Thank you for sharing this story. My husband has POEMS as well. He was diagnosed in 2011 after being first diagnosed with CIDP. It has been a long and arduous battle. He had a SCT in 2011 as I was pregnant with my 3rd little daughter. He improved prey, but now is seeing some symptoms return. The doctors here are great, but many have not heard of POEMS, so we have to travel for his medical care.