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Transplant Archive

August 25th, 2014 · Leave a Comment

Physician Experiences the Mayo “Patient Experience” After Double Lung Transplant

By Paul Scotti

Joseph J. Tepas III, M.D., a 68-year-old pediatric surgeon in Jacksonville, Florida, who had idiopathic pulmonary fibrosis and later a lung transplant at Mayo Clinic in Florida.

When a doctor suddenly becomes the patient with a life-threatening illness, Mayo Clinic’s commitment to high-quality medical care that puts the needs of the patient first takes on fresh perspective, especially as it relates to the principle of compassionate care, which is a hallmark of Mayo Clinic.

Such was the case when Joseph J. Tepas III, M.D., a 68-year-old pediatric surgeon in Jacksonville, Florida, learned that the wheezing and shortness of breath he was experiencing turned out to be idiopathic pulmonary fibrosis, a potentially life-threatening disease that occurs from unexplained scarring of the lung tissue.

In addition to doing pediatric surgery, Dr. Tepas is a practicing trauma surgeon and surgical intensivist. He is the medical director of the region’s only pediatric trauma unit, and, as a retired captain in the Navy Reserve, appreciates the critical importance of maintaining a personal commitment to health and fitness. Dr. Tepas had always lived a healthy lifestyle and, other than some occasional allergy symptoms, never had any significant health issues. But lying dormant in his otherwise healthy body was a disease that was quietly scarring and shutting his lungs down.

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Tags: Katie Caples, Katie Ride for Life, lung transplant, MayoClinicFL, Pulmonary Fibrosis


August 14th, 2014 · Leave a Comment

A Kidney Between Friends

By Hoyt Finnamore

Todd Goldrick, transplant patient, stops for a photo with his donor, Marty Yeager. Todd Goldrick was living the dream. Good job. Loving wife. Two young, healthy kids. Weekends spent playing golf, softball, kayaking, hiking, running or just hanging around home with the family. But that changed suddenly in 2010, when he and his wife simply tried to buy some life insurance. He was just 28.

"Mine came back straight out denied," Todd says. "They told me the reasons. There was a whole long list -- high cholesterol, high blood pressure, and a few other things that I don't remember exactly."

Before that day, Todd says he'd been to see his doctor in the Minneapolis–Saint Paul area "maybe every two years," so the policy denial came of left field. In fact, he says it scared him into doing nothing about it, at least initially. "I was kind of naïve and a little scared to go back to the doctor," he says. "So I didn't do anything."

Six months later, he got a sinus infection that wouldn't go away, and eventually he went to urgent care, where some flags were raised unrelated to his sinuses. "They took my blood pressure, and it was 200 over 120," he says. "At that point, they told me I needed to go to the ER."  Read the rest of this entry »

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Tags: Alport syndrome, kidney disease, kidney transplant, Living Donor Transplant


August 13th, 2014 · Leave a Comment

Leukemia Survivor Volunteers in a Unique Way to Help Fellow Bone Marrow Transplant Recipients

By Paul Scotti

Charlie Willwerth, a 61 year-old leukemia survivor and bone marrow transplant recipient from St. Augustine, Fla. is taking the necessary steps to help bring life-saving stems cells to others in need of a bone marrow transplant. Some people who overcome a life-threatening illness feel motivated to give something back to those who helped make their recovery possible. Charlie Willwerth, a 61-year-old leukemia survivor and bone marrow transplant recipient from St. Augustine, Florida, is taking steps to help bring life-saving stems cells to others in need of a bone marrow transplant.

Two years out from his bone marrow transplant, and with his leukemia in remission, Charlie recently completed courier training with Be The Match, the world’s largest bone marrow registry, to become a volunteer stem cell courier. His new “job” -- transporting life-saving stem cells from a donor’s location to a matching recipient -- can take him anywhere in the world.

“This is the most direct way I can help others who have helped me get a second chance at life,” says Charlie. “If it wasn’t for my donor, I might not be here today to have the opportunity to help others with needs similar to mine.” Read the rest of this entry »

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Tags: Bone Marrow Donor, bone marrow transplant, Dr James Foran, Leukemia, Mayo Clinic in Florida


June 30th, 2014 · 1 Comment

Nicole’s Journey From Nurse to Transplant Patient and Back

By Hoyt Finnamore

Mayo Clinic nurse and transplant patient Nicole Jahns. When Nicole Jahns was just five months old, her parents – and her doctors – knew something was wrong. She wasn't gaining weight like a five-month-old should, and she wasn't, as her doctors put it, "thriving." They soon discovered why. Nicole had cystic fibrosis, an inherited disorder that affects the cells that produce mucus, sweat and digestive juices causing them to become thick and sticky rather than thin and slippery, as they should be. It's a life-threatening condition that can cause severe damage to a person's digestive system and lungs.

Though it's been challenging at times, Nicole has never allowed her condition to stop her from living her life, and she dedicated herself to caring for others as a nurse at Mayo Clinic in Rochester. In late 2012, Nicole’s life was interrupted for six months while she waited for a double lung transplant. That transplant finally came in early May 2013, but getting there wasn't easy.

For starters, in a story in a local newspaper, one of Nicole's pulmonary physicians at Mayo Clinic, Mark Wylam, M.D., said that to simply stay on the transplant list, Nicole couldn't leave the hospital during her six-month wait for a transplant. Not even to simply have lunch or a cup of coffee with family or friends. Read the rest of this entry »

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Tags: Cystic Fibrosis, Dr Mark Wylam, lung transplant, Nursing, Patient Stories, transplant


May 14th, 2014 · Leave a Comment

Miracle Patient Overcomes Unique Challenges to Receive Double Lung Transplant

By Paul Scotti

Curtis Higgons, 22 year-old double lung transplant recipient at Mayo Clinic in Florida poses at the bowling alley with his bowling ball.

Photo by Ninoska A. Nunez

To 22-year-old double lung transplant recipient Curtis Higgons, being dubbed the “miracle patient” by his physicians may seem somewhat overstated. But when you consider the medical challenges his doctors had to contend with in preparing him for a life-saving double lung transplant, his moniker may be well deserved.

Curtis was born with cystic fibrosis, an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States alone. A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and can lead to life-threatening lung infections. It also obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. As the diseases progresses, lung transplantation often becomes a last treatment option.

“Although I was diagnosed with CF at six months old, it only had minor effects on my breathing until I reached my early high school years,” says Curtis. “I was a varsity athlete in bowling and golf, but during my sophomore year of high school things began to progress, and I ended up in the hospital three times.”  Read the rest of this entry »

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Tags: Curtis Higgons, Cystic Fibrosis, lung transplant, Mayo Clinic Florida, patient story, transplantation


April 30th, 2014 · Leave a Comment

She Was Born with Two Holes in Her Heart and No One Knew

By Cynthia (Cindy) Weiss

Ileana Hernandez, 27-years old, was born with two holes in her heart.

Lung transplant brings unexpected answers to 27-year-old

Ileana Hernandez was born with two holes in her heart. But for 27 years, no one knew.

Hernandez, a computer systems engineer, worked long hours at her job with Bank of America in Jacksonville, Fla. She had transferred from her native Mexico because of her particular set of skills. Things were going fine until she started to notice shortness of breath when she climbed to her upstairs apartment.

“I had an explanation for everything -- it was the long hours, or the weekend-long computer installations, or the fact that I hadn’t slept in two days,” Hernandez recalls. As the youngest of three children growing up in Guadalajara, Mexico, she had led a normal life, did weight training in high school, participated in folkloric dancing -- including some parades -- and had no problem getting through college.

“Exhaustion was my justification [for the symptoms],” Hernandez says. But one evening, as she climbed the steps to her apartment with two bags of groceries, she ran out of breath and had to hold on to the rail. She felt pain in her chest. She composed herself and still went to work to do an evening computer systems installation thinking that the chest pain would go away. It didn’t, and by the next day she knew it was time to find a doctor. Read the rest of this entry »

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Tags: Cesar Keller, Eisenmenger syndrome, Ileana Hernandez, MayoClinicFL, patient story


April 23rd, 2014 · Leave a Comment

‘Giving Back, Like My Donor Did for Me’

By Paul Scotti

Robert-Duffy760

After 35 years on the road as a video technician for the CBS network covering major sporting events including the Super Bowl, the Olympics, SEC football, the Masters Golf Tournament, and the U.S. Open Tennis Tournament, Brooklyn native Robert Duffy was living a very active and busy life that kept him on the road about 240 days a year. At 60 years of age, his diabetes was under control, and he otherwise seemed healthy as he led a life of irregular hours, extended travel and living out of hotel rooms.

All that changed in 2011, when he became ill while covering a golf tournament in San Diego. He went to the hospital, and during his 10-day stay, Duffy was diagnosed with both liver and kidney disease. He was told he needed to have a confirmed appointment with a transplant center before he could be released from the hospital. Fortunately for Duffy, he had recently moved to Amelia Island, Fla., just a few miles down the road from Mayo Clinic in Jacksonville, the only transplant center in the Jacksonville / northeast Florida area.

“I was told I needed both a liver and kidney transplant, and was extremely lucky to end up at Mayo Clinic, as they were the only transplant center willing to list me because of my hepatitis-C, which I contracted in my teens but has been dormant for the past 40 years,” says Duffy. “The fact that I had recently moved to the Jacksonville area, where a top transplant center happened to be located, was a true blessing in my case.”

Duffy was put on the transplant list in March 2012 and received both organs from a deceased donor on Feb. 14, 2013, which happened to be Valentine’s Day and the birthday of his beloved dog, Bella. One year later, he is doing well and has decided to devote his life to helping others.

“I have a new outlook on life after going through this experience,” he says. “Your health is your wealth, and nothing else really matters if you aren’t healthy and happy. I’ve decided to spend my time giving back to others in need, like my donor has done for me.”

Since Duffy lost his father at the age of 12 and understands the need for a male mentor at that impressionable age, he is now involved in several community activities relating to children in the Amelia Island area.

“I know what it felt like losing my dad at a young age, and figured maybe I can help fill that void in some small way for other kids in the same situation,” he says.

Duffy participates in the Boys and Girls Club in Amelia Island, an organization that helps young people to reach their full potential as productive, caring and responsible citizens. He is mentoring young students and helping them with their homework.

He also got involved in a program called “Instruments Zoo,” sponsored by the Jacksonville Symphony Guild, that brings musical instruments into the public schools.  This program is targeted to fifth grade students and provides an opportunity for them to get hands-on experience trying out an instrument that they might want to eventually pursue and learn how to play.

His latest community involvement effort is with “Take Stock in Children,” a government program targeted to low-income children of high school age. Duffy is mentoring a high school student during his entire four years of study, with the goal of helping him work hard, stay out of trouble, graduate from high school and ultimately receive a fully paid college education through the program.

“Giving back to the community, especially children, is important to me at this stage of my life,” says Duffy. “I’d love to go back to my job at CBS. They are like extended family and have been very good to me. But I realize that I probably couldn’t handle the rigors of that job anymore, with all the travel, so I’m focusing now on staying healthy and helping others in need. That’s the best choice for me right now.”

Duffy is grateful for his second chance at life thanks to his experience at Mayo Clinic in Florida. “From day one everyone involved in my care at Mayo Clinic has been the best and treated me with kindness and respect,” says Duffy. “My life was in their hands, and now that I have been given a second chance it is my turn to pay it forward.”

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HELPFUL LINKS

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Tags: Hepatitis, kidney transplant, liver transplant, MayoClinicFL, transplant


April 3rd, 2014 · Leave a Comment

Twin Sisters Share Many Things in Life, Including New Lungs

By Paul Scotti

Linda Foster (left) and Brenda Santinelli (right), 60-year-old twin sisters from Pensacola, Fla and patients of Mayo Clinic in Florida.

Linda Foster (left) and Brenda Santinelli (right), twin sisters from Pensacola, Fla and patients of Mayo Clinic in Florida.

It’s often said that twins share similar traits and have unique bonds that other siblings simply don’t have. Sometimes those traits are things one would rather not share with their twin, especially when it comes to a potentially life-threatening medical condition.

Linda Foster and Brenda Santinelli, 60-year-old twin sisters from Pensacola, Fla., are active women with a love of the outdoors. Hiking, camping, fishing, hunting and other activities were well-suited to both their lifestyles. Both sisters are in long-term marriages. Both have young grandchildren. They even both have 20-plus-year careers at Walmart in their hometown. Both were former smokers who quit several years ago.

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Tags: lung transplant, MayoClinicFL, transplant, transplantation


March 26th, 2014 · Leave a Comment

Patient Honors Her Liver Donor and Faith in New Book

By Paul Scotti

Peggy Lyons blog story photoHildred "Peggy" Lyons' first signs of liver problems occurred back in 1968, around the time of her son's birth, when her physician noticed she had elevated liver enzymes. An otherwise healthy woman who worked and also volunteered as a fitness instructor at her church teaching several classes a day to both adults and children, Lyons dismissed it as pregnancy-related and didn’t gave it much thought for the next 30 years.

Unfortunately, her liver problems resurfaced right around the time she retired from her job at Proctor and Gamble in 1998. Lyons was told by her physician in her hometown of Albany, Ga., that her liver enzymes were more seriously elevated and that she should see a specialist for a diagnosis. He also told her to cut back teaching her exercise classes, something she was reluctant to do. After going to a medical center in Atlanta for an evaluation of her condition, she was left wondering what her next steps were as she grew progressively ill without any answers.

Lyons turned to her church for support, where her pastor and fellow members prayed and fasted, hoping for an answer. On the last day of a 30-day fast, her pastor received a call from "a total stranger" in her community who said, "The answer is in Jacksonville, Fla., at the Mayo Clinic." Read the rest of this entry »

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Tags: Florida, liver transplant, MayoClinicFL, transplant, transplantation


March 18th, 2014 · 1 Comment

A New Chapter: Life After My Liver and Kidney Transplant

By Jason Pratt

Written by Elaine Ginn, transplant patient at Mayo Clinic in Florida

Elaine Ginn with her book, PatchworkAs I sit here at the Mayo Clinic lab on the Florida campus waiting to be called for a lab draw of a dozen or so tubes of my blood, my mind returns four years to the time before my liver and kidney transplant surgery. I can't say I had given up, as that just isn't in my nature, but I had become so ill that I could imagine myself slipping into oblivion and perhaps not minding.

It was December, about five months before the transplant, and my two local grandchildren had come over to spend the night and help me decorate the Christmas tree. Isabel, who had just turned four, would carefully take each ornament from its storage box and exclaim, "Gramma, isn't this the most beautiful  'ordament' you have ever seen?" Then she would carefully place it on my condo-sized fir, about as tall as Isabel herself. She would admire her work and ask Javier, her charming 8-year-old brother, if he didn't also think it was beautiful. He would nod his head briefly, preferring to focus on the TV, where "How the Grinch Stole Christmas" was commanding his attention.

After she had loaded the tiny tree with more beautiful 'ordaments' than it should have held, I finally tucked the two of them into their makeshift beds, with the proverbial "visions of sugar plums dancing in their heads." I made my way to kitchen to clean up the cocoa mugs and the dishes from dinner. While standing at the sink with my hands in dishwater, my little curly headed princess walked out to the kitchen and hugged my legs, murmuring something I could not make out over the running water. I turned off the faucet, dried my hands, knelt down to her level and asked her to repeat what she had said.  My heart melted as her soft little voice repeated, "You are my most love, Gramma. You are my most love." If ever there was a reason to live, this was it. If 2009 was to be my last Christmas, it would be enjoyed with a very full heart.

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Tags: Florida, kidney transplant, liver transplant, MayoClinicFL, transplant, Transplatation