Sharing Mayo Clinic

Stories from patients, family, friends and Mayo Clinic staff

Items Tagged ‘amyloidosis’

May 16, 2016

Florida Chef Finds Expertise to Manage Rare Disease, Get His Life Back

By SharingMayoClinic SharingMayoClinic

When 67-year-old Stefan Gyorkos of St. Augustine, Florida, noticed swelling in his feet several years ago, he didn’t think much of it. After all, as chef at a local golf and country club, he is on his feet for hours at a time. That seemingly innocent ailment, however, would eventually lead to a series of […]

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Tags: amyloidosis, bone marrow transplant, Dr. Sikander Ailawadhi, Florida Campus


June 20, 2014

Patient with “Double Trouble” Diagnosis Finds Answers at Mayo Clinic

By Paul Scotti Paul Scotti

Being diagnosed with multiple myeloma, a serious blood cancer, is difficult enough to accept. But being told that you also have a rare hematologic condition called amyloidosis — a disorder that could prevent you from receiving the bone marrow transplant necessary to combat your myeloma — could put anyone’s strength to the test. Such was the case […]

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Tags: amyloidosis, BMT, bone marrow transplant, Dr. Taimur Sher, Kendall Schwindt, kidney, MayoClinicFL, multiple myeloma, nephrology, Patient Story


March 22, 2013

Surprise amyloidosis diagnosis leads to combined heart-liver transplant

By MakalaArce MakalaArce

At the end of a routine physical in 2006, Dan Carey’s doctor asked if there was anything else he wanted to discuss. Dan exercised regularly and felt good. Except for one thing. “I get out of breath when I walk up stairs,” he told his doctor. A chest X-ray revealed healthy lungs but an enlarged […]

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Tags: 2272, 5324, 5335, amyloidosis, Dan Carey, Dr. Roshini Abraham, Heart transplant, Liver Transplant, Mayo Clinic


March 16, 2012

My Stem Cells

By MakalaArce MakalaArce

During the summer of 2011, my husband, David, underwent a series of tests which revealed extremely high levels of a certain protein in his blood.  As a result, we were referred to the Hematology Department at Mayo Clinic, Rochester, MN, for further evaluation and diagnosis.  We were seen in September, 2011, and a bone marrow […]

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Tags: 1136, 2272, 3640, 3719, 5279, 5324, 5335, amyloidosis, Cancer, Carole Harber, David, Foo Fighters


March 5, 2012

Incredible Journey: Surviving an Incurable Disease

By Susana Shephard Susana Shephard

“Couldn’t breathe, gasping for air,” is how Bobbie Sofia describes the first sign that something was wrong. In 2007, Bobbie Sofia and her husband, Sam, traveled to San Antonio, Texas from their home of almost forty years in Lake Havasu City, Arizona to attend their daughter, Ashley’s, graduation from Air Force Basic Training. While enjoying […]

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Tags: 1136, 2272, 5252, 5279, 5333, amyloidosis, Bobbie Sofia, cardiac amyloidosis, Craig Reeder, CyBorD, D. Eric Steidley, heart failure


December 2, 2011

Three Strikes … But Not Out

By MakalaArce MakalaArce

Personal Background My name is Alfred “Bart” Howe and I am a very lucky guy. I was born 1938 in a small oilfield town in Oklahoma. Mary and I married in 1965 and have two married sons, a grandson and a granddaughter. Mary and I raised our family in Boulder, Colorado and have lived here […]

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Tags: 1136, 2272, 3640, 3719, 5279, 5291, 5335, Alfred Howe, amyloidosis, Bart, chemotherapy, Dr. Leung


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