Sharing Mayo Clinic

Stories from patients, family, friends and Mayo Clinic staff

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Jun 13, 2016 · Mystery Solved – Diagnosis Moves Patient from Frustration to Peace of Mind and a Plan

I’m so sorry! It is a debilitating disease. I had my thymus gland out in February and am getting infusions every 6 months. Had my first 2 in April. Plus was on 60 mg of prednisone. Down to 40 mg and back up again. I’m not sure the surgery or the infusions are working. It’s hard to tell. Hoping you find something that gets you better. We need a cure!

Apr 6, 2016 · Mystery Solved – Diagnosis Moves Patient from Frustration to Peace of Mind and a Plan

Hi, I have been diagnosed with MG and RA. I had my thymus gland removed that had a benign tumor on it. I am now getting infusions. I also am in Georgia and have thought if things don’t get better with my next infusion of getting referred to the Mayo Clinic. I go on Medicare in a few months and am not sure how that works. Did you go to Florida or Minnesota for help? Thank you for your blog. It’s nice to find this information. Bev P.

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