspiring…hanging in there until you got a diagnosis!! I can't think of a worse time to be totally sapped of energy than starting college.

In my own case, I was diagnosed with psoriasis in 1976, while studying for the bar exam. Not much in the way of treatment then except for tar and the light box. I had numerous hospitalizations at Columbia-Presbyterian for the next 10 years and then I went into remission, only to be diagnosed with psoriatic arthritis in 1998. It progressed quickly and I went on disability in January 2002, as much due to fibromyalgia as to PA.
My fatigue totally drained me for a couple of years.

I started taking Remicade in 2004, every 2 months, and it did a nice job for me. I'm still taking it and don't have extensive joint erosion, as I might have without the Remicade. However, I am again suffering from draining fatigue and wondering what to do. A psychiatrist I saw back in 2002 wanted to try me on Provigil but I didn't take it. Has anyone out there taken anything for disabling fatigue and fibromyalgia, and, if so, what?

Jun 27, 2018 · A Noise-Filled Hearing Loss Journey

Dianne, so wonderful to read about your cochlear implant. I too have tinnitus, in both ears, following stapedectomies in 1988 and 1998 for otosclerosis. I had a hearing aid back in 1990 but found it of little use. I tried aids again in 2012 but didn't like them due to the ambient noise the aids transmitted.

I am OK with the tinnitus (it sounds like mosquitoes buzzing in both ears and occasionally like popping noises) because I am used to it. As to whether it has any effect on my sleep,I also have restless leg syndrome, along with psoriatic arthritis and fibromyalgia.

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