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Nov 9, 2015 · Colorado Nurse Finds Answers to Medical Mystery

I have been suffering for almost 5 years and at first I had terrible back pain and left leg pain and my left leg is very weak and has numbness and weakness and tingling so the doctor diagnosed me with degenerative disc disease and sciatica and I have had two left knee scopes and I have been going to pain management to get injections in my back and for my sciatica but the pain comes back in a week or two anyways.So I started dieting working out and didnt lose 1 pound in six months and thats when I went to my doctor and told her so she tested my thyroid and said I had hypothyroidism so she put me on a thyroid med and I still was not feeling better after a year of doctors adjusting my meds and about two years ago I started getting these episodes at least thats what I called them so when I first started getting the episodes I have a very rapid heart rate and I get very dizzy to the point where I have to lay down because I know I will faint if I dont so they did a few tests at first and said it was hashimotos so they stopped giving me my thyroid meds and I actually spent 4 months in bed freezing so bad and my whole body felt like it was getting torn apart in every direction and my heart rate was still fast and the episodes became more frequently so they said my heart rate wasnt caused by my thyroid so they sent me to a heart specialist and that specialist wouldnt even do one test he had me go back and forth from my heart doctor to my thyroid doctor and my heart doc sent me to my thyroid doc to say it wasnt my heart and my thyroid doc would send me back to my heart doc to tell him it was my heart so I suffered while those two docs juggled me around for a year and my episodes started out as one or two a day and now its constant so I found a new heart doc and she was so rude and sent me to a elecrtophysiologist and that doc put me on a medication and diagnosed me with innappropiate sinus tachycardia without doing any further tests at all and the meds he put me on made me almost die it is called ivabrine so I call to tell him I was having the worst chest pain and it felt like a car was parked on my chest he told me to keep taking the meds so I did but I couldnt take the pain I stopped that med a few days later so I found a new heart doc and she did a tilt table test and that test was the worst thing ever that I went through and I cant even remember what she diagnosed me with because I was so out of it from that test I couldnt even talk for a long time and I was dizzy all day long that day worse then usual so she put me on a med called midodrine and nothing has changed I still have a high heart rate and I am still dizzy and now I have constant headaches and blurred vision and I have alot of things wrong with my neck and stomach and I had surgery on both of my hands and I have very bad elbow pain I mean the list goes on and on and I feel like there isnt any doctor that cares.Is there ever going to be a normal for me because I cant work and I am on tramadol for my pain and at least 8 other meds for all of my other problems and I applied for SSI and got denied and I have four kids to take care of and I have always been very active and I hope to one day at least feel good enough to take my kids places without feeling so much pain and dizziness and just enjoy life again.I havent been to the mayo clinic but I read your stories and I just wish I could find doctors that actually care.

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