Items Tagged ‘Schwannomatosis’
March 16, 2020
Cameron’s New Way Forward After Rare Disease Diagnoses
Cameron Kaipainen and his parents spent years searching for explanations to his ongoing and confusing medical problems. It wasn’t until arriving at Mayo Clinic in Arizona that the true nature of Cameron’s condition was uncovered, giving the family the priceless gift of knowledge.
Tags: 7q11.23 duplication syndrome, Clinical Genomics, Dr. Bernard Bendok, Dr. Radhika Dhamija, Schwannoma, Schwannomatosis
April 14, 2010
By CSMMayo 
My story began in November 1993 when I was referred to Mayo Clinic with two abdominal tumors that were potentially cancerous. No tests indicated cancer, but as I was prepared for surgery, I was told that pathology would examine the tumors. If there was cancer, I might lose one or both kidneys because of the […]
Tags: 3640, 4705, 5272, 5274, 5294, 5327, 5335, 5411, Neurofibromatosis, Neurological Surgery, Schwannomatosis, Urology