Best of luck with her surgery, I will pray for your daughter. This journey sucks for such young people!!! We are currently using Essentia and Dr. Christenson. He does not seem to worried about the Chiari Malformation. He is looking more at the fluid in her head, which no one has told us about. So she is luckily enough to get the spinal tap (to measure the pressure), an appointment with opthamalogy to make sure there is no lasting damage to her vision and another MRI with contrast to show the veins. Is this normal protocol for this? Have all you you gone on this same path?
The dr. told me her Chiari isn’t that bad and most of the time surgery causes more complications than it solves. I can understand that based on what I’ve read, but I don’t know if he is an expert on the condition. My plan is once this is all completed to have our regular dr. send all results to Mayo and make sure we are on the right path.