Hi Jan, Thank you so much for sharing your story. I wanted to reply and let you know as I suspect you already do that you are definitely not alone in your pursuit of your medical truths. Your story is very similar to mine and I did say to myself, I hope I am not dead before they figure it out. I encourage you to continue to seek answers as I did until you find them. Please do whatever you can to get a referral to Mayo Clinic and see if they can help you. In the meantime, I had a couple of ideas that I use that might give you some immediate relief for your skin problems. I want to preface this comment post by stating that I am not a medical professional and I have absolutely no medical training whatsoever. I am an armchair researcher who has spent hundreds of hours and trial and error on my conditions. I am going to condense this as much as possible. When I began to have serious skin issues, I had a 3 day patch test. It revealed I was allergic to a host of things including preservatives, plastics, latex, rubber, etc. Of course, once I was diagnosed, I understood that allergies are my immune system breaking down. I became a voracious label reader and my own food advocate. A very large amount of preservatives include an ingredient made up of benzoates. There are benzoates in almost everything including but not limited to soaps, fragrances, shampoos, toothpaste, household cleansers, tons of food products, prescription and over the counter medications. Even a lot of new clothing is preserved initially with formaldehyde. Now I always wash my new clothing in my allergan free detergent before I wear it. When I went to the grocery, I began to read labels of foods I was preparing and eating. They were filled with artificial flavoring, preservatives, dyes, fillers, etc. I began to eat organic foods and prepare more natural foods and I never buy anything with those things in them and I don’t eat most pre-processed foods. I also eat a lot of gluten free foods.I choose my soaps toiletries very carefully. When I eat out, I stay away from saucy foods and red meat which usually has dyes. I carefully research any new medications I am asked to take by my physicians. I use Mayo Clinic website a lot for my research. It is a great source of trusted information. So, I went from bloody infected rashiness all over my body primarily my extremeties, to one small 5 inch in diameter slightly dry red patch on my right leg. Maybe this information can at least help you with your skin problems. A week after I wrote my initial story and posted it, I went into the hospital for six days with diverticulitIs (An unfortunate part of my illnesses). While, in the emergency room waiting to be admitted, I worked with the Doctor to ensure I had the right IV antibiotics so I didn’t have problems. The initial antibiotic that is frequently used for this problem, Flagyl, immediately gave me a rash and I began to bleed. We finally found one that I could tolerate. The same with the meds I was sent home with. I asked the nurse what she was giving me everytime she wanted to put something in my IV or in my mouth. It seems like a lot of work but it was very well worth the effort and it became very easy to do once I got used to it. It has truly helped me to have clearer skin. Good Luck to you and please keep me posted. I would love to hear from you.