Suiting up for a celebration


Curtis and three people with his orange shirts on“My sweet boy,” Deborah Morey said as she practically skipped across the room to join him in a group photograph. The boy is her son, 15-year-old Curtis Morey, who was diagnosed with medulloblastoma (a type of brain tumor) on Jan. 27, 2012. The skipping at his Mayo appointment last week was one of several signs that March 28, 2013, was a happier milestone in Curtis’ medical adventure.

When the Moreys arrived for the appointment, Deborah was wearing a blaze-orange T-shirt with Curtis’ picture on the front and the word “Curtify” printed across the back. Perhaps more surprising, the clinical assistant who greeted them wore a matching T-shirt. Inside, Curtis’ doctor, Amulya Nageswara Rao, M.B.B.S., of the Mayo Clinic Children’s Center, was (you guessed it) also was wearing the same shirt. The emotion in the room was palpable, a mixture of relief and elation. And for good reason — last Thursday marked the beginning of Curtis’ last chemotherapy treatment. Read more

By makalajohnson | Posted in Cancer, Pediatrics | Tagged , , , , , , , , , , , , | Leave a comment

Mayo’s caring attitude brings hope to patient


Jim and Louanne, with black walnut veneer logs cut on their farmJim Brooks was vacationing with his family in Spain when suddenly he couldn’t speak for 10 minutes and wound up in the hospital. Jim and his wife Louanne decided together they wanted to return to their Minnesota home and Mayo Clinic.

Jim was diagnosed in August 2012 at Mayo Clinic with glioblastoma, stage 4 brain cancer: he had a ticking time bomb in his head. “Our first appointment was a week after we saw our family physician, and a week after that, I had surgery.  I am thankful for the rapid and coordinated care at Mayo Clinic, and people going the extra step when they didn’t have to,” he said.  Jim received care from not only the surgeon and the doctors, but also many others who were involved with his treatment. “Our sense is that we’ve interacted with somewhere between 100-200 people directly, and indirectly 1,000 people that had a part in my care,” said Jim. Read more

By makalajohnson | Posted in Cancer, Neurology & Neurosurgery | Tagged , , , , , , , , , , , , , , , , , | Comments (3)

Gift from Daughter to Dad: a Liver Donation


Chuck Lewensten ran a successful business, hunted in Africa and played tennis with his fiancé, Jill.

Nonalcoholic steatohepatitis changed all that. By the summer of 2010, the disease had ravaged Lewensten’s liver, leaving him homebound and dependent on his family for care. Instead of hunting trips, Lewensten’s travels took him only to the emergency room.

“We were watching our dad die,” says Amy Konsewicz, one of Lewensten’s daughters.

That’s when Konsewicz’s sister called Mayo Clinic. The call led to appointments with several Mayo Clinic physicians, including Michael Charlton, M.D., a gastroenterologist.

“Dr. Charlton was so compassionate,” says Jill. “We felt like he cared and was going to do everything he could for Chuck.”

That included helping place Lewensten on the liver transplant waiting list. But Dr. Charlton also suggested another option: Living donation.

Konsewicz says she and her three siblings were eager to donate, but she knew immediately that she would be the one.

Testing proved her right; her blood type and liver size made her a compatible donor. But before surgery could take place, Lewensten needed to be convinced to accept the gift of life from his daughter.

At first, he refused. But as his health deteriorated, and after much reflection and many conversations with his family and doctors, Lewensten relented.

Amy on her wedding day and her dad ChuckSurgery took place on Oct. 5, 2010. Two years later, Lewensten walked Konsewicz down the aisle on her wedding day. At the reception, Konsewicz and her new husband held a dollar dance that raised close to $1,000 for Mayo Clinic.

Konsewicz doesn’t minimize her experience, which included post-surgical complications. But she says she would donate “100 times over again.” Especially if she could donate at Mayo Clinic.

“Being at Mayo was one of the best experiences of my life,” she says. “Everyone there, from the doormen to the doctors, cares about human beings. I’m a hospital snob now. I’m constantly comparing, and there’s no better place.”

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By makalajohnson | Posted in Gastroenterology, Transplant | Tagged , , , , , , , , , , , , | Leave a comment

Rare heart-liver transplant gives South Carolina woman a second chance at life


Beki Rose and familyBeki Rose and her husband, Tom, had met with half a dozen doctors, and they all said the same thing.

“They told me to go home and get my things in order,” says Beki, a 51-year-old mother of three with arrhythmogenic right ventricular dysplasia. The congenital condition had so damaged Beki’s heart and liver that she would need a rare heart-liver transplant to survive. But a recent diagnosis of liver cancer meant that Beki was not a candidate for a liver transplant. “I was told no doctor would take my case.”

Then she came to Mayo Clinic, where Russell H. Wiesner, M.D., a gastroenterologist, gave her a reason to hope. Read more

By makalajohnson | Posted in Cardiology & Cardiac Surgery, Transplant | Tagged , , , , , , , , , , | Comments (2)

Surprise amyloidosis diagnosis leads to combined heart-liver transplant


Dan CareyAt the end of a routine physical in 2006, Dan Carey’s doctor asked if there was anything else he wanted to discuss. Dan exercised regularly and felt good. Except for one thing.

“I get out of breath when I walk up stairs,” he told his doctor.

A chest X-ray revealed healthy lungs but an enlarged heart. Dan would soon learn why: he had familial amyloidosis with liver involvement and needed to seek care at a medical center with experience treating this rare form of the disease. Dan chose Mayo Clinic, and during his initial consultations there, he learned he would need both a liver and heart transplant. Read more

By makalajohnson | Posted in Transplant | Tagged , , , , , , , , | Comments (9)

He Said, She Said: How One Couple Battled Colon Cancer Together


Sue Willingham remembers the May 2010 day well. She was getting ready to take her two children to school. But before leaving the house, she did what any mom might – use the restroom.

But then she noticed she’d lightly soiled her undergarments. Only she didn’t remember it happening.

Mayo Clinic patients Sue and Darrin Willingham

Mayo Clinic patients Sue and Darrin Willingham

At 45, Willingham was the picture of health. She ate well, exercised and stayed up on doctor visits. But in that moment, something changed. She called her husband. “I remember telling him I’m scared,” she says.

But then Willingham, who describes herself as someone who is not easily rattled, tried to rationalize the accident, chalking it up to the six fiber pills she’d taken the day before to combat constipation.

“Being one that does not jump to conclusions or get upset or scared of anything easily, I said this is ridiculous, crazy, there is nothing wrong with me. I have no cancer in my family. I have no anything…” But today she admits, “Maybe subconsciously I had been aware of what he had gone through the year before.”

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By Cynthia (Cindy) Weiss | Posted in Cancer, Gastroenterology, General Internal Medicine, Preventive Medicine, Women's Health | Tagged , , , , , , , , , | Comments (7)

Seizure-free after new surgery


Arden and dog, HappyOne of Arden Berge’s most surprising discoveries while he was a graduate student in meteorology had nothing to do with the weather.

“I’d been lying on the bed reading, and all of a sudden I looked up and there were paramedics standing over me,” says Berge. He’d soon learn why. He’d had a seizure, and his girlfriend, Deb (now his wife), called 911 for help. Berge was taken to a hospital, where he had another seizure. He was diagnosed with epilepsy.

While epilepsy is most commonly diagnosed in children or adults over 65, it can develop at any age. The cause of the disorder can sometimes be traced to a head injury or medical issue, such as meningitis or encephalitis. But in about half of all cases – including Berge’s – there is no identifiable cause.

While it was a scary diagnosis, medications made the condition manageable for Berge, who finished his degree and started his career. He adjusted to life with seizures and to the side effects of medication. Then, 33 years after his diagnosis, a trip to Mayo Clinic offered the possibility of a seizure-free life. Read more

By makalajohnson | Posted in Neurology & Neurosurgery | Tagged , , , , , , , , , , , , , , , | Comments (12)

Pleased Patient Shows Enduring Gratitude with Tattoo


David Prochello is no stranger to getting tattoos. He builds custom choppers, he has tats on his arms and a large one on his upper back inscribed: “I am my own role model.”

David's tattoo of green ribbon

So when Prochello, of Dakota Dunes, South Dakota,  received drug therapy and surgery at Mayo Clinic to treat kidney cancer, he felt completely comfortable demonstrating his gratitude in a unique way.

“Well, I hit it off with Dr. Leibovich right away,” said Prochello. “I told him if everything turned out I was going to get his name tattooed on my back.” Prochello’s tattoo includes a kidney cancer ribbon inscribed with the date of his diagnosis and a blank spot for the date of remission. Underneath the ribbon Prochello had inscribed: Tumors removed by Dr. Brad Leibovich. “I just thought he’d get a real kick out of it,” said Prochello. “My biggest worry was that I got his named spelled right.”

Watch Mr. Prochello tell his story below:

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By makalajohnson | Posted in Cancer, Urology | Tagged , , , , , , , , , | Comments (2)

Prenatal Education Class: A special relationship between 3 moms and daughters


In the Winter of 2011, my husband Cameron and I (Megan Rask) were expecting our first child. We were beyond thrilled! I had been doing my care with the midwives at Mayo Clinic, Rochester. Of course, I wanted to sign my husband and I up for every baby class offered!

We soon began the six week prenatal education class, instructed by Christine Baker, R.N. Along with this class, I made sure to sign us up for the infant passenger safety class, and a tour of the labor and delivery floor in Eisenberg.  We also took our newly purchased SUV to the local fire station to have our infant seat inspected by Todd Emanuel, R.N. As parents to be, this was high on our list of things to do: make sure our baby would be safe in our new family car!

Girls at 15 MonthsIn prenatal class, we met two other couples: Bethany Renstrom and her husband (expecting a baby girl) and Stephanie Fisk and her husband (also expecting a little girl). My husband and I were patiently waiting until the day of delivery to find out the sex of our baby. In class, Chris went over everything we needed to know to prepare for the birth of our baby: bathing a newborn, practicing breathing through contractions, and where to park and what doors to come in once we were in labor. She even showed us the gown and pads we’d wear in the hospital, and the Forceps they might use, in the event our baby was in a difficult situation. Seeing all these things in class made it easier for me to mentally prepare for labor. Read more

By makalajohnson | Posted in Education, Obstetrics & Gynecology | Tagged , , , , , , , , , | Comments (1)

Fighting for the Fighters at #TheDonna


Mayo Clinic's Cindy Weiss, public affairs, (left) and Monique Damm, public affairs intern, (right) at the 26.2 with Donna.

Mayo Clinic’s Cindy Weiss, public affairs, (left) and Monique Damm, public affairs intern, (right) at the 26.2 with Donna.

Words can’t begin to describe my feelings on that cold February morning as I watched thousands of people run through the start line at the sixth annual 26.2 with Donna: National Marathon to Finish Breast Cancer.

As an intern at Mayo Clinic in the Department of Public Affairs, I had assisted with preparations for this event. But as I stood there watching the runners and walkers, I realized there was so much more to it. The energy was almost palpable. The passion and commitment of the participants, despite a half hour delay and the near freezing temperatures, was obvious. It seemed like everyone was smiling.

Working with Team Mayo Clinic, I learned the Donna event was not just about breast cancer.  While 70 percent of the proceeds received from the 26.2 with Donna events support breast cancer research, other programs at Mayo Clinic also benefit from the findings, including those aimed at lung, pancreas, thyroid and ovarian cancer.

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By Jason Pratt | Posted in Events | Tagged , , , , | Comments (3)