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Jan 4, 2017 · Body Builder Regains Energy After Surgery for Myasthenia Gravis

I’ve been in remission (?) from MG for about 6 years. I have been treated with ivIG from the beginning, receiving it now every 8 weeks; I added Mestinon 6 months after diagnosis. I am positive for the antibodies and had general weakness as well as difficulty swallowing. My doctor didn’t suggest the surgery because of my age at diagnosis (49) and no tumor. I agree that it is irresponsible of MAYO Clinic to write this as if it’s a remedy for anyone with MG. Every patient with a neuromuscular disease is slightly different and responds differently to treatments. Which is exactly why insurance companies need to realize this and cover patients who respond well to ivIG. Mayo does a disservice to the MG community who already fights the daily battle of misinformed and poorly educated physicians on this disease.

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