After decades, I was finally diagnosed with Chiari 1. I have an HMO and they don’t recommend surgery because the excruciating daily headaches don’t seem to be brought in or worsen by activity. I live in the Los Angeles area and there don’t appear to be support groups available. Many of the Chiari support group have outdated information. Because if the distance and the type of insurance I have, I am wondering if the Mayo Clinic is out of the question for a 2nd opinion.