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Feb 22, 2017 · Diagnosis and Treatment of Chiari Malformation Spurs Nikki Prins to Reach Out to Others

After my second surgery I lost 20 pounds because of the infection and not wanting to eat. The best thing I could have done was start by eating whatever sounded good. And for me my go to thing was carrots. They were the only bland thing my stomach could handle at one point. From there we upped the protein in my meals and carbs to help me gain weight. I ate buttered noodles because they were bland.
Otherwise there are protein shakes out there. It took me 8 months to gain my weight back. Prayers to you and your boy.

Jan 4, 2017 · Diagnosis and Treatment of Chiari Malformation Spurs Nikki Prins to Reach Out to Others

I guess when I think Brain surgery I don’t think of being in and out and I had enough prep by my other friends with Chiari and did enough research to know the possibilities of surgery. I had friends that told me this would probably be the hardest recovery I could think of. I had more than one surgery, but how was my surgeon supposed to know that would happen? I stayed 2 days the first time, 5 days the second and 5 days the third. I don’t think he knew how much it would take. They aren’t psychic. It’s different for every patient. If she just had her surgery it will take a while to regain all of her past milestones. I don’t think I could look at a TV without a headache for the first two-three weeks after surgery. The going to the bathroom thing, I’m pretty sure I had that same issue, I can’t remember because my biggest deficit after surgery is memory loss. I would take blurred vision over memory loss anyday. I also have hearing problems.

I will send prayers your way for your daughter’s recovery. This isn’t an easy thing. The biggest thing I had to learn was to listen to my body, and learn how to deal with pain the best way I knew how. I’m almost a year post op from surgery number one, and the problems I was having back then and the ones I’m having now are much different.

It’s a learning process for everyone. This surgery is not common enough to know how much it will impact the outcome for each patient.

Jan 3, 2017 · Diagnosis and Treatment of Chiari Malformation Spurs Nikki Prins to Reach Out to Others

I guess I didn’t get that because of the Chiari diagnosis, however I do also have Raynauds which causes the cold hands feet and sometimes ears and nose.
I do have the ear pain, but I never chalked that up to Chiari and none of my doctors had mentioned it being apart of the condition.

Nov 14, 2016 · Diagnosis and Treatment of Chiari Malformation Spurs Nikki Prins to Reach Out to Others

Hi! I was out of work for about 3 weeks after my third surgery, but all together had been out for 3 months because of all the emergent cases. I would take about 6-8 weeks for recovery. I got tired even standing waiting for food at the microwave. You will have a lot of things that make you very tired, quickly. I still do and I am 8 months post operation of my last surgery. Take your time, don’t rush.

Nov 3, 2016 · Diagnosis and Treatment of Chiari Malformation Spurs Nikki Prins to Reach Out to Others

It’s a weird and gross feeling to wake up to that!!!!

Nov 3, 2016 · Diagnosis and Treatment of Chiari Malformation Spurs Nikki Prins to Reach Out to Others

I am always here to help and support in anyway that I can. I think it’s great that you’re gaining that courage. Just remember to keep fighting, you are Worth The Fight.

Nov 3, 2016 · Diagnosis and Treatment of Chiari Malformation Spurs Nikki Prins to Reach Out to Others

I do have some recurring symptoms now, the best thing to do would probably be to consult her primary care, in my opinion. Don’t stop fighting for answers, Jim.

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