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Stories from patients, family, friends and Mayo Clinic staff

Research

December 26, 2021

A new lease on life thanks to research into rare neurodegenerative disease

By Cynthia Weiss Cynthia Weiss (@cindyweiss)

The changes were subtle at first. “Almost unnoticeable,” says Lisa Miller, remembering the symptoms that seemed to appear suddenly in late 2017. At a friend’s wedding, the Front Royal, Virginia, project engineer remembers falling out of her shoes. “My left heel kept coming out from my shoes,” she says. She chalked it up to too […]

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Tags: bone marrow transplant, CSF1R-related leukoencephalopathy, Dr. Ernesto Ayala, Dr. Zbigniew Wszolek, Lisa Miller, MayoClinicFL, neurodegenerative disease, neurology


June 22, 2021

Back from the brink and looking forward: Karen Detweiler overcomes rare neurologic disorder

By Cynthia Weiss Cynthia Weiss (@cindyweiss)

In February 2020, as COVID-19 began its spread across the world, Karen Detweiler of DeLand, Florida, and her two adult children, Jonathan Detweiler and Susan Reeve, were facing their own crisis: Karen Detweiler’s pending passing from an incurable neurologic disorder. A retired community college professor and English teacher, Karen started having seizures in the summer […]

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Tags: Alzheimer's disease, dementia, Dr. Gregory Day, Karen Detweiler, LGI 1-antibody encephalitis, MayoClinicFL, neuroimmunology lab


February 28, 2020

Restored Knee Function Transforms a Life, Inspires Family to Give Back

By SharingMayoClinic SharingMayoClinic (@SharingMayoClinic)

The Reibels have relied on Mayo Clinic for their care for 25 years. That experience has inspired them to donate to Mayo Clinic’s Center for Regenerative Medicine.

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Tags: Center for Regenerative Medicine, Dr. Andre Terzic, Dr. Gianrico Farrugia, Dr. Robert Frye, Dr. Shane Shapiro


December 27, 2019

Physician’s Love of Philosophy Grows Into a Passion for Helping Patients

By SharingMayoClinic SharingMayoClinic (@SharingMayoClinic)

As a medical oncologist, Evanthia Galanis, M.D., has a simple philosophy — patients need answers quicker. Dr. Galanis brings this perspective from her research and clinical experience to her new role as Mayo Clinic’s executive dean for development, where she’s seen the impact philanthropy can have when joined with Mayo Clinic’s patient-centered values.

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Tags: Dr. Evanthia Galanis, Gene and Virus Therapy


November 27, 2019

CAR-T Versus Cancer

By SharingMayoClinic SharingMayoClinic (@SharingMayoClinic)

Diagnosed with non-Hodgkin’s lymphoma in her 40s, Tanis Milicevic tried a number of treatments to keep the disease in check. But the cancer came back. Then her Mayo Clinic care team offered Tanis a new option, and it made a world of difference.

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Tags: Blood and Marrow Transplantation Program, CAR-T cell therapy, Dr. Han Tun, Dr. Mohamed Kharfan Dabaja, Dr. Yi Lin, Mayo Clinic Cancer Center, Non-Hodgkin’s Lymphoma


November 8, 2019

Opening Doors for Cancer Research in Native American Communities

By SharingMayoClinic SharingMayoClinic (@SharingMayoClinic)

Mayo Clinic’s 14-year partnership with Diné College has opened up opportunities for students like Corinna Sabaque to gain experience in fields where Native communities are often underrepresented and underserved. In Sabaque’s case, those opportunities launched a career in cancer research.

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Tags: Advancing the Science, Dr. Christi Patten, Dr. Gloria Petersen, Mayo Clinic Cancer Center


February 13, 2019

Comprehensive Care Makes for a Brighter Future

By SharingMayoClinic SharingMayoClinic (@SharingMayoClinic)

When Stephanie Van Doren came to Mayo Clinic, she never expected to learn she had a genetic defect that raised her risk for a potentially fatal heart condition. But thanks to her physician’s all-inclusive approach, Stephanie and her family now have information they need to live life to the fullest.

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Tags: Clinical Genomics, Dr. Timothy Woodward, Eosinophilic esophagitis, Genetic testing


February 11, 2019

Quick, Coordinated Action Solves a Polar Problem

By SharingMayoClinic SharingMayoClinic (@SharingMayoClinic)

Just as things were settling down in the aftermath of a polar vortex in the Midwest, a new issue presented itself at Mayo Clinic’s Rochester campus. And staff stepped up to meet the challenge.

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Tags: Byron Callies Jr., Cameron Wood, Hilary Blair, Joseph Schneider, Nicole Thome


January 3, 2018

Resiliency and Determination Propel a Researcher’s Discoveries

By SharingMayoClinic SharingMayoClinic (@SharingMayoClinic)

Mayo Clinic researcher John Fryer, Ph.D., is hopeful the work in his laboratory will yield insights into Alzheimer’s disease, as well as sepsis — an often-deadly condition which claimed his father’s life in 2016.

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Tags: Center for Individualized Medicine, Dr. John Fryer, Mayo Clinic Graduate School of Biomedical Sciences


August 3, 2016

Healing Baby Lucas’ Heart With His Own Cells

By SharingMayoClinic SharingMayoClinic (@SharingMayoClinic)

Jennifer Gutman calls the day doctors diagnosed her youngest son, Lucas, with hypoplastic left heart syndrome the worst day of her life. The severe heart defect, sometimes referred to as HLHS, was uncovered during what Jennifer and her husband, Brian, thought would be a routine ultrasound. The startling news brought immediate fears for Lucas’ future. Determined to help Lucas, Jennifer’s sister-in-law, a […]

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Tags: clinical trials, Dr. Timothy Nelson, Hypoplastic Left Heart Syndrome, Karen Miller, Mayo Clinic Children's Center, Regenerative Medicine, Research


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