I guess when I think Brain surgery I don’t think of being in and out and I had enough prep by my other friends with Chiari and did enough research to know the possibilities of surgery. I had friends that told me this would probably be the hardest recovery I could think of. I had more than one surgery, but how was my surgeon supposed to know that would happen? I stayed 2 days the first time, 5 days the second and 5 days the third. I don’t think he knew how much it would take. They aren’t psychic. It’s different for every patient. If she just had her surgery it will take a while to regain all of her past milestones. I don’t think I could look at a TV without a headache for the first two-three weeks after surgery. The going to the bathroom thing, I’m pretty sure I had that same issue, I can’t remember because my biggest deficit after surgery is memory loss. I would take blurred vision over memory loss anyday. I also have hearing problems.
I will send prayers your way for your daughter’s recovery. This isn’t an easy thing. The biggest thing I had to learn was to listen to my body, and learn how to deal with pain the best way I knew how. I’m almost a year post op from surgery number one, and the problems I was having back then and the ones I’m having now are much different.
It’s a learning process for everyone. This surgery is not common enough to know how much it will impact the outcome for each patient.